CSN Login
Members Online: 3

esophageal cancer recurrence

Lynn_Paul
Posts: 22
Joined: Sep 2011

Has anyone had any experience with esophageal cancer returning? My husband was diagnosed a year ago. He had chemo/radiation pre surgery, then surgery, and then more chemo. The first pet was clean, but the one last week shows a 2cm x 2cm tumor is back. It is between the wind pipe and the stomach (acting as the esophagus). We were told today radiosurgery (cyberknife) would be difficult due to the location.

birdiequeen's picture
birdiequeen
Posts: 329
Joined: Mar 2011

I'm very sorry to hear you are facing this cancer again. There are some here on the site that have experienced a reoccurrence. I'm sure they will post soon. Just thought I would say hello, glad you found this site as it has been helpful to many, including me.

Lynn_Paul
Posts: 22
Joined: Sep 2011

Thanks for welcoming me to the site. I hope all is going well with your husband. This is such a horrible thing for them (and us) to go through.

Take Care and enjoy every day.
Lynn

mruble's picture
mruble
Posts: 179
Joined: Jun 2011

My husband was diagnosed in October 2009, and like your husband had chemo, radiation and then surgery in February 2010. We found out on Christmas Eve 2010 that the cancer was back, this time in his thyroid and a node in his neck. He did more radiation and has been on chemo since December.

What's your oncologist proposing at this point? I've heard good things about cyberknife. Maybe get a second opinion on whether or not it's an option? Otherwise I would imagine more chemo is the next step.

I'm so sorry that you are having to deal with this again and will keep you and your husband in my prayers.

Mary

Kenem's picture
Kenem
Posts: 21
Joined: Oct 2009

Original DX in Nov. 2009. Stage 4. Adenocarcinoma. Chemotherapy only. Recent biopsies showed only dead adenocarcinoma cells. Latest biopsy showed active squamous cells. Back on chemotherapy.

The good news is that Erbitux is more effective against squamous than adenocarcinoma. We'll see how that goes.

Lynn_Paul
Posts: 22
Joined: Sep 2011

Mary,

Thanks for your concern. The Dr. said if it is determined the cyberknife is the best option, he will do it, but he wants to talk to the other doctors to discuss any other possibilities. I think we will probably get another opinion before we decide.

How is your husband handling being on chemo?

Lynn

chemosmoker's picture
chemosmoker
Posts: 525
Joined: Aug 2011

Lynn and Paul,
HERE is what I have read many times, regarding recurrence with EC; In Staying with the "no-sugar-coating" honesty rule we all try to live by here, I post this knowing it is NOT encouraging. This is part of what led me to avoid trying to treat my stage of EC at all. Every one of our onco's told us these facts, and that the mortality rate for post-surgical EC is almost 100% at some point, certainly in MY case, save for stage I's. Here it is...
___________________________________________________________________________________________
Becoming an Esophageal Cancer Survivor.

What are the signs you're in remission and how likely is it that esophageal cancer will recur?

By Diana Rodriguez
Medically reviewed by Pat F. Bass III, MD, MPH

"Esophageal Cancer Recurrence Rates and Staying Healthy

How likely your esophageal cancer is to come back depends on the factors of your particular case, including the stage at which you were diagnosed.

"At least 75 percent of the time, esophageal cancer recurs, but it depends on stage," says Hofstetter. "It is completely stage-dependent — if diagnosed in a late stage then esophageal cancer recurs very frequently; in early stages, very infrequently."

Your doctor will tell you how often you need a PET scan, CT scan, or other screening tests to check and see if the cancer has returned. If you do experience cancer recurrence, you can still be treated. However, it is important to consider factors like the type of treatment, likelihood of success, and potential side effects as you and your doctor discuss your treatment plan for recurrent esophageal cancer.

Reducing Esophageal Cancer Recurrence Risk

Even after your treatments, it's important to live a healthy lifestyle — and get regular screenings — to make sure your esophageal cancer doesn't come back.

The same lifestyle risk factors apply after you've been diagnosed with esophageal cancer as they did before, so avoid all tobacco products and heavy drinking to reduce your risk of cancer recurrence. Post-cancer nutrition is also important, so maintain a healthy body weight with a balanced diet rich in fruits and vegetables.

