price of treatments!!!

I have been on Avastin and Xeloda for about 6 months and will be awitching to Erbitux on Wedensday. My schedule for treatment is weekly so I know it will be expensive...anyway I just received the bill for my prtion of one (1) Avastin treatment after my insurance payment and my portion is $9700.00. I can't afford that...I am about ready to stop all my treatments and let this disease run it's coarse. My employer has this new insurance and it only pays 50% so there is no way I can keep up. I have been fighting for 4 years and have had periods of being NED but this $$$ issue is eating me up inside.....
What can I do??? any suggestions

Thanks
Granny C

Comments

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Dear Granny C
    So very sorry to hear that the treatments have become cost prohibitive.

    Here are 3 sites that I found you may want to check out for assistance:

    http://www.destinationaccess.com/index.aspx
    http://www.erbitux.com/colorectal-patients/reimbursement/index.aspx
    http://www.needymeds.org/drug_list.taf?_function=name&name=Erbitux

    I would also suggest that you discuss this issue with your onc who may be able to refer you to some local entity for assitance.

    Hope that you find the $$$'s you need so you can continue your treatments.

    Hugs,

    Marie who loves kitties
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    GC
    It's never about the cancer, is it?

    It's always about "The Benjamins" and whose got 'em.

    I've got medical bill collection agencies all over my a$$ every hour of the day, and twice on Sundays. No joke. They call and harass constantly. I just could not keep up then and I can't keep up now.

    I pay what I can but the bills after 7+ years continue to rise. It was because of money last year that I cancelled all scans and a lung surgery 'cause I just could not do it anymore and figured they would cut me off for non-payment of services.

    That mistake would have been the one to kill me, 'cause I had a nasty tumor that had grown to the size of a tangerine and embedded itself in my rib cage and was dangerously close to my spine. My bone-headed decision certainly would have ended my life if not for some timely intervention.

    But even after the intervention, the bills just continued to mount up.

    There are two things to consider. First, everyone will tell you to look for help - that it's available. But that's really alot of lip service, unless your income is so LOW that you QUALIFY for assistance. If that's the case with you, then there is a chance.

    But most of the places I checked had INOME QUALIFYING restrictions that prevents most people from getting the help they need. You have to be very low income to qualify.

    Most of us make over the required amount and if you have a working spouse, then you can just about forget it from that standpoint. You can certainly look around, but I was quickly frustrated and the door was shut where I was looking.

    Or, you can just continue to get treatments and let the bills roll until they cut you off - pay what you can - talk to a financial counselor at your facility and see if they can arrange more affordable monthly payments.

    It is very hard for most people to hang on and the longer the journey goes, the harder it gets financially as well. Your employer plan does make it harder for you at only 50%. I have to pay 25% out of my pocket and my company's insurance takes care of the other 75%.

    Most people at my work think our insurance is terrible - and I tell them that's because you don't have a major illness and can appreciate how it really is pretty good, especially in today's age, where companies are shifting more of the burden and responsibility to the employee.

    This is all that I know to tell you and wish I could be of more help. But, I'm drowning as well every time I step on the hospital campus.

    I wanted to give in as well as I was at the 6-year mark and was frustrated because, cancer, radiation, chemo, and treatments did not stop me - this piece of green paper with little numerals in each of the four corners sure threatened too, though.

    But, what I would say to you before I let you go is this:

    GC, you have fought 4-years and come this far - please don't give it away like I almost did last year - it's a life-saving decision and I surely would not be here writing to you today if I had followed through by letting money dictate my decision.

    Just keep going and pay what you can pay and see where it goes. You might get back to another ned period for yourself and find it over for you. If you stop now, you already know what will happen. I was too naive to believe it myself at the time - I did know, but refused to let myself truly believe something bad would have happened.

    I hate the financial battle of the cancer wars - they are every bit as ugly as the cancer itself and so many good people get hurt so badly.

    Check into some places and if you find no relief - keep going until they close the door on you...at least that way you will have gotten more than you have today. If they play dirty - then we must as well.

    I'm sorry you find yourself in this stew as well. It's been hard for us and because I spent so much time on disability last year with only 50% income coming in each month, we slipped further down the hole than ever. It's so deep now, I'll never be able to pay it out, even if I got 2-lifetimes.

    I'll be on a monthly payment for life. You've still got some quality left in your life, so please consider what I've said and don't throw it all away now what you have worked so hard to attain. We can mail it in at a later date.

