Just Diagnosed with Breast Cancer:-(

patacz
patacz Member Posts: 64
I am a colorectal cancer survivor and now I had just been diagnosed with breast cancer, so I am on this forum now. I have already lost two aunts and two cousins to breast cancer, and one aunt and my younger sister are also being treated for this. So, I decided for mastectomy because I understand my genes put me at greater risk, even though I have none on my left breast at this time. However, I am terrified of the surgery and hope to get advise from those who suffered throught this or know someone who does. In addition, I want to relax, but I am single and out of work, which means I won't be able to look for a job until this is done. Thank you and God Bless you!
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Comments

  • Alexis F
    Alexis F Member Posts: 3,598
    Hi Patacz! I am so sorry
    Hi Patacz! I am so sorry that you now have breast cancer, but, I hope that you will find the support and encouragement that you need here. This is a great group of pink sisters!


    I had a lumpectomy, followed by rads, so, I can't offer any info on a mastectomy. I know the other sisters will though.


    Good luck to you and know that you will be in my prayers.


    Hugs, Lex
  • camul
    camul Member Posts: 2,537
    I have had a mastectomy and
    I have had a mastectomy and the surgery was not as bad as the anticipation leading up to it. I came home with the drain tubes, but that only lasted a week. I pretty much followed the surgeons instructions and had no problems with the surgery. For me the hardest part was the unknown, and I didn't know about this site when I had it.

    You have come to a great site for support and information. The women on here have been amazing. If you look through the recent previous posts, there was someone else asking almost the exact same questions, maybe some of the responses will also help!

    Good luck with your surgery, and welcome!
  • Marcia527
    Marcia527 Member Posts: 2,729
    I had a right modified
    I had a right modified radical mastectomy. I was a stage 3a in 2003. This was my first major surgery (not counting biopsy). I handled it well. If I who am a chicken can do it, you can. Just follow the surgeons orders. Ask for exercises and when you should start them. I have a husband that could have helped but he made me nervous. I took care of myself. If you don't have any friends/relatives that can help I'd stock up on groceries. Things like frozen dinners that you just microwave. It's too bad anyone has to go through this, let alone a second cancer. Good luck and don't worry. If you have more questions, just ask. Hugs.
  • susie09
    susie09 Member Posts: 2,930
    camul said:

    I have had a mastectomy and
    I have had a mastectomy and the surgery was not as bad as the anticipation leading up to it. I came home with the drain tubes, but that only lasted a week. I pretty much followed the surgeons instructions and had no problems with the surgery. For me the hardest part was the unknown, and I didn't know about this site when I had it.

    You have come to a great site for support and information. The women on here have been amazing. If you look through the recent previous posts, there was someone else asking almost the exact same questions, maybe some of the responses will also help!

    Good luck with your surgery, and welcome!

    Try to just focus on your
    Try to just focus on your surgery and recovering. There is a wealth of information here and we are all here for you!


    Best of luck with your surgery!
  • grams2jc
    grams2jc Member Posts: 756
    Sorry you have to be here.
    You are getting some great advice. You really will want to stock up on food and movies and books and anything to keep your mind occupied. I had left mastectomy and so could still use my right arm with no problems. Had no pain once I got through the 1st 24 hours, didn't even fill the script for the pain meds.

    Let us know when you have your treatment plan and I am sure you will find someone who has had the exact same.

    Good luck, sending you positive thoughts,

    Jennifer
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    grams2jc said:

    Sorry you have to be here.
    You are getting some great advice. You really will want to stock up on food and movies and books and anything to keep your mind occupied. I had left mastectomy and so could still use my right arm with no problems. Had no pain once I got through the 1st 24 hours, didn't even fill the script for the pain meds.

    Let us know when you have your treatment plan and I am sure you will find someone who has had the exact same.

