Nov 08, 2011 - 5:39 am
I’m not sure if this is the right place to find some advice but I hope it is,
Harley has had a chest x-ray and his spleen checked. These came back normal, but through my research I have also discovered these things aren’t always affected, it is less likely in NHL for these to be effected, and if they are it would be a higher stage lymphoma e.g. stage 3/4 +
Harley has had blood tests, but I have also discovered blood tests should only be used if the child has been diagnosed as the bloods will be tested in a different way to try and identify a stage rather than a diagnosis, it is extremely unlikely they lymphoma would be found in a blood test.
Harleys enlarged lymph nodes are not massive, I have to point out the lumps - but they are enlarged, have multiplied & spread and in one side of his neck they have noticeably got bigger. The doctor was the one to find them enlarged in the groin, and find the others in his neck.
Basically, I have a series of hospital and pedeatric appointments this month, my concerns are high and the doctors aren’t, I believe the risk benefit of a biopsy is worth it and they do not. Untill Harley is awfully ill they will not do anything, his fevers are increasing and so are the lymph nodes – am I right to worry? And what do I do to get the doctors to agree with me without Harley getting worse.
His last WBC was elevated, i have his medical records but it did not state the last white blood count he had, unfortunately i will not know how high it was untill next tuesday
P.S I am aware and obviously hope it is something else as I keep being told this could be something else, but I am not being reassured as to what ‘else’ it could be. My nan also has lymphoma, I know they say there is not proof that it Is hereditary but there are often cases of two family members having lymphoma at the same time.