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Update on Rickie Prayers please

cher76's picture
cher76
Posts: 302
Joined: Nov 2010

Dear EC friends,
I haven't posted lately as we had been busy with going to radiation for 10 days. We finished that a week ago Wednesday, and Rickie was regaining the use of his right leg. He has been getting stronger and was actually able to eat a little better than usual. we were also running the feeding tube during the night which helped to give him some energy. We were going in for hydration almost every day last week, which also seemed to help. On Monday of this week when I disconnected him from the feeding pump, bright red blood started coming out of the tube. He dido not want to go to the ER for fear he would never come home, so we waited for the doctor's office to open and went in there. The doctor basically said that we should just keep in eye on it for signs of internal bleeding. He also asked us when we were going back to Houston, and w e told him we were waiting for results of the brain radiation to see how things were going. He told us he did not feel Rickie was strong enough to undergo anymore treatments. He suggested we increase the dilaudid and administer it around the clock to help with his back pain. Rickie's ankles have also been swelling and his blood pressure was low. We saw no other signs of bleeding, however all day yesterday his pressure was very low and his pulse was high. Last night he became incoherent, mixing up syllable when he was trying to tell me things. About one thirty in the morning he got up to got to the restroom and his legs buckled under him. He asked me to call an ambulance and we ended up in the ER. During that time he started having a GI hemorrhage. He was started on blood transfusions and when he became more incoherent and they gave him ativan. Our son is here with me and our daughters are on their way. We spoke to the doctor about hospice and hopefully if they can stabilize him, we will go home to hospice care soon. Rickie is a fighter and has not wanted to give up but perhaps the time has come. Please keep us in your prayers as we start the final road of this journey.
Cheryl
Wife of Rickie, dx stage IV EC, Oct. 2010
Mets to bones and brain

MissusB's picture
MissusB
Posts: 112
Joined: Jul 2011

I know you must be very fearful, and I'll pray not only for Rickie to stabilize but for you to be able to maintain your tremendous strength. Kim

sangora
Posts: 218
Joined: Mar 2011

This is certainly a set back and I know you are very down right now. Rickie has put up the good fight and he has to be getting tired. Know that you, Rickie and your families will be in my thoughts and prayers as you complete the journey EC started you on. All of us with this disease are on the same journey and thru this site, we travel it together. Love and prayers, Sam

mruble's picture
mruble
Posts: 179
Joined: Jun 2011

Oh Cheryl, I'm so sorry to hear of this turn of events. My prayers are with you.

Mary

ritawaite13's picture
ritawaite13
Posts: 249
Joined: Aug 2011

Hi Cheryl,
I am so sorry. I posted earlier that I was concerned because we hadn't heard from you in awhile and now our worst fears have been realized. As someone who's recently been through exactly what you're dealing with, I have one piece of advice; Have a wonderful albeit tearful heart to heart conversation with Ricky and with your kids. Then give him all the drugs allowed to keep him comfortable and peaceful until the end. I thought it was best that we not drug Greg up too much so we could still communicate. That was a mistake. He became so combative and had such terrible hallucinations that I couldn't handle him alone at home. I needed help day and night for the duration but after we got him on a strict and regular regimin of atavan, halidrol and oxycodone, he passed away very peacefully. Please know that you are all in my prayers - I know that's probably not the most comforting words to hear right now, but it's all I have.
Hugs to you
Rita

chrissiebass
Posts: 60
Joined: Apr 2011

Cheryl,

I am so sorry to hear this. Know that all of you are in my prayers!!!

paul61's picture
paul61
Posts: 1116
Joined: Apr 2010

Cheryl,

I am so very sorry to hear that things are not going well with Rickie. He is certainly a fighter and this summer and fall has been a fight for both of you. I will be praying that they can get Rickie stabilized so he can return home with hospice care. You will both be in my prayers.

Best Regards,

Paul Adams
McCormick, South Carolina

DX 10/22/2009 T2N1M0 Stage IIB
12/03/2009 Ivor Lewis
2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
Two year survivor

Ginny_B's picture
Ginny_B
Posts: 537
Joined: Sep 2011

Cheryl,

God be with you and your family at this time.

annalan
Posts: 149
Joined: Jul 2011

Cheryl
Just wanted to say how very sorry I am to hear that Rickie is not doing well. I'm thinking of you and your family at this very trying time.