    Good luck, sending you positive thoughts,

    Jennifer

    Welcome
    to the best bunch of people you'll ever know. Sorry you have to be here though. I had a lumpectomy so I can't help, but there are lots of women here who can.
    Best of luck and God Bless,
    Hugs,
    Wanda
  • SueRelays
    SueRelays Member Posts: 485
    Hi!
    I'm also sorry to hear

    Hi!
    I'm also sorry to hear your news, but if it helps, I am a anal cancer survivor, and non smoking lung cancer. I know how awful it is to get that 2nd primary cancer diagnosis and scare, I'm now on my 3rd! I am having a double M in November, also because of gene mutations, not because there is anything in the other breast. They recommended that I start with chemo....my favorite :). Will be having my 4th out of 6 treatments this Friday.
    I have had a couple major surgeries with my cancer....my first one spread to my liver, so I had a liver resection. I have always had surgeons I felt very confident with...I think that is key. I am opting to not get reconstruction at the time of surgery. With all I've been through and so recent, my surgeon feels it's best to heal for awhile. He said the actual surgery without reconstruction is a breeze. Only 24 hours in the hospital and then a couple of weeks to recover from being tired. He said I wouldn't even be all that sore. But I haven't actually been through it yet, like others on here...so I'm sure they can say better. But I do believe you have to mentally wrap yourself around this and feel that this is what you need and it's going to work. My surgeon said as much too. He said people who go in to surgeries with positive confident feelings about it heal faster and just do better overall. How do you get that??? Read up as much as you can and listen to all the smart ladies on this site!!!

    Also, if you can they say to get out and walk every day before surgery, even if it's just a small walk!

    I wish you all the best and please keep us posted!!
  • catowner
    catowner Member Posts: 50
    just diagnosed
    Hi Patacz, I was diagnosed 2-1/2 weeks ago and I am having a single mastectomy this Wed. I am in a hurry to get this done so I can get the beast cut out. All of the people on this site have been very helpful and informative to me, ( I have only been on here since Sept.9th.) I wish you the best and I also am hoping the surgery goes well for both of us. Hugs, Debbie
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    Hope this helps!
    I am so sorry that you have joined our "club". but please know that you are most welcome here and everyone will try and help and support you however they can.

    Your family history sounds so similar to mine. Two of my sisters and I have had breast cancer; brother with thyroid cancer; father with colorectal cancer; uncle died of colon cancer; grandmother and 3 of her sisters died of breast cancer (one also had colon cancer). Unusual and crazy. Of course, we tested negative for BRCA, etc. ;-)

    I originally had a mastectomy and then, after sisters were diagnosed, I had the other breast removed preventively. My sisters had bilateral mastectomies.

    We all did fine. I don't know how many surgeries that you have had? For me it was easier than my C/S and my appendectomy. You will usuaully have 2 drains when you leave the hospital. When they quit draining (usually about 1-2 weeks), the drains will be removed.

    You can ask your physician if Reach to Recovery can visit you after the surgery. I am pretty sure that you need your doc's ok. They helped me a lot. The volunteer gave me a little box with a rope and soft ball to help with gentle exercises. She also gave me a soft prosthesis which was helpful. Most importantly, she just answered a lot of practical type questions and gave me emotional support.

    Let us know how you are doing. I will be rooting and praying for you. Good luck!

    Reach to Recovery

    http://www.cancer.org/Treatment/SupportProgramsServices/reach-to-recovery
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member

    Welcome
    to the best bunch of people you'll ever know. Sorry you have to be here though. I had a lumpectomy so I can't help, but there are lots of women here who can.
    Best of luck and God Bless,
    Hugs,
    Wanda

    I am welcoming you and also
    I am welcoming you and also very sorry that you had to find this board. I will be praying for you and sending you lots of positive thoughts.

    Hugs, Jan
  • gami43
    gami43 Member Posts: 281

    Hope this helps!
    I am so sorry that you have joined our "club". but please know that you are most welcome here and everyone will try and help and support you however they can.

    Your family history sounds so similar to mine. Two of my sisters and I have had breast cancer; brother with thyroid cancer; father with colorectal cancer; uncle died of colon cancer; grandmother and 3 of her sisters died of breast cancer (one also had colon cancer). Unusual and crazy. Of course, we tested negative for BRCA, etc. ;-)

    I originally had a mastectomy and then, after sisters were diagnosed, I had the other breast removed preventively. My sisters had bilateral mastectomies.

