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Radiation burns

CindyGSD's picture
CindyGSD
Posts: 191
Joined: Aug 2011

Has anyone experienced radiation burns during treatment. I just got my first of 25 external rounds of radiation and was told that I shouldn't have any issues with burning, but everyone I've talked that has gotten radiation for other types of cancer (including breast cancer) did have burns and blistering. I don't think the radiologist is being completely forthcoming. He has yet to mention anything about dilators either which is fine by me. :o)

TIA
Cindy

Fayard's picture
Fayard
Posts: 343
Joined: May 2011

I did not have ration; however, if you do get burn use fresh aloe vera.
I used it a few years back on my former fiancee who had radiation in his neck.
I cut a stalk, peeled it, and then blended it. I put it in a glass jar and applied it on the burn 5 to 6 times per day.

Today, he has not traces of burning in his neck.

cleo
Posts: 121
Joined: Sep 2009

I was given the following instructions. [30 treatments.]
Use a water based cream on the skin. I used this immediately after radio and after bathing.
Do not use scented soap or other such ointments/lotions
Do not bathe in hot water.
Also told to say immediately if I felt nauseous...did so and had pills to settle the stomach immediately as I did lose a fair bit of weight and eating is essential. I went through a lot of fruit!
I had no problems. Hope all goes well.
My oncologist gave the dilator etc info.

CindyGSD's picture
CindyGSD
Posts: 191
Joined: Aug 2011

They didn't mention anything about nausea, but I have plenty of medication from chemo if it becomes a problem. Mostly loose bowels and bladder issues were what I could expect. I guess I'll just have to wait and see. I did get a big pamphlet of stuff way back in August when I had my first consultation with the radiologist so I guess I should re-read that. I was primarily concerned with the burns since I work full-time and didn't relish the idea of sitting at work with burns on my pelvis. Sounds like it's not a huge issue for unterine radiation.

Thanks for the info.
Cindy

CindyGSD's picture
CindyGSD
Posts: 191
Joined: Aug 2011

I'll try it. If I have any issues I'll consider trying that. I've seen those plants at garden centers.

Cindy

Kaleena's picture
Kaleena
Posts: 998
Joined: Nov 2009

Hi Cindy:

I only had brachytherapy HDR radiation. I did not experience any burns but because it was an internal radiation, I was offered the dialator. I was not a candidate for external radiation for my severe scarring that I already had. I am sorry to hear about your burns.

I do (and have recently) gotten burns from the EKG pads, adhesive tape, and steri strips. Recently (after my port removal) I had a rash where the bandage was and blisters at the end of the steri strips. I don't get it all the time.

Anyway, never feel that you can't ask your radiation oncologist questions. Is your radiation doctor a radiation oncologist?

My best to you on our upcoming treatments. I hope that you do not experience any more burns.

Kathy

CindyGSD's picture
CindyGSD
Posts: 191
Joined: Aug 2011

I've only had two treatments so far so no burns yet. I'm just surprised that it won't be an issue since everyone I know that's been treated with radiation has had burns from it, but that was for other types of cancer.

I'm sorry that you have issues with the adhesive being applied to your skin. A chemo nurse told me that years ago it was never a problem but now she sees it all the time. Makes you wonder what is going on with our bodies that we are becoming allergic to everything.

Not sure if the radiologist is an oncologist, I'll have to check into that. The radiology center is attached to the hospital, but is its separate contained unit which seems to accomadate us cancer patients with our quick little treatments. You don't even have to check in at the front desk.

I am having brachatherapy too, so maybe that's when they will talk about the dialator. Oh joy.

Cindy

lkchapman's picture
lkchapman
Posts: 103
Joined: Jan 2011

Hi Cindy,
I had 25 extended field radiation treatments ( above my navel)and all I had was a mild redness. I never needed to use any cream or felt pain. The radiation they use for uterine ca isn't as strong as that which they use for other types such as breast. Also your radiation onc probably won't say anything until the last visit about the dilator. My nurse was the person who gave it to me and showed me how to use it after my very last treatment.

