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Surgery tomorrow

braswelm's picture
braswelm
Posts: 41
Joined: Oct 2011

Well, after waiting over a month, tomorrow I get the little monster removed.
Still positive, still surrounded with peace. Actually looking forward to some time where I don't have work deadlines, etc., to deal with.....
A round of golf on Sunday must have relieved some underlying tension, because I have felt better the last two days than I have in weeks.
Finished all the Christmas decorations, first time my wife has ever let me put them up before Thanksgiving.
I hope some of the other newbies on here will listen to the experienced ones, they share some insightful tips.
Thank you all for sharing, and I'll update you as soon as I am able.

Mike in Birmingham

icemantoo's picture
icemantoo
Posts: 1516
Joined: Jan 2010

Mike,

The anxiety is behind you. Nows the time to get the little rascal out.

Best wishes,

Icemantoo

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hi Mike,

After its over you will be wondering what all the fuss was about and by X-Mas things should be nearly back to "normal". I spent Thanksgiving in the hospital 2 years ago, they even served me turkey dinner, not like home cookin', but a meal I'll never forget and I have given thanks every day since. You have a great attitude and support group, that's half the battle, you will be fine.

I look forward to hearing from you in a couple days,

Gary

LinnRyan's picture
LinnRyan
Posts: 8
Joined: Nov 2011

Good luck and hope you recover quickly and easily. I get to go next Friday.

Limelife50's picture
Limelife50
Posts: 411
Joined: Nov 2011

I guess now it's all about you ,I wish you a speedy recovery

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

Nothing to it. Good luck!

robert_douglas_smith's picture
robert_douglas_smith
Posts: 84
Joined: Oct 2011

Mike,

Tomorrow will be over before you know it. Take it easy for a little while & eat small meals. Like My family doctor told me, Do what your suppose to do, be where your suppose to be and let the Lord take care of the healing. Will be thinking and praying for you tomorrow. Now that our Bulldogs have won the east I'll say "Roll Tide" LOL

Doug

NanaLou
Posts: 68
Joined: Oct 2011

I just got home from my surgery on the 18th. I wish you the best. Remember to pray for yourself. And do what you are told, these two things helped me.

Nancy

NanaLou
Posts: 68
Joined: Oct 2011

I just got home from my surgery on the 18th. I wish you the best. Remember to pray for yourself. And do what you are told, these two things helped me.

Nancy

braswelm's picture
braswelm
Posts: 41
Joined: Oct 2011

Surgery went fine. They had to make one ofnthe incinsions larger than expected to get everything out. Very sore and weak but walking as much as possible.my wife is telling me not to overdo it.
Think I shocked some of the family by walking in during our Thanksgiving meal yesterday.
Doc says he thinks they got it all.wife says I must have asked that 3-4 times when I woke up. Must have been worried about it.
Still loopy frOm pain meds but will post when I can.

robert_douglas_smith's picture
robert_douglas_smith
Posts: 84
Joined: Oct 2011

Mike,
Great news. Take it easy for a little while, your going to be fine. Listen to your wife, sure she will take good care of you. My wife did for me.
Doug

Minnesota Girl's picture
Minnesota Girl
Posts: 115
Joined: Jul 2011

The worst is over - let the healing begin!

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hi Mike,

Its official, you are a battle tested warrior with the scars to prove it. Very soon things will return to "normal", but take it slow at first and allow your body and all of it's systems to recover. I found getting outside for short walks during the day helped a lot.

My best to you,

Gary

braswelm's picture
braswelm
Posts: 41
Joined: Oct 2011

Well, I think this is a difficult part for me. I am eating very little, but the pain meds Still make me nauseous. Started taking tylenol. Had a rough night Sat, better last night.
I still want to get up and do, and get frustrated at times.
Intestines still not working right yet, though urine has been good.
Just got to take it easy. That's rough for me.....

icemantoo's picture
icemantoo
Posts: 1516
Joined: Jan 2010

Mike,

As i have said many times there is no way to sugar coat the Surgery. The same goes for the first 10 days post surgery. Pretty soon you will be feeling better each day and by 6 weeks you should feel close to normal. Hang in there.

