Oct 27, 2011 - 1:15 pm
Well, I guess it is better to see the group get bigger than to get smaller. Add me to the list. First of all, this is an excellent and supportive site. Glad I found all of you. Thanks...I thought I had a kidney stone in march. Tremendous pain and hematuria both in one night. But no. Cat scan showed stage 3 tumor. Had an incisional nephrectomy a couple days later. I have dealt with it fine. Also had a quick recovery. I'm a physical therapist. Wife and daughter are nurses. I'm sure that helped alot. Exercising, jogging and golfing in a month. Blew all my doctors away. My surgeon told me that," For the rest of my life, I will never forget how well you did." A month later had a negative pet scan. But 2 weeks ago, a follow up cat scan revealed mets to lungs and lymph nodes. Was never on any meds... So tomorrow I will see a different oncologist and then another next week. I will be pushing for Interleukin 2. I think I am an ideal candidate. I hope they agree. I'm in central connecticut and Il-2 is only done at Yale New Haven or in Boston. I did go to a consult at Dana Farber back in April and am not enthused about going back. They discussed a clinical trial of pazobanib and wanted the pet scan. Then they NEVER called me back. I had to get the results from my local oncologist. Weird... Funny thing is that I feel great! I weight train 4-6 x week. I jog 3 miles every other day and have been doing so for years. I'll see how my consults go. By the way, I'm 59.