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Looking for advice

LeB
Posts: 1
Joined: Sep 2011

Long story short, I have recently had a mass removed from my shoulder which was then confirmed as DFPS. My journey to here began eleven years ago when a military Dr took a sample of the mass and sent it away for pathology. The results of that were lost somehow. Eleven years later I was in for an un-related surgery when the surgeon noted the mass and scheduled my for another surgery to remove it right away.

When he received the pathology on it he was surprised due to the rareness of this. He did tell me that it was all removed with good margins (minimum is 0.5mm however) and that I should not worry and just have my wife check the area for the next two years to make sure there is no recurrence. A GP seemed more concerned and is removing another small mass from my right forearm tomorrow.

There has never been a mention of radiation or an appointment with an oncologist. So, I am wondering if anyone has any advice...should I try to push the issue to see an oncologist, or am I over-reacting? Sorry for the long post, but it does feel good to just talk. Thank you in advance for any thoughts anyone may have.

Scuba
Posts: 4
Joined: Sep 2011

While I am a colon cancer survivor, and am on the sarcoma discussion board regarding a friend, I can tell you from my experience, be proactive. You are never over-reacting when it comes to health. Collect your medical records (i.e., path report, surgery report, doctors notes, hospital intake and discharge) and just go and see an oncologist and have them review it. Better safe than sorry. Let the "expert" make the decision. A second opinion saved my life.

Scuba
Posts: 4
Joined: Sep 2011

While I am a colon cancer survivor, and am on the sarcoma discussion board regarding a friend, I can tell you from my experience, be proactive. You are never over-reacting when it comes to health. Collect your medical records (i.e., path report, surgery report, doctors notes, hospital intake and discharge) and just go and see an oncologist and have them review it. Better safe than sorry. Let the "expert" make the decision. A second opinion saved my life.

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