Dear EC friends,
I haven't posted lately as we had been busy with going to radiation for 10 days. We finished that a week ago Wednesday, and Rickie was regaining the use of his right leg. He has been getting stronger and was actually able to eat a little better than usual. we were also running the feeding tube during the night which helped to give him some energy. We were going in for hydration almost every day last week, which also seemed to help. On Monday of this week when I disconnected him from the feeding pump, bright red blood started coming out of the tube. He dido not want to go to the ER for fear he would never come home, so we waited for the doctor's office to open and went in there. The doctor basically said that we should just keep in eye on it for signs of internal bleeding. He also asked us when we were going back to Houston, and w e told him we were waiting for results of the brain radiation to see how things were going. He told us he did not feel Rickie was strong enough to undergo anymore treatments. He suggested we increase the dilaudid and administer it around the clock to help with his back pain. Rickie's ankles have also been swelling and his blood pressure was low. We saw no other signs of bleeding, however all day yesterday his pressure was very low and his pulse was high. Last night he became incoherent, mixing up syllable when he was trying to tell me things. About one thirty in the morning he got up to got to the restroom and his legs buckled under him. He asked me to call an ambulance and we ended up in the ER. During that time he started having a GI hemorrhage. He was started on blood transfusions and when he became more incoherent and they gave him ativan. Our son is here with me and our daughters are on their way. We spoke to the doctor about hospice and hopefully if they can stabilize him, we will go home to hospice care soon. Rickie is a fighter and has not wanted to give up but perhaps the time has come. Please keep us in your prayers as we start the final road of this journey.
Wife of Rickie, dx stage IV EC, Oct. 2010
Mets to bones and brain