My 63 year old sister has anaplastic oligodendroglioma. She has been fighting this since 1998. She had chemo and radiation treatments in 2007. This stopped the tumor growth until March of this year. She had chemo and the tumor kept growing by leaps and bounds. She has now finished 5 weeks of radiation. She goes back to the Dr. next week to find out if it has stopped the tumor growth.
I have many concerns that I hope someone can help me with. I have been taking care of her for the last 4 years. I have hired several caregivers, but she runs them off.
I am terrified because I don’t know what to expect next. Her speech has gone from slurred to I can’t understand what she is saying and she has difficulty finding the words she is trying to say. She thinks speech therapy is going to cure her. In reality, they are trying to teach her to communicate is different ways. She can no longer read or write. I have to repeat myself several times to make her understand what I’m saying.
My next concern is that I don’t think she realizes how ill she is. She has never asked the Dr how much longer she has or what the chances of the treatments working are. He told me that she has a few months left. I can only assume that she doesn’t want to know. If you have any insight into what my sister and I are about to go through, I would love to hear from you