Buzz's cancer is back. What to do?
Comments
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trials
Karen,
I am so sorry and I also know exactly how you feel. My husband's situation is quite similar.
I am in the process of searching for a clinical trial in case my husband's latest treatment is not effective. He was actually accepted into a trial and the day he was supposed to begin the trial was halted nationwide.
Anyhow, I would suggest you go to three different sites. You can enter his information yourself or talk to a representative by phone. I have done it both ways. After you supply his criteria, you will get a list of trials emailed to you. At that point, our oncologist has offered to help us weed through them.
American Cancer Society
Clinical Connection
National Cancer Institute
They will ask for details about his diagnosis, his treatment, and can search by mileage from your zip code.
Trials range from Phase 1 to Phase 4 and it is explained in detail what that means on each site.
Please feel free to pm me or call me (334) 546-0200
My sincere best wishes,
Robin0 -
I am so sorry.... I surerobinleigh said:trials
Karen,
I am so sorry and I also know exactly how you feel. My husband's situation is quite similar.
I am in the process of searching for a clinical trial in case my husband's latest treatment is not effective. He was actually accepted into a trial and the day he was supposed to begin the trial was halted nationwide.
Anyhow, I would suggest you go to three different sites. You can enter his information yourself or talk to a representative by phone. I have done it both ways. After you supply his criteria, you will get a list of trials emailed to you. At that point, our oncologist has offered to help us weed through them.
American Cancer Society
Clinical Connection
National Cancer Institute
They will ask for details about his diagnosis, his treatment, and can search by mileage from your zip code.
Trials range from Phase 1 to Phase 4 and it is explained in detail what that means on each site.
Please feel free to pm me or call me (334) 546-0200
My sincere best wishes,
Robin
I am so sorry.... I sure hope you all find some clinical trials. Looks like Robin has a good starting point for you.. Please get some rest, as a caretaker I know how this can zap ones energy. Sending hugs and prayers your way. Just a thought, look into the robotic surgery. I know my husbads ENT is the only doctor in Houston besides MD Anderson that can do it. We really like his ENT. By the way, his name is Dr. Ronald Karni at Memeorial Hermann downton medical center. Just in case you live near Houston. Again, I will be praying for a good outcome. We are still waiting for our biopsy results. Always a scary time...0 -
Argggghhh
So sorrry to hear about this news.
The FDA requires all clinical trials to be posted on www.clinicaltrials.gov Lots of clinical trials and easy to navigate. You can sort by location/disease and status of the clinical trial.
Thoughts and prayers are with you!!
Chris0 -
Karen,CLRRN said:Argggghhh
So sorrry to hear about this news.
The FDA requires all clinical trials to be posted on www.clinicaltrials.gov Lots of clinical trials and easy to navigate. You can sort by location/disease and status of the clinical trial.
Thoughts and prayers are with you!!
Chris
I am facing same
Karen,
I am facing same situation with my mother. Her cancer "returned" only 3 months after treatment.
Have you contacted Sloan Kettering? They are spoken very highly of, and I know they treated Michael Douglass' stage 4 cancer. Also MD Anderson may have some clinical trials available.
I will be praying for you both. Don't give up.0 -
Clinical trailstesa said:Karen,
I am facing same
Karen,
I am facing same situation with my mother. Her cancer "returned" only 3 months after treatment.
Have you contacted Sloan Kettering? They are spoken very highly of, and I know they treated Michael Douglass' stage 4 cancer. Also MD Anderson may have some clinical trials available.
I will be praying for you both. Don't give up.
Thanks for the response and support where everyone knows what it is like to deal with cancer. I went to clinicaltrials.gov and found 3 places to go: Houston (MD Anderson), Denver (University of Colorado), and Phoenix (Mayo Clinic). Denver seems to have the most studies going on. Phoenix would be our first pick because we have family there. Buzz was also seen at Mayo's in Phoenix last year. The mass in his neck has grown in the past few days. Pretty scary stuff. Karen0 -
Karen & Buzzbuzz99 said:Clinical trails
Thanks for the response and support where everyone knows what it is like to deal with cancer. I went to clinicaltrials.gov and found 3 places to go: Houston (MD Anderson), Denver (University of Colorado), and Phoenix (Mayo Clinic). Denver seems to have the most studies going on. Phoenix would be our first pick because we have family there. Buzz was also seen at Mayo's in Phoenix last year. The mass in his neck has grown in the past few days. Pretty scary stuff. Karen
Thinking of you both and sending prayers at this very stressful time. I am sorry you are going through this again.0 -
Karen & Buzz, so sorry yousweetblood22 said:Karen & Buzz
Thinking of you both and sending prayers at this very stressful time. I am sorry you are going through this again.
