Nov 18, 2011 - 4:53 pm
I just joined this board today, and I was moved by the tamoxifen stories. I don't think the medical community to this day takes women's health as seriously as men's health.
I never took tamoxifen, but have recently been diagnosed with uterine cancer, stage 3C already. It has spread around to the lymphs in the torso, but does not yet appear to have gotten into the spine, bladder, bowels. The one question the various doctors I have seen so far asked is "did you have any vaginal discharge, or bleeding, or spotting?" and it seemed to them very puzzling that I could have a cancer started in the uterus and never had this most tell-tale signal. Oh, I am 53, by the way.
Back in my early 40's, about 10 years ago, I had a radio-frequency uterine ablation. Once that was done, there were no more menses. Menopause still came years later, as my uterus and ovaries were still intact. The reason I had the RF ablation was for some fibroid cysts, and what I was told back then, was that the RF ablation was a simple, outpatient procedure, could avoid a hysterectomy, the only danger was if by chance I became pregnant after that, so don't get pregnant.
The gynecologist oncologist I saw a couple days ago, tried to do a biopsy of the uterus, but could not. The womb was scarred shut. In his opinion it was from the RF ablation. Also in his opinion, my uterus is now swollen to about 3x the size it should be and is filled with clots, blood, etc, that should have been coming out, and if it had, I would have known, MUCH EARLIER, that I need to see a doctor. I am so upset! No one told me, when I had that procedure, it could lead to a very much delayed diagnosis of cancer. I would have said lets remove the uterus, all the fibroids, etc, and then not need to take any chances.
Women need to get the word out, ask questions, ask what are any complications, no matter how remote the likelihood! So we can be truly informed and make the best decisions for ourselves.