Nov 13, 2011 - 8:59 pm
On Sept 28 I had a open radical nephrectomy on my right kidney. I just had a meeting with my surgeon going over the pathology results with my surgeon. The tumour was 7.5 cm and was considered to be unclassified. The surgeon still had no answer (And is still baffled as I am a 23 yr old female - an unlikely candidate) except that he said this type of unclassified tumour is an aggressive form of RCC. What worried me is that during the surgery, as a precaution took out 2 of my lymph nodes and ended up finding traces of the cancer in one of them. I thought once I had the surgery I would be in the clear, but it has dawned on me this is something I am going to have to deal with my entire life.
Because they found traces of the RCC outside of my kidney I am now extremely stressed that I am going to have to deal with this again in the future. I dont have my 3 month scans until February and I feel like a sitting duck. I was just wondering if anyone has any experience with this, or what the reoccurrence rate is for this type of RCC? Thanks for any help !