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Agent Orange and Kidney Cancer

4330730
Posts: 2
Joined: Oct 2011

I would appreciate hearing from any Veterans who have been diagnosed with Kidney Cancer and had a kidney removed. I am trying to get the Dept of VA to admit that Vietnam Veterans had an exposure to Agent Orange which in time caused kidney cancer. Seems it is always the right kidney. This is my first post on Cancer Survivors Network - the date says December 31, 1969 5:00 pm when it is actually October 9, 2011 10:40 am! Was still a US Marine on Dec 31, 1969, and little did I know that some day I would suffer my time in the Marine Corps by losing a kidney.

keithafroehlichsr
Posts: 5
Joined: Nov 2012

Hi Pamela
The day you posted this my husband Keith (62) was diagnosed with Kidney Cancer, via an incidental finding. His DD214 places him in Vietnam 1969 -1971 and he will more than likely be "presumed exposure" as a result. Can you tell me if you used an attorney and if so can you share the contact info. He will have his right kidney removed on 1/8/13. He has it in both kidneys so he will have the 8 tumors in the left kidney removed. There are no METS we know of at this time. This is terrifying. Thank you Keith and Judy

LARRYAOVictim's picture
LARRYAOVictim
Posts: 5
Joined: Mar 2013

Keith & Judy... 

Important WHERE you  go for medical help.  Consider M D Anderson. Cancer Center Houston, TX.  THey are the most fantastic hospital I have EVER been to.  They have been removing (succeswsfully) melanomas from me for 35 yearsw as they appear.  Good news. I am on year 6 after loss of right kidney ...completely !!! enveloped.  
It can happen. Tell Keith to keep a good attitude. It is critical.  Also can contact me for whatever assistance ...

Larry

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Seems like there are too many Vets here with a similar story..  Hope your claim gets honored.  I also wish ALL Vets exposed to A.O. would be notified to be checked out..  As with any Cancer, early detection is Key to a better outcome.  This is not good.. sorry all... You served well and this is your reward.. stinks..

Good Luck and God Bless..

Ron

LARRYAOVictim's picture
LARRYAOVictim
Posts: 5
Joined: Mar 2013

Pamela.  I went into my claims very much an inexperienced, full of excitement, vet who thought all you had to do was to send in the info and it would get stamped.  I have now, 3 years later, found out what YOUO found out.  It is not enough to have a Doctor say PROBABLY or I think, it has to be an expert who will outweigh the VA witness, and the more the better. And know what they are basing the decision on and GET THAT NAILED DOWN, and also  READ THE LOSER CITATIONS. WHY DID THEY LOSE, or were NOT APPROVED?  It is good not to make the same mistake.  Don't miss a date...you are again correct.  All of your advice was correct and to the point.  I went to

VA vs (add your disease) CITATIONS and read and copied every one and analized it.  I have gone to every medical study site I can find the same way.  And I am going to submit using all of the positives I can find and distancing myself from all of the negatives.  The VA is COUNTING on the dropout rate by denial.  The longer the delay, the more time they have those coffers filled with money which they know, in some %, is going to have to be paidd out, but  "not yet".  

I ama so proud of you.  My sister did the same thing for her husband.  He was a heck of a soldier, but was not on top of anything having to do with documents, claims, but he was a heck of a sniper!

hmm362
Posts: 1
Joined: Oct 2012

Served with USMC in Vietnam 8/65 - 10/66. Helicopter squadron based north of Chu Lai and 4 months off Carrier from DaNang to Saigon.
1) 1983 Renal cell Carcinoma - Removed large tumor, full nephrectomy right kidmney, right adrenal and lymph nodes
2) 1988 same - mid abdominal - Removed tumor and lymph nodes
3) 1990 same - left adrenal gland - Removed tumor and 3/4 adrenal gland
4) 2001 same - left kidney - Removed tumor and partial nephrectomy (1/4) left kidney

I was 39 when I had my first bout with Renal Cell. There is no history of cancer in my family.

I've been lucky. my Doc (Urologist) wrote letter in support of Agent Orange Claim but claim denied.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

Wed, 10/31/2012 - 5:22pm
agent orange and kidney cancer

[This is a re-post for suz, in order to keep the subject together and not scattered across randomly named threads.]