Good luck. It will be over before you know it!
Laura

CindyGSD's picture
CindyGSD
Posts: 191
Joined: Aug 2011

If our dosage of radiation is less then other types of cancer, that explains it then. Today I got to meet with the radiologist and he mentioned that I shouldn't have any side effects until a week or two into treatment which may include some bladder issues and certainly some loose bowels. I can't wait.

He's a laugh a minute...that radiologist...his latest comment was "two treatments down...almost done". HAHA

Cindy

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

I had same external pelvic radiation -- 33 though. I had no burning, but did get a bit of a tanned skin color. Two weeks into treatments you'll have fast bowels...so watch what you eat. I'm a huge fresh vegie and fruit gal and boy did I have to give up much of this part of my diet. More bland foods such as bananas, crackers, etc. Also had me take some over the counter pills to slow down the bowels. Luckily I worked from home and close to toilet as at times it was a "mad dash to the toilet"...sorry but that was exactly what would happen.

Guessing approx 4 weeks after treatments completed, could I sustain my normal diet of fresh fruits and vegies.

What I found most people with pelvic radiation didn't have burns to skin like women with breast cancer. The skin lower isn't as sensitive as under the arms.

Good luck....happy to see you're getting to end of treatments. Did they sandwich your radiation between chemo? That was my protocol.

Hugs,
Jan

JoAnnDK
Posts: 276
Joined: Jun 2011

I had serious burns twice during my 28 external treatments. But my radiation oncologist gave me a salve to put on it and it worked really well.

I had bad stomach/bowel issues during radiation, too. I was staying at my daughter's for that month and we had big plans to try lots of new restaurants during that time. Yeah, right, sure....never happened. I would say that it was a good month after finishing treatment when I was able to eat normally again, and those "fast bowels" remained for many months.

The dilator was just the final insult after the simulation for the brachytherapy.

JOANN

cleo
Posts: 121
Joined: Sep 2009

Noted that you were working and sitting. I had full pelvic radiation. If you do go the cream way do not miss between the butt cheeks. I did miss.....and the only place I had dried skin afterwards.
Your glorious shepherds? Great condition.

Ro10's picture
Ro10
Posts: 1356
Joined: Jan 2009

I had 28 external radiation treatments, and a 28 hour internal radiation treatment. I had no burns. I did not have the bowel issues that many others had. I did have some nausea the last several weeks though. I was also tired the last weeks of the treatments. I had the sandwich treatment, too.

My radiation oncologist did not recommend a dials tour. He said if I was sexually active, I would not need one. I have not had any problems. My husband says he does not any difference.

Good luck with all your treatments. In peace and caring.

CindyGSD's picture
CindyGSD
Posts: 191
Joined: Aug 2011

I breezed three my first three rounds of chemo so I'm worried that it will be the radiation that does me in. So far, other than butt burns, nothing sounds too bad.

Cindy

HellieC
Posts: 425
Joined: Nov 2010

Yep - I was fine apart from between those cheeks! It was really sore and weepy but healed up quickly. I guess the "hot spots" will depend on exactly where the beams are being focussed. My radiotherapy was for a recurrence at the vaginal vault, so I had 45 Gy to the pelvis with a 14.4 Gy "boost" to the tumour at the end. It was right at the end that the soreness started.

CindyGSD's picture
CindyGSD
Posts: 191
Joined: Aug 2011

Okay I guess I meant that having the waistband of my pants hitting my lower abdomen could be painful...but now you're telling me there is the potential for butt burns. Oh it keeps getting better and better. ;o)

Cleo - Yes my dogs. I actually have three right now. I show them or use to. These are getting too old to show and I'm not up for a puppy right now.

Cindy

CindyGSD's picture
CindyGSD
Posts: 191
Joined: Aug 2011

Thanks Jan....Yes that does seem to be the biggest side effect. I guess the radiation runs are better than the chemo constipation, but we'll have to see if I'm singing that tune in a few weeks.

I am getting the sandwiched treatment as well, so after the external and internal radiation I will be getting three more rounds of chemo. What kind of chemo did you get?

Cindy

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