    We all did fine. I don't know how many surgeries that you have had? For me it was easier than my C/S and my appendectomy. You will usuaully have 2 drains when you leave the hospital. When they quit draining (usually about 1-2 weeks), the drains will be removed.

    You can ask your physician if Reach to Recovery can visit you after the surgery. I am pretty sure that you need your doc's ok. They helped me a lot. The volunteer gave me a little box with a rope and soft ball to help with gentle exercises. She also gave me a soft prosthesis which was helpful. Most importantly, she just answered a lot of practical type questions and gave me emotional support.

    Let us know how you are doing. I will be rooting and praying for you. Good luck!

    Reach to Recovery

    http://www.cancer.org/Treatment/SupportProgramsServices/reach-to-recovery

    Welcome to this board; just
    Welcome to this board; just sorry for the reason.
    I had a skin-saving dble mx last November with implants
    placed at the same time. A breast surgeon did the mx
    and a plastic surgeon followed with the implants and
    and closed the skin borders. I had two drains each
    side which were a nuisance, but not painful. (I had
    not discovered this wonderful board until after all my
    tx ended) and I didn't knw about the neat camisoles with
    pockets for the drains. The only pain meds I needed was
    while I was in the hospital (IV first day and by mouth
    second day). Keep accurate drainage rates for each
    drain as that is how your MD will determine when they
    can come out. You are a survivor already and I believe
    you will have the strength and courage to face this
    head on. I will be praying for you. If you have any
    questions about mx, just pm me and I can tell you what
    my experience was. BTW, I could move and use both arms
    immediately. Your surgeon may have specific instructions
    regarding your arm usage initially.
    I wish you the best for your surgery; keep us updated.

    Luv & hugs, Teresa
  • missrenee
    missrenee Member Posts: 2,136 Member

    Hope this helps!
    I am so sorry that you have joined our "club". but please know that you are most welcome here and everyone will try and help and support you however they can.

    Your family history sounds so similar to mine. Two of my sisters and I have had breast cancer; brother with thyroid cancer; father with colorectal cancer; uncle died of colon cancer; grandmother and 3 of her sisters died of breast cancer (one also had colon cancer). Unusual and crazy. Of course, we tested negative for BRCA, etc. ;-)

    I originally had a mastectomy and then, after sisters were diagnosed, I had the other breast removed preventively. My sisters had bilateral mastectomies.

    We all did fine. I don't know how many surgeries that you have had? For me it was easier than my C/S and my appendectomy. You will usuaully have 2 drains when you leave the hospital. When they quit draining (usually about 1-2 weeks), the drains will be removed.

    You can ask your physician if Reach to Recovery can visit you after the surgery. I am pretty sure that you need your doc's ok. They helped me a lot. The volunteer gave me a little box with a rope and soft ball to help with gentle exercises. She also gave me a soft prosthesis which was helpful. Most importantly, she just answered a lot of practical type questions and gave me emotional support.

    Let us know how you are doing. I will be rooting and praying for you. Good luck!

    Reach to Recovery

    http://www.cancer.org/Treatment/SupportProgramsServices/reach-to-recovery

    So sorry you have to be here, but
    you will get great information from everyone here. I had lumpectomy, axillary node dissection, 6 rounds of chemo (TAC) and 33 rads. Seemed truly overwhelming when I was first diagnosed, but one of the best pieces of advice I had was "take one day at a time." It sounds trite and cliche, but it helped me to just focus on each day--each treatment as I was going through it and not think of the whole picture. As I progressed through surgeries, chemo and rads, I checked off each one as another part of the journey finished.

    I wish you the best of luck with your surgery and treatment. Come here often to ask questions, keep us informed as to how you are doing, or if you need a shoulder (or hundreds of shoulders!) to cry on. We're here for you.

    Hugs, Renee
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    missrenee said:

    So sorry you have to be here, but
    you will get great information from everyone here. I had lumpectomy, axillary node dissection, 6 rounds of chemo (TAC) and 33 rads. Seemed truly overwhelming when I was first diagnosed, but one of the best pieces of advice I had was "take one day at a time." It sounds trite and cliche, but it helped me to just focus on each day--each treatment as I was going through it and not think of the whole picture. As I progressed through surgeries, chemo and rads, I checked off each one as another part of the journey finished.