Hi, my husband is a Marine (no such thing as an ex-Marine) and served in Vietnam from 68-72 with a year in Vietnam. Quang Tri and Dong HA, Da Nang. 9 years ago kidney cancer was found by a fluke and we were lucky. Marvin lost a kidney to cancer but it does not stop there. Since then he has developed many other health issues of which the VA claims no responsibility. I have researched every thing I can about AO and one of the things I have found was AO was mixed with jet fuel so the AO would adhere to the foliage and it also adheres to humans who walk through the foliage. Jet Fuel has a large component of Benzene. Benzene causes Liver, stomach, kidney and esophageal cancer.

We have hired an attorney and he is sure this will come through in two to five years. Also if anyone was stationed in camp LeJune you need to quickly seek out an attorney who can help you file to be part of the class action suite that is in the works.

Good luck to you
suz

heneedshelp
Posts: 1
Joined: Nov 2012

My husband, too, had his right kidney removed due to a cancerous tumor in 1990. He served in the DaNang area and the DMZ in 1967. We have filed twice and have been denied. Drinking water from streams, contaminated food, little opportunities for bathing and keeping clean, infrequent changes of clothing and the spraying of agent orange (purple, green, blue, pink?, too)etc., we believe caused the cancer.

We will now appeal, but will submit data to substantiate the claim. We now realize that we need additional outside help in spite of all the evidence that agent orange causes kidney cancer. jumpmagazine@aol.com Please write agent orange on the subject line. Thanks!

keithafroehlichsr
Posts: 5
Joined: Nov 2012

My husband Keith (62) was diagnosed with Kidney Cancer, via an incidental finding on 10/2/12. His DD214 places him in Vietnam 1969 -1971 and he will more than likely be "presumed exposure" as a result. He will have his right kidney removed on 1/8/13. He has it in both kidneys so he will have the 8 tumors in the left kidney removed. There are no METS we know of at this time. We need to file our claim for this. We had filed on ischemic heart a year ago and we have no rating as of yet...not even "0".
Thank you
Keith and Judy

LARRYAOVictim's picture
LARRYAOVictim
Posts: 5
Joined: Mar 2013

You say you have not filed for KIDNEY CANCER?  Where are you located (State)?  You are begining correctly by getting info first.  Larry

momuddog@yahoo.com
Posts: 1
Joined: Nov 2012

I had my right kidney removed and a cancer removed off the left kidney in 2006. I submitted a claim with the VA and it was denied of course. I served in Vietnam in 1970-71 with the Army. I have given up disgusted with the system like many others. I know I was exposed to agent orange because it was used to remove vegetation around Landing Zone Betty. Mike

mac1371
Posts: 1
Joined: Nov 2012

semper fi im also a former marine,im new to the boards also.sept 20 2012 is when they took out my right kidney,clear cell cancer cystues mass the size of a softball, got the pictures and a 14inch slice in my abs toboot.ispent the last mounth of67allof 68 and went to okie when they pulled out the 3rd marines in june of69 our stomping ground northern Icorps spent time at khe sanh with the26th and then spent the rest of my tours with d1/9im just starting to get back to work and im going to get in touch with the legion about where to start,what i need to file a claimif i find out any info ill try to foward it to you ill have to get my wife to type it this message is at the very end of my skills on the keyboard,i aint no pogue.if you have any info please share it jim mccabe mac1371@hotmail.com

Roggy
Posts: 10
Joined: Mar 2012

Don't over look kidney cancer and diabetes...Since diabetes affect the kidneys...That is how I got my kidney cancer approved with a rating of 60%....

sylvan75
Posts: 30
Joined: Sep 2009

would appreciate if you would email me, as I have some questions about this. I also have diabetes and at the time I filed a claim with VA had kidney cancewr, but only diabetes was recognized. My email is hsilver75@yahoo.com

willp's picture
willp
Posts: 1
Joined: Dec 2012

Assigned to Rivereens in Delta '68-'69
Prostate cancer discovered with 2005 biopsy from TURP procedure. (100% rating)
Self Catheterize ever since
Nephrectomy right side, RCC, 2/7/2006 (Not mentioned in rating decision)
Atonic bladder- Dynamic test 10/5/2011

Mushy
Posts: 1
Joined: Jan 2013

Don't know if you're still looking for feedback or not, but in September, 2010 I had surgery for kidney cancer.  I was in Vietnam from March '66 to March '67 and humped the flightline where Agent Orange was stored.

I currently recieve compensation for diabetes, but, of course, not for my kidney cancer.