Best wishes,

Icemantoo

msacher63
Posts: 21
Joined: Oct 2011

Home is the best place for healing. Get lots of rest. Every day will bring little victories. (being able to roll out of bed on both sides, laughing /coughing/sneezing without pain, sleeping on either side or your stomach and yes, going to the bathroom). Try not to get frustrated and be patient. All good things will come. Congrats!!!

braswelm's picture
braswelm
Posts: 41
Joined: Oct 2011

Boy, I am trying to think positive, but my intestines are still not functional, and the pain meds now make me sick. Wife called Dr today and got scripts for nausea, and stool softener to see ifit helps. Trying to throw up in this condition is painful!
Haven't had much sleep in the last 36 hours.
Never had a bowel problem before, and thought they should be working by now....
Mike

newenglandguy
Posts: 66
Joined: Jun 2011

Pain meds will bind you up. I took fiber capsules (Psyllium Husk fiber) twice a day, but do check with your Doc first. Being bound up will inadvertently cause discomfort and can, no doubt, be painful. Things will get better, but everyone's experience will not be consistent. I could not comfortably sleep for almost a week. Survived on power naps. Go slow, and listen to your body. It will ork to correct if you're pushing too hard

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

sounds about right. Hang in there.

BG
Posts: 85
Joined: Jun 2011

Hi Mike,

I shifted to drinking large amounts of water (4-5 glasses a day), which was a large increase for me since I use to drink sodas and sweet tea. In addition, I cut back my red meat, increased fruit/vegetables as well as raw veggies.

I was given a stool softener right out of surgery. The combination of all resulted in no issues even with taking the pain meds.

Hopefully between a diet shift and meds you can get this worked out!

BG

icemantoo's picture
icemantoo
Posts: 1516
Joined: Jan 2010

That nasty little word is a side effect of the pain meds. There is nothing worse than that one week after abdominal surgery. It reminded me of Arnold S. going thru labor in Junior. Several of our ladies in their posts have tried to sugar coat this by referring to the arrival of the Potty Fairy who makes it all go away.

robert_douglas_smith's picture
robert_douglas_smith
Posts: 84
Joined: Oct 2011

Mike,

Hope this finds you feeling better. After the 1st week home things will get a lot better.
I'm 5 weeks past surgery. I returned to my part time job at the animal clinic last week, and for the most part feeling pretty well and back to about 90% normal. Have been having some discomfort under lower rib cage on the surgery side, just kinda comes and goes. Am still walking around the neighborhood every day that I don't work. I work 8am to 6pm on Wednesday and Thursday and am pretty (raged out) tired when I get home. The past week seems to have been the best so far.
Take it slow and easy for a little while longer. Soon you will be where I am now. Will keep you in our thoughts and prayers.

Doug

braswelm's picture
braswelm
Posts: 41
Joined: Oct 2011

Well, the first 10 days were the worst, but as all you experienced folks told us, it gets better pretty quickly. Finally got over nausea, all systems back to normal, especially my appetite! He had to make one of the incisions larger to get everything out, so I'm still sore and weak, but increasing my walking distance every day. Have not used pain meds since about day 5.
Went for post-op check up the other day. The tumor was Stage One, 7.8 cm, and contained. Doc says there were no signs that it had spread, and my survival rate is 90%. Sounds a little low to me!
Must have CT scans every 6 months, and to me, that long an interval is a good sign as well.
I thought by now cabin fever would have set in, but so far it has been OK.
Still believe that a positive attitude makes a huge difference in how you handle it. Not that it is easy at times, but I've also had great support from my wife.
Thanks to all who have posted on here, you are helping so many people who might not otherwise know where to go....
Roll Tide!
Mike

Limelife50's picture
Limelife50
Posts: 411
Joined: Nov 2011

Glad you are cruising right along to a speedy recovery,and also glad to hear about the favorable path report.I had my right kidney removed on 10/11 this year I my self was also a stage 1 and I thank god every day for my early diagnosis,so good luck and take care

robert_douglas_smith's picture
robert_douglas_smith
Posts: 84
Joined: Oct 2011

Mike,

It's great to hear how well you are doing. I'm almost 7 weeks post-op and am feeling 95% back to normal.