    I wish you the best of luck with your surgery and treatment. Come here often to ask questions, keep us informed as to how you are doing, or if you need a shoulder (or hundreds of shoulders!) to cry on. We're here for you.

    Hugs, Renee

    Welcome to a Sisterhood like no other ...
    I am sorry that you found your way to our site -- but, happy you found us. We are here for all 24/7.

    Gentle Hugs,

    Vicki Sam
  • mamolady
    mamolady Member Posts: 796 Member
    Sorry you have to be here,
    Sorry you have to be here, but you are most welcome here. This is a great resource for all types of information. You have already dealt with cancer so you have a little more insight than some newly diagnosed.
    I too have pretty strong family history so I opted for bilateral mastectomy. The surgery wasn't bad and if I get recon, they don't need to match the other breast. They can just fill them up the same! I had my surgery in the end of March then radiation in May and June. Most of the effects were gone by August.
    Maybe being out of work is just good timing. There are programs in most states to help with treatment. This way you can just focus on recovery.
    All the best,
    Cindy
  • butterflylvr
    butterflylvr Member Posts: 944
    mamolady said:

    Sorry you have to be here,
    Sorry you have to be here, but you are most welcome here. This is a great resource for all types of information. You have already dealt with cancer so you have a little more insight than some newly diagnosed.
    I too have pretty strong family history so I opted for bilateral mastectomy. The surgery wasn't bad and if I get recon, they don't need to match the other breast. They can just fill them up the same! I had my surgery in the end of March then radiation in May and June. Most of the effects were gone by August.
    Maybe being out of work is just good timing. There are programs in most states to help with treatment. This way you can just focus on recovery.
    All the best,
    Cindy

    Just wanted to join in with
    Just wanted to join in with my love and support. I too had a double mastectomy and it was definitely much easier then I was expecting. I had a skin sparring mastectomy with immediate reconstruction and I am currently sporting my inflated tissue expanders. There are so many of us here on this forum so as your surgery date nears, ask the questions that bother you. We have a lot of experience here on this board.

    Hugs,
    Lorrie
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    Hello. You've come to a
    Hello. You've come to a great place for advice, support, love, and laughter. Please let us know when your surgery is scheduled.

    I had a left modified radical M and a right prophylactic M in Jan of this year. I have some practical advice for you...

    First, you'll want garmets that button or zip up the front. It will be difficult at first to raise your arms above your head. You won't need many, because in a short time you will start getting mobility back. If your insurance will pay for them, mastectomy camisols are great...they have pockets for the drains and usually come with 'pillow boobs'. If insurance doesn't cover them, check with ACS. You might be able to get them that way. You can also just use a blouse, and a baby safety pin will hold the drains in place.

    Because you will have limited mobility at first, anything you have to reach for (high or low) should be moved before your surgery...dishes on the top shelf, clothes, etc. You will also have a lifting limit (10 lbs, I think). So keep that in mind as you are preparing.

    Check with your surgeon about drain care and about mobility exercises. These are areas where you will want to follow your docs advice. Be sure you know what exercises you should be doing and when you should start them. Doing your exercises faithfully will help you get your range of motion back.

    You'll also want to think about your sleeping arrangements. You'll need to sleep on your back for a while. I used a wedge pillow in my bed, and then several smaller pillows to comfortably support my arms and knees. Others here have slept in recliners.

    My last piece of advice...when in the hospital the nurse escorted me and my rolling IV thingy to the toilet. I was feeling a little wobbly as I sat down on the toilet, so I held on to the the rail on the wall for stability. DON'T DO THAT! The pain was horrible, I ended up staying in the hospital an extra day because we couldn't get the pain in my arm under control. If you feel wobbly, ask the nurse to help you.

    I hope your surgery goes as expected, and that your recovery is fast.

    Hugs,

    Linda
  • dbhadra
    dbhadra Member Posts: 344 Member

    Hello. You've come to a
    Hello. You've come to a great place for advice, support, love, and laughter. Please let us know when your surgery is scheduled.

    I had a left modified radical M and a right prophylactic M in Jan of this year. I have some practical advice for you...