Please let me know what else is needed, and if anything breaks on this subject.

 

Paul Mashburn

Harriman, TN

useridml
Posts: 1
Joined: Jan 2013

I was stationed in a defoliated rubber tree planation in Vietnam in 1970-1971. In May 1995 I had my right kidney removed due to renal cancer. The VA deined any association between my cancer and agent orange exposure. I also have pedal peripheral neuropathy, which has also been associated with agent orange.

Sharpie's picture
Sharpie
Posts: 1
Joined: Feb 2013

Here is my history with Vietnam and Agent Orange. I was at Cam Ranh Bay for all of 1968. When I returned I had problems with itches and rashes that were diagnosed as dermatitis.  I still break out from time to time, can’t explain it and the only treatment is Cetaphil.  We got married in November of 1969 and our first son was born in August of 1970.  He passed away just before his fifth birthday.  The autopsy said it was Leigh’s Disease, which is a genetic disease where the gene that feeds the brain with Thiamin is missing. I believe it had something to do with Agent Orange.  We had another son in 1974 and a daughter in 1976.  They both are Mentally Retarded.  There is no history in either family of this condition.  I believe it was Agent Orange.  Our third son has a condition where he can’t function in society.  He was born in 1978 and lives with us to this day. Some say Bipolar, I say Agent Orange.  In May of 1995 I was diagnosed with Prostate Cancer.  I had my Prostate removed surgically and have been cancer free until October of 2012.  I was in for a routine check up for the Prostate Cancer when they discovered a growth that encompassed the lower half of my right kidney.  This proved to be cancer and the right kidney was  removed.  The VA agreed that the Prostate was connected to Agent Orange exposure.  They paid me 100% disability from May of 1995 until I returned to work in August.  Then the financial compensation stopped and I have a special disability rating of less than 10%.  I haven’t filed for the Kidney Cancer yet because it is not a recognized condition for Agent Orange exposure.  I plan to in the near future.  I think vets need to file for problems whether they are already recognized or not.

rl3485
Posts: 1
Joined: Feb 2013

I lost akidney to cancer on july 2011. I was in the marine corps infantry from 1968-1969 in the dmz areawhere the agent orange as we know now was used to deforest the tripple canopy.I went to the Va this year register for any studies that they might have for cancer and agent orange. The reaason i went because i went a renuion after 45 years for the first time and they convince me to register because so many of them had heart disese , prostate and other cancers.I only relay this so they may be able to connect the kidney cancer and agent orange for others.

LARRYAOVictim's picture
LARRYAOVictim
Posts: 5
Joined: Mar 2013

My name is Larry Shelton, Service 1966-1970. Working on my AO classification. Lost Right kidney to cancer on Jan 17 2007.  No one in the family has ever had kidney problems. Interested where the data on RIGHT kidney was found... working on claim since 2009. I can be reached at 281-303-5706

LARRYAOVictim's picture
LARRYAOVictim
Posts: 5
Joined: Mar 2013

Both these are excellent recommendations to you.  I would add the following note.

The intrernet is full of studies which have SIGNIFICANT information on studies which may DIFFER GREATLY with the VA "decision" you get.  There is the report to the Secretary of the VA by his Special Assistant, Adm. Zumwalt, who pointed out the multitude of errors, intentional or accidental, in the reporting of the results of AO studies commissioned by the VA.  Research these studies, and compare the actual words, phrases used vs those reported.  The VA , in VETERANS and AGENT ORANGE, UPDATE 2010, of the 6500 studies considered, studied 1300 and only used 65 which they reviewed carefully,  and all of these were not used for evaluating every type cancer!  Thus, using the concept of preponderance of evidence, and you can submit more than they submitted, which meet the requirements set forth by the CONGRESS as to what an acceptable study must be... Reasonable and with proper protocols, repeatable, acceptable by peer review... you can put more weight on YOUR SIDE OF THE SCALE.  Then this should accompany the letters which you will seek from the physicians. Read the negatives in the VETERAN and AGENT ORANGE UPDATE 2012 or 2010 or 2008 etc.  These are online and you do not have to buy one for $175.00.  Look at the VA Form 21-0960C- ?? for the cancer you are addressing and see what they are going to be looking for in your Doctor's report of your illness.  Look at other CITATIONS  VA versus xxxxx disease.  See what won...or lost...the case.  It is reported in each case. Remember, the past is the key to the future. 

