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Newly diagnosed

germanlady
Posts: 20
Joined: Nov 2011

I have been diagnosed with popelley serious uterine cancer. I would like to talk with other women who have this. .God bless you all, Edith

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Please post a bit about yourself and your cancer diagnosis.

Happy to listen and help you in any way.

Jan

germanlady
Posts: 20
Joined: Nov 2011

Hi Jan, From reading others stories, mine is very similiar. I am 61 years old with 3 grown children, and 4 young grandchildren. Isn't it funny how a crisis bring family together? Usually I don't see my kids that often, but yesterday when I got my diagnosis they all showed up at my front door. We held a circle family prayer and all cried a little. I had vaginal bleeding, then had pap smear, ultra-sound, hysteroscopy, D & C and biospsy. They found a 3 centimeter tumor in my uterus which is popellery serius. Next Tuesday I go to the gyno/octo and then for a hysterectomy. Not sure about after that. We have HMO insurance so am limited...have to stay in the network. Am going to Aurora Women's Pavillion in West Allis, Wi. Thanks for listening. I hear that this type can be hereditary.

Cookiemookie
Posts: 6
Joined: Oct 2011

Sorry to hear of your diagnosis.

I also go to the Aurora Womens Pavillion in West Allis.

I had a radical hysterectomy there May 17 this year.

germanlady
Posts: 20
Joined: Nov 2011

how do you like Aurora Women's Pavillion? What type of cancer do you have? Nice to meet you. I would like to stay in touch. How are you doing? Blessings

jazzy1's picture
jazzy1
Posts: 1387
Joined: Mar 2010

Your path at beginning sounds similar to mine....vaginal bleeding....etc. Happy to read you have an OB oncologist as that's the preferred choice of docs in our situation. He'll schedule the hysterectomy and then you'll know the staging and path that cancer did or didn't take in your body. I had 2 very small tumors approx 2 cents in uterus and 1 lymph node in pelvic area. My doc took out 24 lymph nodes up to my neck area for testing. My cancer is different then yours but very aggressive, MMMT. See much on our side and ovarian side so tour around CSN a bit and find out lots of inforamtion.

Really all cancers can be hereditary, and in my case NO ONE in my family was noted to have cancer, so was a shocker for me. Luckily I've got a very close family and a ton of friends who were always here for me. I had 6 rounds of chemo and 33 sessions of external pelvic radiation. They didn't tell me my protocol until after staging and surgery were completed. Try to be patient as this process tends to flip one out with worry.

Suggestion to bring someone with you to the oncologist appt as you'll not remember much of what the doc tells you. I brought my hubbie and had a memo pad and pencil with questions and wrote down all he told me.

I was advised to not research much on the internet and especially with our type of aggressive cancers...most of statistics and research isn't up date. You'll find in many areas that people are living very long lives and functioning quite well.

Let us know if you have other questions and know you'll get some great help from this site. See if you have in your area a non-for-profit called CANCER SUPPORT COMMUNITY. They offer therapy groups, yoga, cooking, instructional classes...and all are free. Some hospital as well offer some support. Really helps to talk with others in similar situation, as you don't feel like a loner in the woods.

Best to you,
Jan

Cookiemookie
Posts: 6
Joined: Oct 2011

When I first suspected I had cancer I knew that is where I wanted to go. All my other Drs are at St Lukes. My sister and I toured the facility when it was first built.(she's in healthcare)

I've seen Dr Johnson and my surgery was done by Dr Mondavhi. So far I am very pleased. I go every 3 months for checkups.

My cancer is different than yours. It is adenocarcinma grade 2 stage 1A. Found this out during surgery. I had 56 lymphnodes removed all clear, but I did have positive pelvic washings. I saw the radiation oncologist(Dr Naida, he's great!) but thought it was not needed at this time. My Dr seems to be very cautious about the washings(2 years ago it would've been staged at 3, there is still information on net that indicates it also(outdated information) )So he has me on Megestrol therapy.

I did very well with my surgery and otherwise doing pretty well. It is just the anxiety of those washings that keep me up at night hoping I am doing the right thing! There is not a whole lot of information out there about the significance of this. I do think that it puts me at a higher risk of recurrance. I believe that they were doing some clinical trials regarding this at the hospital.

I wish you the best with your surgery and treatments. Let me know how you are doing.

germanlady
Posts: 20
Joined: Nov 2011

I have an appointment with Dr. Johnson next Tuesday.

germanlady
Posts: 20
Joined: Nov 2011

My gyn also mentioned Dr. Mondavki. She said either one of them is really good. This is all so new to me. I can't believe it...there is no cancer in our family. Had my hysteroscomy and D & C Monday. Today is Thursday and I feel lousy. Blessings to you

germanlady
Posts: 20
Joined: Nov 2011

Cookiemookie(love that)! We can drive ourselves crazy worrying about if we did the right thing. I am so happy that your surgery went well and that you are feeling ok. The anxiety is aweful. I can hardly sleep anymore. I have to be admit I didn't always have a yearly pap smear, but I guess that doesn't always catch Uterine cancer...only a biopsy does. Drs are so vague about everything. I was going to a family dr. These drs. should tell women that after 40 there is a higher risk of Uterine cancer, so make it one of the first priorities to have that pap smear along with a biopsy every year. Instead he picks on me about my weight, which makes women not want to go to the dr. Oh, well I don't want to play the blame game. Please keep in touch as I would like to know how you are doing. Maybe I'll see you at the Women's Pavillion. God BLess, Edith

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