Oct 07, 2011 - 3:58 pm
Had an appointment with Medical Oncologist and Surgeon yesterday, Medical Oncologist was 2 hours late for appt.During this period the nurse came in from the T Surgeon Office and indicated That my husband will not require an appointment with him at this time. I started to panic and starting thinking stage 4. Finally Oncologist graced us with her presence andstated that my husband was stage t3n1 m0. Tumor has grown outside of the esophageal wall, there is activity with 2 lymph nodes a hillar and cannot remember name of second kind. The Oncologist indicated that the surgery is nasty. She has patients who have under gone the surgery and the cancer has comeback. My husband had decided before we went to the his appointment that he would not elect to have the surgery anyway. I ask Ms. Oncologist about a MIE surgery, she said no we do not offer that surgery here. So on the 17th my husband will start Chemo treatments of Cisplatin/ Paclitaxel/ Cetumimab once a week and radiation 5 times a week. The Cetuximab will enable the Doctors to give higher does of Chemo and Radiation. Absolutely no feeding tube unless really needed. Husband has gained 12 pounds since 1.5 months ago 145 to 157. I disagree I do not want to see him wither away again. The doctors call the use of surgery in my husband case “salvage” …..last resort. I thought if one waited to long after radiation too much scar tissue would hinder surgery?
My husband will not research, I have provided him with a lot of information and with the most positive info I could find which was hard to do. He quit reading and said “I do not want to know any more it is too depressing” “I’ll do what the Doctors recommend.” I want them to give all I can take to get rid of this excluding surgery
Ha anyone taken or had experience with this cocktail of drugs and radiation combo. If so were the side effects real bad. I am really nervous.
Roller coaster ride from hell has began!