Nov 25, 2011 - 8:53 pm
Hello. I was diagnosed with RCC chromophobe type, 3.5 mm, stage one, grade 2 five weeks ago after my open partial nephrectomy. It was found incidentally when I was having gallbladder issues. Had to have the gallbladder out first, wait 6 weeks to heal, then the open partial on my left kidney. Since I had so much lag time I had a lung scan, bone scan, liver & pancreas scan, mammogram which were all negative. The one week after partial nec I had a gallbladder attack and had a left-over gallstone removed via endoscopy.
I am a 56 year old female and I am just now feeling good enough to get out and about. My first bit of advice to kidney surgery patients- get that recliner. I bought one last week. Pillows under knees and to elevate head and anywhere else in bed. I had about 8 pillows. I finally took my last vicodin a few nights ago. I only took one at bedtime for the last ten. I also take a little lorazepam which helps me to relax and sleep. If anyone offers to organize meals for your family, say yes. If you can afford a house cleaner, get one. Drink lots of apple juice for regularity. Oh yeah, do other places seem to have a shortage of extra strength Tylenol? Very hard to find here. Miss my Advil but it might be what got me in this predicament in the first place.
My surgery was done at the mayo Clinic. I live in WI. I was told to come back in January for scan and tests. Was told I didn't need an oncologist because the cancer had been removed and I didn't need a nephrologist because I don't have kidney disease... What I really needed was a physical therapist to show me how to get out of bed, off the couch, etc. I still have a back ache on left side and that uncomfortable bulge above my side scar.I also get what used to feel like hot flashes when I went through menopause.
My heart goes out to all of you as I read your stories, especially the young mothers. As if you don't have a full plate already?
Let me know if anything I've said sounds familiar.