Oct 07, 2011 - 5:40 pm
My husband had a tumor near his liver and kidney.. they removed it back in june.. they said it was not cancer but my husband satrted feeling so much better. No more night sweats, throwing up, or abdominal pain. 5 weeks post surgery he started getting all the symptoms again. He went back into see the surgeon and they ordered another CT.. within 6 weeks post surgery, he developed another tumor in the same region, this time against the vena cava. This tumor was quadruple the size of the last one. He was referred to San Antonio to a speciaty surgeon and when reviewed past scans, surgery and biopsies on last tumor and scan of current tumor he decided my husband needed to be referred to an oncologist. We met with the oncologist that diagonsed him with paraganglioma and it being cancer.. they have never done any scans of his head nor chest so this next week he is having a full body CT and meeting with a genetic counselor to be tested. He also has to have a MIBG scan.. the doctor told him there was no chemo nor radiation to cure this type of cancer only surgery and it was major. From reading previous post I am more confused then ever.. and scared!! Can someone please give me a little more info on what to expect? We have children as well.. thank you!!