I was woefully naive with my FIRST submission, and gave the VA just the information they asked me to give them.  And I got an F- for my work!!  And then I started to study what was needed.  

LarryAO Victim

Kearney1441
Posts: 3
Joined: May 2013

I first filed a claim in 2009 and was denied.  I'm trying to gather more convincing evidence.  Good luck to all of you that have suffered such a terrible experience.

thewesselskids
Posts: 1
Joined: Jun 2012

Husband going in on 16th of August, 2013 to have left kidney removed........he gets disability already for Diebetis II, we were told by the VA that it covers that.....he has lots of health issues becauseof Agent Orange. we are going in tomorrow to try and get his 70% raised to 100%......am learning though that some people are saying it wont pay for that...that seems rediculous to us!!!!!!  So, if you have type II diebetis, apply under that.

..

judyy69
Posts: 1
Joined: Aug 2013

My husband serviced in the Marines in Vietnam from 1967 to 1969 an just diagnosed with renal cell carcinoma . He went for a mri and they found a mass in the chest and  the kidney 8cm and told us it had been there since 2007 and at that time it was only 2.5 cm. Back in 2007 they were trying to do a biopsy on a thyroid mass and couldnt do so sent to a specialist locally an he ordered another test when he couldnt get the biopsy either. He fell through the crack. So instead of following up in 2007 it was a mass of only 2.5 now he is going to have a radical nephrectomy. First they want to make sure the cancer didnt metastasis. Thank God in 1997 I had breast cancer so I know what we have to look forward through so with prayers love hope faith and courage we will survive.

alan01
Posts: 3
Joined: Aug 2013

I agree the V.a system hates to give Nam Veterans what is coming to them I have been fighting with them for well over six years for my cancer   and they say "Oh it can't be proved is service related".

I have Kidney cancer my second round with the beast and my right kidney was removed due to a 6cm tumor in 2003 after chemo and in 2007 they said it went into remission ( I dont know if i beleive that now) non V.a hospital at that time.

In june 2013 it came back i now have a 4cm tumor in my left kidney and in chemo once again my doctors say in no doubt it was the work of exposure to agent orange but the V.a has blinders on and dont want to hear it  as it seems....  and this time "IT" really has me scared due to my age    66

Was In-country "Nam" from 68 to 69 then late 69 to 70 I do frimly beleive all Nam vets should be getting disabilty in one form or another.

And I am sorry for all you that has losted loved ones anyone who would like to chat please feel free to do so I would welcome it.

Owl01@inbox.com

 

MDCinSC's picture
MDCinSC
Posts: 574
Joined: Feb 2013

We remind them of something they want to forget.  I fear Iraqi vets will face the same IF the VA lasts that long.

Good luck on your battle bro. We're the same age!

I dodged the bullet a little longer than you!

elpasorudy's picture
elpasorudy
Posts: 81
Joined: Jan 2013

I am a Vietnam vet - served in the Cu Chi area with ARVN in 1971. Region was heavily sprayed with Agent Orange. In 2005, I was diagnosed with prostate cancer and underwent surgery three month later. Received disability because prostate cancer is on VA list of illnesses caused by Agent Orange. I recently received a diagnosis of probable kidney cancer. I have a 2.5 centimeter mass on my right kidney. A partial nephrectomy is planned. There is at least one study which says Agent Orange exposure to kidney cancer. My recommendation is to lobby your senators and members of the House for prompt VA action. It's frustrating how slow the VA moves on these issues.

sgtbass47
Posts: 1
Joined: Aug 2013

I SERVED 11 MONTHS IN VIETNAM. IN NOV. 2011 A CT SCAN REVEALED I HAD A BIG CANCER IN LEFT KIDNEY. JAN. 2012  MY LEFT KIDNEY AND ADRENAL GLAND WAS REMOVED.

bever1's picture
bever1
Posts: 2
Joined: Dec 2013

My husband was diagnosed with Renal Cell Cancer in September 1998, having his left kidney removed. He too served in Viet Nam 67-68. A claim was filed because his Urologist believed Agent Orange caused his Cancer.....of course his claim was denied.  He remained Cancer Free or in Remission for 15 years. 