    First, you'll want garmets that button or zip up the front. It will be difficult at first to raise your arms above your head. You won't need many, because in a short time you will start getting mobility back. If your insurance will pay for them, mastectomy camisols are great...they have pockets for the drains and usually come with 'pillow boobs'. If insurance doesn't cover them, check with ACS. You might be able to get them that way. You can also just use a blouse, and a baby safety pin will hold the drains in place.

    Because you will have limited mobility at first, anything you have to reach for (high or low) should be moved before your surgery...dishes on the top shelf, clothes, etc. You will also have a lifting limit (10 lbs, I think). So keep that in mind as you are preparing.

    Check with your surgeon about drain care and about mobility exercises. These are areas where you will want to follow your docs advice. Be sure you know what exercises you should be doing and when you should start them. Doing your exercises faithfully will help you get your range of motion back.

    You'll also want to think about your sleeping arrangements. You'll need to sleep on your back for a while. I used a wedge pillow in my bed, and then several smaller pillows to comfortably support my arms and knees. Others here have slept in recliners.

    My last piece of advice...when in the hospital the nurse escorted me and my rolling IV thingy to the toilet. I was feeling a little wobbly as I sat down on the toilet, so I held on to the the rail on the wall for stability. DON'T DO THAT! The pain was horrible, I ended up staying in the hospital an extra day because we couldn't get the pain in my arm under control. If you feel wobbly, ask the nurse to help you.

    I hope your surgery goes as expected, and that your recovery is fast.

    Hugs,

    Linda

    sorry that you are going through this
    but glad that you have found this board. There is a lot of great support here.

    I had a right breast modified radial MX in July. I found the physical recovery pretty easy; I was off narcotic painkillers and onto Tylenol within a few days. Emotionally, it took me quite a bit longer to feel OK again. That;s normal, and be gentle with yourself as you give yourself time to recover.

    They will give you arm exercises before you leave the hospital. Be sure to do your exercises regularly after the surgery to get your range of motion back and so that you don;t stiffen up.

    Best to you,
    Laura
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    VickiSam said:

    Welcome to a Sisterhood like no other ...
    I am sorry that you found your way to our site -- but, happy you found us. We are here for all 24/7.

    Gentle Hugs,

    Vicki Sam

    Wishing you the best of luck
    Wishing you the best of luck with your surgery and your recuperation.


    Hugs, Debby
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    Welcome
    Welcome. Sorry that you must join us. Because you speak of heridity it sounds as though you may have what is called Triple Negative Breast Cancer. If so ask about the BCRA gene test so that you can protect siblings and children.

    I know what you mean about wanting to get a job but now have to wait. I was in the process of finding a new job as I got the news as well. It seems like bc comes at the most inconvenient times for us. Whether or not you continue to work will be impacted by what stage of cancer you have. They will determine the stage when you have your lumpectomy or masectomy. I would check out the educational vidios on this site regarding bc as it will give you a lot of information that can help you get a sense of where you stand now that you have gotten the news.
  • skipper54
    skipper54 Member Posts: 936 Member

    Welcome
    Welcome. Sorry that you must join us. Because you speak of heridity it sounds as though you may have what is called Triple Negative Breast Cancer. If so ask about the BCRA gene test so that you can protect siblings and children.

    I know what you mean about wanting to get a job but now have to wait. I was in the process of finding a new job as I got the news as well. It seems like bc comes at the most inconvenient times for us. Whether or not you continue to work will be impacted by what stage of cancer you have. They will determine the stage when you have your lumpectomy or masectomy. I would check out the educational vidios on this site regarding bc as it will give you a lot of information that can help you get a sense of where you stand now that you have gotten the news.

    Welcome aboard!
    No one chooses to be on this journey but we've all been there and trying to make the best of it. We'll be here for you all along the way.

    You've been given some great advice to stock up on frozen foods and movies, and books if you're a reader. And make sure to move things to lower shelves so that you can get to them without reaching above your shoulders. Follow your durgeons directions! To the letter!! The only pain meds I took were Extra Strength Tylenol. They gave me morphine right out of surgery but I couldn't tolerate that and really didn't need it. The anticipation and the wait are the hardest. Hang in there!