Nov 17, 2011 - 2:17 pm
At original diagnosis and 2 subsequent recurrences, my CA 125 seemed to be reliable indicator and early warning system - doubled or tripled before anything even showed up on scans. For last three tests had hovered around 30-34 after grueling six months of Cisplatin and Adriamycin had shrunk exisiting tumors 30% .So when I got good CA 125 reading, I got positively giddy with the thought of living 3 months with cancer in the background. But lo and behold when I went in to get CT scan results the tumors in my lower lobes of my lungs are growing and there are new tumors in upper lobes. My doc was also surprised,took another CA 125 two days ago and it was still 35. It can sound so petty but I got really angry at my body, God, science, whoever that I had gotten so excited about a 3 month reprieve (I know I can't be cured) and then got dashed down. I am wandering around like one of those cows in the slaughterhouse they hit in the head with a rubber mallet.I do know not all women get a change in CA 125 but just wondered if anyone else had had it quit rising after 3-4 consistent patterns (actually got down to 9 after first chemo several years and each recurrence has gone up significantly until now).