Ann (2)

Wife of patient...
Posts: 129
Joined: Oct 2011

My thoughts are with you! It sounds like you guys have been through hell this week. Glad to hear your son and daughters will be there by your side to provide help & comfort. You’re in my thoughts.I pray that he finds comfort from pain;they are able to stabilize him for home. Take care of yourself too!
Sal

Daisylin's picture
Daisylin
Posts: 380
Joined: May 2011

I am so sorry for what you are going through. Sadly, it sounds almost like a mirror image of what Lee went through, only a few weeks ago. You must be so terrified. I am so glad your children are going to come visit. They will be a great help and comfort to you, and Rickie. You cannot do this on your own, allow all of your friends and loved ones to help you and support you.

I hope and pray that the transfusions work for Rickie. I have no words, I am so sorry and praying for you Cheryl.
Chantal

fredswilma's picture
fredswilma
Posts: 196
Joined: Mar 2011

Just to let you know that I am thinking of you both, so very glad your son and daughters are on their way home, Cheryl you will need the comfort of having your family close, prayers coming your way.
Ann

mrsbotch
Posts: 377
Joined: Oct 2010

Dear Cheryl

I am so very sorry about Ricky. Altho Hospice sound so final you will get all the help you need from them.

Unfortunately there comes a time when enough is enough.Vince and I never wanted to believe that, no one does. It just hurts so bad but suffering hurts so bad too.

You are in my prayers

Barbara

Ericalynn's picture
Ericalynn
Posts: 207
Joined: Jun 2011

O Cheryl I am so sorry, I wish I could say something that would make you feel better but I have no words.
Please know that I am praying for you and Rickie.
Love to You & your family
Erica

Heeran's picture
Heeran
Posts: 173
Joined: Aug 2011

I'm so absolutely sorry to hear of your husbands struggles. I can only imagine how hard this must be on you and your family. I will keep you in my prayers.

birdiequeen's picture
birdiequeen
Posts: 329
Joined: Mar 2011

So sad to hear Rickie has taken this turn after such a hard fight. He has been so strong and through so much. Please know we are praying for Rickie, you and your family during this difficult (unimaginable) time.

TerryV's picture
TerryV
Posts: 916
Joined: Jul 2011

There aren't words enough to express my sorrow at your words.

I pray for peace and strength for you and your family. Peace and no pain for Rickie.

I'm sure you will find much comfort in hospice. I pray the transfusions help and Rickie is able to return to the comfort and love of HOME.

Please know that we are here for you - when you need us.

Love and hugs,

Terry

unclaw2002's picture
unclaw2002
Posts: 664
Joined: Jan 2010

Cheryl,

My thoughts and prayers and with you and Rickie as you face this new step in the EC battle. It was such a blessing when we called in hospice for my dad. And it helped him and made a world of difference to my mom --- the comfort and support they gave us was amazing. We called them our angels here on earth.

I know the love you both share and the love of your family. Lean on each other and treasure these days.

Hugs and love,
Cindy

AngieD's picture
AngieD
Posts: 504
Joined: Sep 2011

I'm so sorry to hear this news! I'm praying for Rickie to be quickly stabilized and the right drug combination found to give him peace. And for you and your children, I pray for strength and lots of support.
Angie

oriontj
Posts: 390
Joined: Jul 2009

We lift you up in prayer. This is heartbreaking news.

jss2011
Posts: 137
Joined: Sep 2011

I am so sad for what you are all going through.
Prayers on the way for your family.

Julie

chemosmoker's picture
chemosmoker
Posts: 525
Joined: Aug 2011

Cheryl,
Prayers for YOU, your family and of course Rickie. I wish you a return home and a peaceful Hospice experience They are SO good at making me comfortable and I am at home and they are keeping me sane and pain-free. I pray Rickie be given the same chance to be home and get peace and time with you. Listen to Rita. do NOT hold back on pain meds. KEEP him comfortable 1st, coherent or conscious second, and I think hospice will see to this for you anyway, trust them and go with their advice.

God bless you.

I am praying double time for his fighting spirit as always.

Eric

Benbrauer
Posts: 5
Joined: Nov 2011

So sorry to hear about your husband. I have stage four EC also. I will pray for him and you.

ABC321's picture
ABC321
Posts: 52
Joined: Oct 2011

Hi Cheryl,
We are sending you and the family hugs.....it's very sad news.
Steve

baileybell
Posts: 7
Joined: Sep 2011

Thinking of you today....Hope all is well.

JReed's picture
JReed
Posts: 463
Joined: Nov 2011

Cheryl & Family:

So very sorry to hear this news - May God wrap His loving arms around each of and provide you with the comfort and knowledge you seek. So glad your family can be with you.

Our prayers and thoughts will be for and with you during this journey.

Peace,
Don & Judy Reed

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