Had a ct of brain a few weeks back and everything was ok!! Will have a 3 month ct of lungs and abdomen the 27th. I think if all comes back good on those test I'll breath easy for a little while. Seems like all we do here for while is wait for something. Also waiting to go to Orlando with family for the New Year.

Again glad you are doing good, it just takes a while to get back to your old self. I say that and am thinking that we will never again be our old selves, but we will be someone that will be vigilant of our health. I feel we will be more active in the decisions we make with our doctors.

I hope you and your family have a safe and blessed Christmas and New Year!!

Doug

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

Good for you!!!! Hang around and help advise other newbies. It will be appreciated.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hi Mike,

Good to hear everything is on track and you are on your way back to "normal" again. I got the 90% story at my first follow-up too, now at 2 years my Doc says its moved into the high ninety's, that's more like it.

Enjoy the holidays,

Gary

flatlander's picture
flatlander
Posts: 46
Joined: Dec 2011

As I come down to the final days before surgery its good o see you made it through.

braswelm's picture
braswelm
Posts: 41
Joined: Oct 2011

Make sure you read some of icemantoo's posts. He is the "old man" of the board.
One thing he will tell you is there no way to sugarcoat the surgery, or the first week of recovery. It can be rough, but you will be OK. I found that a positive attitude helps a lot.
But once you turn the corner, you will be feel much better.
Just don't try to overdo things, let the healing take it's course. I am 22 days out now, and though I feel much better, I still have to be careful not to try too much. When I get tired, I take a nap. Each day gets a little easier. Do a lot of walking. Don't try to lift anything.
Keep us posted on the surgery when you feel up to it.
Got you in our prayers.
Mike

cww71964's picture
cww71964
Posts: 95
Joined: Dec 2011

Hi All,

New here, just posted my story under "just joined the club". I am scheduled to have my left kidney removed 1/17/12. I live in a 2-story house with my bedroom upstairs. Will I be able to make it up there when I return home?

garym's picture
garym
Posts: 1651
Joined: Nov 2009

cww,

You should be able to make it up and down the stairs slowly, but most of us have found that a good recliner works better than a bed for at least a week or so once you get home. Getting up from a prone position can be near impossible not to mention finding a comfortable way to lay.

Good Luck,

Gary

braswelm's picture
braswelm
Posts: 41
Joined: Oct 2011

Don't rush it. I moved my recliner upstairs to the bedroom before surgery. Keep a pillow handy to hold over your abdomen when getting up or down.
And I milked it a little too. Convinced my wife I needed a big screen TV for the bedroom!
Mike

braswelm's picture
braswelm
Posts: 41
Joined: Oct 2011

Don't rush it. I moved my recliner upstairs to the bedroom before surgery. Keep a pillow handy to hold over your abdomen when getting up or down.
And I milked it a little too. Convinced my wife I needed a big screen TV for the bedroom!
Mike

foxhd's picture
foxhd
Posts: 1897
Joined: Oct 2011

I agree with every one. A recliner is the best thing. Second best is your remote control.

robert_douglas_smith's picture
robert_douglas_smith
Posts: 84
Joined: Oct 2011

Luckily I had an electric recline that stand you all the way up that was left over from my late mother-in-law. It was a life saver.

Doug

robert_douglas_smith's picture
robert_douglas_smith
Posts: 84
Joined: Oct 2011

Luckily I had an electric recline that stand you all the way up that was left over from my late mother-in-law. It was a life saver.

Doug

robert_douglas_smith's picture
robert_douglas_smith
Posts: 84
Joined: Oct 2011

Luckily I had an electric recline that stand you all the way up that was left over from my late mother-in-law. It was a life saver.

