Xeloda update

Gabe N Abby Mom
Gabe N Abby Mom Member Posts: 2,413
in Breast Cancer #1
I've been doing the Xeloda for a week and half now, and so far so good. I've had some tummy issues, mostly it feels like heartburn but lower. And also some leg cramps...that might be a need for more calcium...I'm avoiding dairy to try and minimize tummy issues. So I'll talk with my onc on that when I see him next week.

The only other news is that my onc says my cancer markers are normal. So that means we'll have to use CT scans to track any progression, and to confirm the effectiveness of the xeloda. The bad news here is that CT scans are less frequent than blood draws, so I won't get updates as often as I would like. The good news is that I'll get more information with CT scans.

Hugs,

Linda

Comments

  • MAJW
    MAJW Member Posts: 2,510 Member
    #2
    Xeloda...
    Linda,

    I've been on Xeloda for about two months now and so far so good, too! I took it 5 days a week in addition to rads 5 days a week.....I finished rads 3 weeks ago.....I now am on an upped dosage... 3000 per day..1500 in the AM and 1500 in the PM...I take it for 7 days and off 7 days...I will do this for 8 weeks then have all the scans to see if it's working. ...I know the two clavicle nodes have shrunk but have no idea of the other nodes that are affected....until the scans are done...keeping my fingers crossed...for you, too! Oral chemo is sooooo much easier then the IV chemo....

    Let's pray this is our " magic bullet" that keeps the beast in check....
    My best to you, keep us posted....there are a few of us on Xeloda...
    Hugs, Nancy
  • dbhadra
    dbhadra Member Posts: 344 Member
    #3
    MAJW said:

    Xeloda...
    Linda,

    I've been on Xeloda for about two months now and so far so good, too! I took it 5 days a week in addition to rads 5 days a week.....I finished rads 3 weeks ago.....I now am on an upped dosage... 3000 per day..1500 in the AM and 1500 in the PM...I take it for 7 days and off 7 days...I will do this for 8 weeks then have all the scans to see if it's working. ...I know the two clavicle nodes have shrunk but have no idea of the other nodes that are affected....until the scans are done...keeping my fingers crossed...for you, too! Oral chemo is sooooo much easier then the IV chemo....

    Let's pray this is our " magic bullet" that keeps the beast in check....
    My best to you, keep us posted....there are a few of us on Xeloda...
    Hugs, Nancy

    here in the Xeloda club as well...
    I am just finishing the first week of my four months post radiation on Xeloda...like you, Nancy, 1500 morning, 1500 night, one week on and one week off. So far no SEs.

    I get a ultrasound chest scan Dec 29, and then a PET scan three months after that. So we will finally find out if all this chemo is working. Keeping fingers crossed for all of us!

    I also started Tamoxifen one week back...had my first hot flash this morning...other than that no SEs so far from that either.

    Yes, oral chemo is much easier, agree!

    Linda, have you checked out www.ibcsupport.org? It's a really active group for IBC.

    Laura
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #4
    dbhadra said:

    here in the Xeloda club as well...
    I am just finishing the first week of my four months post radiation on Xeloda...like you, Nancy, 1500 morning, 1500 night, one week on and one week off. So far no SEs.

    I get a ultrasound chest scan Dec 29, and then a PET scan three months after that. So we will finally find out if all this chemo is working. Keeping fingers crossed for all of us!

    I also started Tamoxifen one week back...had my first hot flash this morning...other than that no SEs so far from that either.

    Yes, oral chemo is much easier, agree!

    Linda, have you checked out www.ibcsupport.org? It's a really active group for IBC.

    Laura

    Nancy, Linda and Laura, I
    Nancy, Linda and Laura, I just wanted to say that I am praying for you guys. Hope the xeloda works for you all. (((Hugs))) and love, Eileen
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    #5
    CypressCynthia said:

    Nancy, Linda and Laura, I
    Nancy, Linda and Laura, I just wanted to say that I am praying for you guys. Hope the xeloda works for you all. (((Hugs))) and love, Eileen

    Just like Eileen...
    ... Am HOPING for successful treatment, for all of you here.

    Kind regards, Susan
  • Cinkal
    Cinkal Member Posts: 161
    #6
    I hope the treatment goes
    I hope the treatment goes well for you with little side effects. Hang in there.

    Prayers and Hugs!
  • New Flower
    New Flower Member Posts: 4,294
    #7
    dbhadra said:

    here in the Xeloda club as well...
    I am just finishing the first week of my four months post radiation on Xeloda...like you, Nancy, 1500 morning, 1500 night, one week on and one week off. So far no SEs.

    I get a ultrasound chest scan Dec 29, and then a PET scan three months after that. So we will finally find out if all this chemo is working. Keeping fingers crossed for all of us!

    I also started Tamoxifen one week back...had my first hot flash this morning...other than that no SEs so far from that either.

    Yes, oral chemo is much easier, agree!

    Linda, have you checked out www.ibcsupport.org? It's a really active group for IBC.

    Laura

    Linda, Nancy, and Laura
    Wishing the pill is doing the job, gives you minimal side effects, and very efficacious.
    Hugs

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