Oct 16, 2011 - 10:06 am
My son 36 years of age was diagnosed with a Oligodendroglioma - Grade "2-ish", in 2006. Was asymptomatic, except for a Grand Mal Seizure, which brought him home to Strong Memorial Hospital for surgery. (He resides in Florida) Surgery went well and John recovered here for a couple of months, as he couldn't fly til intercranial pressure was of normal status. Nothing else at the time was suggested, (radiation or chemotherapy), except to be monitored every 3 months, with Tessla 3 MRI's and then every 6 months, after 1 year of being clean of tissue recurrence. It has been 5 years, and this past August was found to be "creeping" again, and advised to schedule a "debulking" resection, and biopsy before the end of this year, as tissue spreading is slow with this type of tumor. My son with this new and different report, (after 5 years of being ok and sent on his way home to live his life "free and clear",) now has this looming before him, as well as 6 weeks of radiation, following surg. We also found out this visit in August, that these BENIGN tumors, can transform themselves into malignant form. Our Neruosurgeon said, that while John has youth in his favor, these Oligos ALWAYS transform themselves with age. Understandably this was shattering, devastating to hear, and John left Rochester feeling depressed and defeated. He has since shut down, will not talk about it to me, or his live in girlfriend, who is kind and patient with him regarding serious conversation, yet wants him to open up, and address this much needed attention. The NP for the Neruosurg. has recently called and talked to John, and John asked how far he could push surgery out. She has given him December 1 as last minute time. (He started new sales job last January, and this presents alot of extra anxiety, as he never indulged this piece of medical history, and fears they'll let him go.) This has been so difficult for all of us, and want him to be as vigilant, as he can, with this "Chronic" condition. Though I get it, I understand how scary, and life impacting the whole thing is for him to have to now repeat surgery again, moving in with us, for longer that he'd like, not working, being away from his home and friends,- he needs to deal with this, providing him with hopefully years of being clean and clear again. There is too much at stake with his " back burnering". I have sent him cards, and tried to call, but he's currently not taking my calls, as I represent the looming ordeal home here, he needs to face. It frightens, and consumes my every day, wondering how this growth is moving, and at what rate, as he resists....It was left with NP that he will call her this week, and let her know.