Karen & Buzz, so sorry you are going through this. Hope you find a trial to help with this asap. My thoughts are with you both. Cheers.
Jimbo0 -
Karen
My husband was treated by Antonio Jimeno and Changhu Chen at University of Colorado Hospital in Colorado. Both of those doctors, as well as Dr. Song, the ENT, are very involved in clinical trials and in research for HNC. I cannot recommend them highly enough. Please read our story on the University of Colorado Cancer Center blog, and please feel free to contact me if you have any questions. UCH is great.
Myka Landry
mykalandry@gmail.com0 -
Karen, I am very sorry to
Karen, I am very sorry to here this bad news. It is just not fair when a person goes through treatment and then finds out they have to start over. I pray God will give you and Buzz the strength to get through this. Connie lymph nodes were swelling out of control also and I was trying to get her into treatment but it can be a helpless feeling. I really don't have any words that could comfort you except to say I will keep you both in my prayers, Homer & Connie0 -
Bleep
Very sorry to read your scary news. I'm asking that you all get paired up with a new medical team quickly. Is the spread a lymph node, or something else? I know his nodes are gone on the right side. By "treatable", are they recommending chemo to beat it down, followed by surgery? Hoping for positive news.0 -
Hi Karen
Sorry to hear the beast is back but don’t give up, as you know I have seen this monster three times and with God’s help beat it all three times. MY two favorite places are the Mayo Clinic in Phoenix and MD Anderson in Houston. Call and ask them about their clinical trials and about being radiated twice, I was radiated twice to the same area because of something to do with my bone mass in my face, maybe they can check Buzz for this.
Wishing you well and keeping you both in my prayers.
Hondo0 -
SorryHondo said:Hi Karen
Sorry to hear the beast is back but don’t give up, as you know I have seen this monster three times and with God’s help beat it all three times. MY two favorite places are the Mayo Clinic in Phoenix and MD Anderson in Houston. Call and ask them about their clinical trials and about being radiated twice, I was radiated twice to the same area because of something to do with my bone mass in my face, maybe they can check Buzz for this.
Wishing you well and keeping you both in my prayers.
Hondo
Karen & Buzz,
So sorry to hear this. No tips on trials, but definitely you guys are in my thoughts. From all your posts Buzz always seems like a toughie. He'll beat this too. Sending postitive thoughts and mojo your way!
Greg0 -
Yes, sorry-Greg53 said:Sorry
Karen & Buzz,
So sorry to hear this. No tips on trials, but definitely you guys are in my thoughts. From all your posts Buzz always seems like a toughie. He'll beat this too. Sending postitive thoughts and mojo your way!
Greg
to hear of this. If more surgery is not an option, I hope and Pray Buzz can get into a trial at one of the forementioned centers. The both of you are in my Prayers.
Believe
kcass0 -
clinical trialsKent Cass said:Yes, sorry-
to hear of this. If more surgery is not an option, I hope and Pray Buzz can get into a trial at one of the forementioned centers. The both of you are in my Prayers.
Believe
kcass
Would still recommend checking several search sites because I did find many different ones on each site. It was very interesting that I got so many different results when they probably should be all listed in one search. I am working on narrowing them down but, my oncologist is very willing to help me because it is a daunting task.
Of course, if you visit a certain cancer center, remember that they are recruiting for their trials. An objective source is important.
I hope that your research leads you to what is best. I am in that same position, so I know how time consuming it is. Besides, we are still trying to care for our husbands while leading their way to the best treatment options.
Best wishes,
Robinleigh0 -
STAY STRONG
Karen, sorry to hear of this situation. I cannot offer any suggestions on a trial, but allot of prayers and positive thoughts from my family to yours.
Mike0 -
Thinking of you bothluv4lacrosse said:STAY STRONG
Karen, sorry to hear of this situation. I cannot offer any suggestions on a trial, but allot of prayers and positive thoughts from my family to yours.
Mike
Take care...0
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