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Long term prognosis for malignant convexity meningiomas?
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Sep 22, 2011 - 9:34 pm
Hi all Docs are confident they got it all but the brain surface was reddish and they said this might mean some malignant cells remained. She has just fininshed 6 weeks of radiation and is diong perfectly but will need follow up MRIs for what sounds like the rest of her life? While she is happy to talk about the mechanics of what she has been through (she is a med student), I do not want to discuss with the long term prognosis and life expectancy etc with her. I have read a 1997 paper that focuses on the very topic but the conclusions look quite negative regarding re-occurence and long-term survival rates. Can somebody please direct me to a more current research or inform me of what she can realistically expect in the future? Thank you |
Joined: Sep 2011
- nil response confirms this I guess
Joined: Mar 2011
I have multiple mengingiomas throughout my skull: skull base, optic nerve, optic nerve chiasm, eustacian tubes, 2 of the 4 sinus cavities, carotid artery and they are fused into the jaw bones in my face.
As far as meningiomas go, they are considered the "best" tumor to get if you have a brain tumor. Meningiomas typically take 20 years to grow and show symptoms
That said, I was diagnosed at the age of 32. I had an 18 hour brain surgery that included the skull base, optic nerve and my sinuses. I also had 2 sinus surgeries and IMRT radiation therapy (30 sessions). It is now 15 years post-radiation, 17 years post-brain surgery and I have been told that the tumors are back. Back in the same areas where I had surgery and close to the area where I had radiation.
MRI's and CT Scans are a way of life with meningiomas. I was actually at the once every 5 year mark for MRI's and they found new tumor growth.