    -Craig
  • Buckwirth
    Buckwirth Member Posts: 1,258 Member
    Annual Out of Pocket Max
    Most insurance plans have this, do you know if yours does, and what it is?
  • tko683
    tko683 Member Posts: 264 Member
    same problem
    We have had similar issues with my husband's bill for Avastin. You can contact Genentech Access Solutions and apply for assistance with them. They offer a 2 different assistance programs. you can also negotiate with the doctor's office to write off the amount that your insurance does not cover. That is what we are doing. Just talk to the director of Finance-Patient Accounts--whoever is in charge and tell them your situation. Good luck. I know it is very frustrating dealing with all this when your are trying to fight cancer.
  • steveandnat
    steveandnat Member Posts: 886
    This is so frustrating
    This is so frustrating because our insurance is paying a lot already and then we have to pay so much out of our own pocket. I was trying to keep up paying but it got to the point everything was going to medical bills. I called the hospital and clinics and told them i would pay so much a month and they were okay with that. The way the bills are billing up it will take years to pay it off but the way i look at it my insurance is paying so much it should easily cover the cost of the meds and services and there are so many that don't pay anything.
  • grannyc
    grannyc Member Posts: 63

    This is so frustrating
    This is so frustrating because our insurance is paying a lot already and then we have to pay so much out of our own pocket. I was trying to keep up paying but it got to the point everything was going to medical bills. I called the hospital and clinics and told them i would pay so much a month and they were okay with that. The way the bills are billing up it will take years to pay it off but the way i look at it my insurance is paying so much it should easily cover the cost of the meds and services and there are so many that don't pay anything.

    thanks to all for replies
    I appreciate all of your coments, and I know all that you say is true, I guess I am just frustrated with working my whole life for everything and hen this disease so easily takes your health and your money.
    I guess my biggest concern is that me finace will lose my home when I die because of the unpiad medical bills.

    I do visit this forum almost daily but do not post often. You are all a wealth of information, and encouragement.
    I will not give up the fight!!!!!

    Thanks again all
    Granny C
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    US medical prices are programmed to be excessive
    The costs are excessive due to an ordained lack of competition. Literally, other treatments are not allowed to compete on an equal basis, if at all. This is part of the schisms of what's alternative, experimental and mainstream. Under monopolistic "standards of care" and insurance, most patients are railroaded into a narrow canyon of unpleasant choices, bushwacked for their health and wealth. There is no substantial funding mechanism for truly independent, self directed research in the sense of a mainstream medical school, or reward for cost effective medicine.

    When I check my wife's anti-metastasis treatment, part of the protocol somewhat like "chemo for life" maintenance with lots more "alternative" enzyme inhibitors and biomodulators where we're still attempting extermination, it is not insurance re-imbursable in the US. For macroscopic tumor mass, we depend on the surgeons, etc to eventually remove or destroy any visible masses, whether they normally do it or not - we've successfully challenged common assumptions on what's resectable.

    Yet, many of her treatment substances are mainstream medicine in other countries, albeit frequently off label. Her treatment addresses the same angiogenic growth factors that Erbitux and Avastin do, EGFR and VEGF-A, and many more, (HER2/ErbB2, HIF-1, other VEGF, COX2). Thankfully, the high strength nutrient and medicine costs of her treatment are not too expensive, currently about $12 per day, subject to dosage changes, additions, bulk sales, discounts and inflation. Cheaper than most insurance co-payments for mainstream US medicines, even when approaching maximum dosages. hmmmm.

    Our current US medical system ignores known and knowable answers. I don't see any legal changes in sight that are going to meaningfully improve that. I only see reform where we teach individual doctors, one step at time, other answers, recognize them, and reward them. Under centralized insurance, that will become even more difficult.
  • Kimo Sabe
    Kimo Sabe Member Posts: 64
    Your money or your life or both
    I would encourage you to press forward in your health care. You've worked hard, sacrificed, and contributed most of your life.  Please don't allow the societal rules governed by CEO corporate moguls to intimidate you into drinking the Jonestown Kool-Aid.  

    Your moniker suggests who you are and what you stand for. I don't have to tell you being a grandparent is the absolute ultimate experience. You have much more to give and to savor with those little ones. I know they want you to hang around too.

    Finally, I'm going to get a little cheesy and redundant and express things that everybody here already knows.  I and many others, because of our cancer, have experienced riches far greater than could ever be measured in dollar bills.

    So please march on. 

    Norm