 In 2011, he was told he had Type 2 Diabetes, A VA claim was filed and accepted, he managed his Diabetes with oral medication and diet as well he began losing weight.  Over time, he was unable to manage blood sugar, thus, his Doctor wanted him to begin Insulin which he did.  Even with 2 types of insulin blood sugar was not stable.  A CT was order, Cancer was discovered in his Spleen and Pancreas.  March 2013 he was hospitalized for 2 bouts of Interluken II, he had issues and could tolerate 8 sessions vs the normal 24.  In April his Spleen, Gall Bladder and the tail of his Pancreas were removed....again Renal Cell Cancer was the cause. 

Mid summer 2013, once he experienced issues with stable blood sugar, plus he was contracted Hep.A, For Hep A, he was seeing a Dr who specalized in Liver Diease, as well as and Endocronolgist to help with his Diabetes.  The Liver Dr ordered an Endoscopy Ultra Sound....he had the test this Past Turesday....LIver at this time is ok, however, Renal Cell was found in the neck of his Pancreas and also in the Duedodumn where it intersects with his Pancreas.  We've not met with his Oncologist yet, hopefully an appointment will be scheduled this coming week

We are in the process of reopening the original claim, doing research and we are going to work with our Vermont Senator; Bernie Sanders office.  In addition to our battle with Cancer we are going to battle with the VA.  Both are and will be long and emotional ...we are in it to win it.     Bever;y

icemantoo's picture
icemantoo
Posts: 1654
Joined: Jan 2010

Many of us have had RCC with no AO connection. I think that to prove this connection you need a randomly selected group of vets (over 1000) and compare their incidence of RCC with the general population of the same age.  I beleive at least the VA would have the information to do such a study.

 

Icemantoo

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Ice Guy.. Read the above and some people have already received VA benefits for RCC.

Txgrl
Posts: 24
Joined: Apr 2014

My dad was in the Navy 65-69. He lost a kidney in 1990. Now it has came back 23 years later.

Larry Dabb
Posts: 1
Joined: Aug 2014

I was diagnosed in Dec 2013 that I had cancer in my right kidney. Had kidney removed as cancer was contained inside of kidney. I'm service connected with type 2 diabetes. Have just filed claim with VA for renal cancer. I was in country Aug 65 - July 66. Hopefully VA will approve only time will tell. If nothing else its on the record. 

vfwjmartin
Posts: 4
Joined: Aug 2014

Sorry Larry I hope you have luck with it but I dont think you will. I HAVE TRIED FOR 15 YEARS AND STILL DENIED. LAST REQUEST

was aug 2013. just recieved my denial 2 days ago. Good Luck.

vfwjmartin
Posts: 4
Joined: Aug 2014

    I am a cancer surviver x 15 years. I lost  my Right Kidney in april 1998, then ten years later I lost my left kidney

in april 2008. Both times I filed and was denied, there reason was that the Kidney is not part of the Renal track.???????

REALLY????????. I was on Dialisis for about a year. Then my youngest Daughter gave me one of her Kidneys, and we just

celebrated our five year aniversary. I am not sure what is going on with the VA and the denial of all the veterans that have

had  Kidney cancer. If anyone Knows of a class action law suit. that is on going or getting started, I am all in. please contact

me.(VFWJMARTIN@hotmail.com)

txbarton's picture
txbarton
Posts: 85
Joined: Aug 2009

This person fought a long battle but VA finally gave him service connection for his kidney cancer. 

http://www.va.gov/vetapp05/files2/0509244.txt

I intend to include this decision when I file with VA. 

 

bearpawrie
Posts: 1
Joined: Oct 2014

I have a heariang this coming Friday (10/24/2014)  before the Law Judge.  My husband died of RCC back in 2008 and I have been fighting with the VA ever since.  I have printed out this decision and will present it at the hearing.  He had diabetes for years.  My argument is that the Diabetes contributed to his RCC.  The last appeal was denied because they stated that Hypertension was not due to Agent Orange exposure.  I NEVER brought this up at the original hearing nor did I ever mention his hypertension in any of the forms filed since the start in 2008.  Wish me luck

megarounder
Posts: 3
Joined: Oct 2014

Hi 

If you checked the new treatments for treating kidney cancer disease using a new molecular therapy that uses targeted peptides and proteins to restore cellular function.Its getting very popular and the success rate is very high.My relative tried it very recently and its giving faster recovery.

If you dont know much about it then i will recommend to do a Google search for the term "Peptide treatment", or the company named "Regenerative Cellular Therapy".Its a very innovative contribution and not too expensive.The best thing is that the results are very good.Thank you

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