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Daughter having uterine ablation

Double Whammy's picture
Double Whammy
Posts: 2335
Joined: Jun 2010

My daughter, age 39, has almost constant bleeding or spotting throughout the month, bleeding after intercourse, and heavy bleeding and cramping when she has her period. She also has cramping throughout the month. She was going to have a hysterectomy, but was advised and agreed to an ablation instead. Lots of things factored in - mostly the time off work (loss of income) and recovery from hysterctomy. All valid. The gyn knows about my history.

I don't know much about ablation. I do know I would feel a heck of a lot better if I knew whether the tissue removed is sent to pathology or not. Does anyone know? She's had some kind of a biopsy but she doesn't know what.

I do intend to help her prepare a list of questions. The surgery hasn't been scheduled and won't be until after the first of the year.

Suzanne

kkstef's picture
kkstef
Posts: 706
Joined: May 2008

Suzanne, It is my understanding that ALL tissue removed during surgery is examined. She definitely needs to know about the results of the biopsy.

Is robot surgery an option for her re: a hysterectomy? That would greatly reduce her recovery period I would think.

She is lucky to have you advising her on questions to ask.

Best to you and your daughter!

Karen

soromer
Posts: 130
Joined: Mar 2011

I hope that she comes through the procedure easily, and that there is no malignancy found.

However--given the possibility that there might be, and the difficulty of undoing certain choices, I hope that your daughter is also able to insist upon some tissue assay process, in case of a cancer finding, to test her own tumor cells for responsiveness to certain treatments. That's the one major regret I have about my treatment choices to date.

I send you my fervent hopes that she will not need to pursue anything like that.

soromer

artist49
Posts: 57
Joined: Oct 2011

Warning about uterine ablation! Read what happened to me! July 09-had abnormal bleeding,
D&C performed in hospital-no abnormal cells found. August 09- had uterine ablation to end
bleeding problems. Was told by ob-gyn that since I no longer had an endometrium,I could
not get endometrial cancer.Fast forward to August 10-diagnosed with stage 4B grade 3
uterine papillary serous carcinoma! I should have had a hysterectomy which would have spared me all this misery. My surgeon at Sloan says that they missed something.

laura25's picture
laura25
Posts: 160
Joined: Mar 2011

I had fibroids that were getting bigger... my periods were becoming very heavy and I also had bleeding after intercourse. I spoke to my Dr and he suggested a thermal abalation bc the recovery would be better and less invasive than a hysterectomy. Sounded great to me! I was 44, have children, no family history of cancer, very thin and fit (ran 2 miles every day). He did an endometrial biopsy which came back clean. (the dr takes a pipette and punches a small hole in the uterus to collect a tissue sample) Had the procedure and 6 months later I started bleeding again. Went to another doctor to have the partial hysterectomy done and since I had the abalation, there was no way to test me again for endometrial cancer. After the operation, the lab called my doctor with the shocking news endometrial adenocarincoma, grade 3! Went back into the operating room and my doctor discovered the cancer had spread to a pelvic lymph node. Stage 3C.... I asked how this could happen after I was tested before the ablation! I never got a direct anwser, maybe he grabbed a sample from a part of the uterus not infected, maybe he didn't grab enough tissue, maybe I should have gotten a D&C.. maybe maybe maybe... if I had to do it over again I would have had the hysterectomy.

Chickadee1955's picture
Chickadee1955
Posts: 333
Joined: Apr 2010

Suzanne,

I'm sure the tissue will be tested. You can't get a wart removed without a lab report!
My best to you and your daughter. I know how worrisome it is when one of your babies is facing something and, particularly, when you can't help but think about your history.

Take care, thinking of you.

Chickadee

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