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CA125 38

willbesurvivor's picture
willbesurvivor
Posts: 50
Joined: Jan 2011

Hi everyone,

Has anyone had a spike in their CA125 to 38 and had a clean PET scan before? Is it possible that the spike is from something other than the cancer considering how close it is to the normal range? or has anyone had a general spike of 15 points and it been ok?

Thank you in advance for your responses

Tali

Kaleena's picture
Kaleena
Posts: 1057
Joined: Nov 2009

Tali, my CA 125 was never a part of my diagnosis. However, from what I hear, raises in CA125 can be caused by inflammation. Given that the norm of CA 125 is 35 it could be just some inflammation. My highest CA 125 was 21 and my lowest was 1 and it fluctuated between those numbers.

Of course, if you have any concerns whatsoever, I would call your doctors office and discuss it with them.

My best to you,

Kathy

willbesurvivor's picture
willbesurvivor
Posts: 50
Joined: Jan 2011

Thanks Karleena,

Mum did go to the doctors about an upset stomach and they said she had inflammation of the stomach so it could be that?

Kaleena's picture
Kaleena
Posts: 1057
Joined: Nov 2009

Most definitely. If they said inflammation, then that could be it. Once your mom's stomach issues have subsided, have her take another CA125. There should be a drop.

I have been having some stomach issues also, but I recently had a CT scan which was good.

My best to you and your mom.

Kathy

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I had a clear CT/PET scan and a CA125 that fluctuated between 40 and 45 for weeks when I was declared back in remission in early 2010. My gyne-onc said that the 40's may be my 'natural' CA125, as most of us never have a baseline CA125 taken BEFORE we are diagnosed. Try not to worry. If it makes you feel any better, my CA125 is 2,632, down from an horrifying 11,451 in August, and has been in the 'thousands' for over 6 months. And I'm still alive and kicking. It's just a number. (((((hugs))))

Susan53's picture
Susan53
Posts: 177
Joined: Jun 2011

Linda you are so positive you are an inspiration to to all of us. Thank you for being you. Sharon

norma2's picture
norma2
Posts: 486
Joined: Aug 2009

Several months ago after a year and a half of a steady CA 125 in the teens mine jumped to 40. YIkes!!! scare me a lot. Turns out MD Anderson had changed the testing that they used. Don't ask me to get technical I don't even begin to pretend that I know everything about the tests. My doctor said what do you want to do. I said lets do a CAT Scan and see what is going on. Clean CAT scan and physical. Waited three more months and CA 125 was still 40. So we are monitoring it. I stopped letting it worry me. I feel fine. Next test will be in Nov.

I hope your mind will be at ease. Like Linda said it is just a number.

willbesurvivor's picture
willbesurvivor
Posts: 50
Joined: Jan 2011

Thank you Norma and Linda,

I am sure the scan will come back clean as 38 is still a low number. The CA125 test is very confusing as mum's number was 10 pre-surgery! Then 125 post and then down to 13. As you said Norma I think it is the jump that we and the doctors are concerned about.

Other than the inflammation mum feels fantastic! Riding her horse and running 6 kms (much further than I can!)

Linda your journey started off very similar to my mums - same age, stage and grading for UPSC. You are truly an inspiration for everyone on this board and we are lucky to have you.

Tali

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