Doug

braswelm's picture
braswelm
Posts: 41
Joined: Oct 2011

Well, another milestone. I have returned to work, for at least 4 hours per day to start....
Still building stamina, so not going to push it. Went to Wal-Mart with my wife yesterday, and after about 30 minutes, had to find one of those motorized carts. Just could not go any longer.
Got a new golf bag for Christmas, and am shooting for Feb 1 to return to the course.
May have to travel for work in a few weeks, so wondering how that will play out. Flying is usually tiring for me, and I never sleep as well in a hotel.
But, overall, it's good to be getting into a "new" normal routine.
Thanks to all...

Mike

Boomersdad
Posts: 25
Joined: Jan 2012

Very first post so go easy on me,Staffordshire ,UK,I have read a lot of these posts and I was wondering have all the above kidney removels been via key hole surgery, Im going into hospital on Staurday 7th Jan 2012, to have my left kidney removed I only had a sore back 2 weeks ago but they found I have a growth the size of a tennis ball, Im haveing key hole via two cuts in my rib cage and a 3inch cut in my stomach area to remove it ,any surgestions will be very welcome, Thanks Errol

myboys2's picture
myboys2
Posts: 50
Joined: Nov 2011

You will do great. My son had his out 11/16. We were told they had never had anyone w no fat and thus they had to go into the ab wall to get a good margin. Yet he still did great. He too had the key hole technique and a cut to extract. You will do great!!

Gail mother of Cody 21
diagnosis 8/10/11 unclassified RCC
8/16 checked into NYU as emergency surgeon concerned head skull tumor was closing ventricle to brain
8/17 embolization via femoral artery to bone lesion on skull 7 hours
8/18 repeat
8/19 10.5 hour surgery to remove skull mass (about 45% right skull)
8/20 began a vegan(from an animal product standpoint) gluten free low glycemic diet; no casein but we do eat ocean caught fish and org chicken; org green drink every day
9/4 titanium skull inserted
9/29 begin sutent 25mg 2 weeks on one week off; then 37.5 2 weeks on 1 week off; then 50mg for 3 weeks then off 5 days (preop tests show 3 tiny liver lesions shrinking) Also Xgeva injection. No lymph,lung or brain involvement
11/16 full neph of lft kidney 5.5 tumor (started at 6cm but sutent was working!!) Still unclassified 
12/1 begin sutent again at 37.5 to work into it
12/8 sutent to 50mg for a week then off a week and continue cycle of 50 2 weeks on 1 week off until next scans (due in late Feb)
12/12 began radiation of remaining skull mets Monday and Thursday for 3 weeks high dose (already noted necrosis of tumor after one dose)

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

It would be wrong to say you don't have anything to worry about but it's probably a lot better than you're fearing. It's been a bit of a whirlwind for you so keep reading all you can about these things. You'll find lots of helpful information on all of the various message boards here about kidney cancer. Get any important jobs you want to done before you go in because it will be a few weeks before you're able to do any hard physical tasks for a few weeks after surgery.

I'm about 300 miles north of you and had my right kidney removed four weeks ago together with a tumour roughly double the size of yours. They wanted to do my surgery in the way you describe - that's best if it's possible. Unfortunately for me (and the surgeons) they eventually had to change to open surgery in order to finish the job so I had the 3 small cuts but then one about 10 inches long to get everything out intact. I'm 69. Now I'm feeling fine and planning to get back to a lot of golf, rowing and weightlifting fairly soon - next few weeks, I hope, depending on the expert advice I'm given after assessment of my readiness for it. We've had 100mph winds yesterday (NE Scotland) so I didn't go out but I've been walking most days with my Wife. We walk for as far as she can manage and have got up to 5 miles a day, after doing it for a week and a half.

The first couple of days after the op. are painful - there's no denying that. Take all the painkillers you need (the hospital will ensure you don't have more than you need, so don't be afraid to ask for more if you need to). As soon as you can, start walking and do as much walking as you can for the next few weeks. If you do you'll greatly speed up your recovery and feel as right as rain before you know it.

Good luck.

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