When you are first diagnosed with esophageal cancer, doing your homework on the doctors, treatment facilities, and treatment plans you're considering is one of the best things you can do to increase your chances of successful treatment and reduced risk of recurrence.

"The time to come out of esophageal cancer [disease-free] is the first time through — your best chance of treatment is the first time around," says Hofstetter.

And while it's important to do everything you can to beat esophageal cancer and keep it from coming back, you should know that there are options to consider if your esophageal cancer does recur. Enjoy your success by continuing to live a healthy lifestyle, and make sure you're faithful about regular screenings. And definitely let your doctor know right away if you start experiencing any esophageal cancer symptoms again. Early detection and immediate treatment will always be your best defense against esophageal cancer."

SOURCE: http://www.everydayhealth.com/esophageal-cancer/esophageal-cancer-remission.aspx

___________________________________________________________________________________________

Hope this helps.
-Eric

Lynn_Paul
Posts: 22
Joined: Sep 2011

Eric,

Thanks for responding. I read your "about me" page. I can't believe after reading some of the stories how young so many men are. My husband is 54 (53 at diagnosis). I see you are only 43. This caught us totally by surprise, which seems to be a common thread. He was always extremely healthy, never overweight, never any acid reflux or stomach issues, never smoked, and never drank more than an occasional beer! He started having trouble with food feeling like it was getting caught. He mentioned it to the doctor while getting a physical at work and was told to schedule an endoscopy to have his esophagus stretched - very common to have the muscle constrict. Needless to say they discovered the tumor during the scope. He was diagnosed as stage 3 adenocarcinoma. It sounds like you have done a lot of research on this. Have you ever read about any link to environmental exposure? Paul worked with asbestos and coal ash for a number of years and is welder. Because he doesn't have heartburn or acid reflux which seem related to the adenocarcinoma, we wonder where this came from.

It sounds as if you are dealing with this with a very positive attitude. I'm sure that helps your wife and children. I know Paul's attitude has made it easier for us.

Lynn

chemosmoker's picture
chemosmoker
Posts: 525
Joined: Aug 2011

Lynn,

I sure wish I knew if there was an environmental connection to this horrible EC.
I know I have worked my whole life around lead and asbestos in various forms, but no lung cancer or lead levels that were high, ever.
I do know mine was NOT cause by my smoking as much as I wanted it to be, mine was a result of Barrett's esophagus that went unnoticed and turned into cancer cells.
With no lung cancer or direct lung involvement, I can't see how the asbestos or coal ash would come in to play either.

I try to keep a very positive attitude, since the choice IS mine and what else could I do, be a boob and make EVERYONE around me even more miserable? No way! Life was too short before, and now it's even more precious.

Yes I see we have a few in their 30's here with us now. I am not the baby here. The doctors have told us that the older squamous cell and EC of the past has been declining, but for the last decade, they have seen a marked increase in the cases of young people with adnocarcinoma on the rise, big-time, and they have no idea why.

Yes I have done four months of nothing but research now. I am not afraid of the stats, the good the bad or the ugly. I have always researched anything I have gotten in to and I am certainly "in to" this, like it or not. I like to be informed and not misinformed. I like to know and learn, always have. I have learned more from the others on this site than anywhere else, and it has been the BEST source of links and further information out there for sure.

I wish you all the best on your journey and we are all in this together, so lets help each other out is my attitude.

I wish you a peaceful weekend and hope you find the answers you seek, and there IS hope here, along with the truth.
I know I did.

-Eric

crystalbay
Posts: 39
Joined: Aug 2010

Lynn - I also was healthy with no known causes of my Stage 3 adenocarcinoma 2.5 years ago. My
only symptom was pills getting stuck down low in my esophagus once in a while. What my doctors told me caused this was "silent GERD". I'd never heard of such a thing, but they said that a certain percentage of EC patients do indeed have no noticeable signs of reflux or heartburn. With silent GERD (gastroesophageal reflux disease), the lower esophagus is being
eroded with stomach acid over time but never rises up to alert you.

mrsbotch
Posts: 377
Joined: Oct 2010

Hi Lynn-Paul

yes my husband Vince had a recurrence. he was stage 2 in 2009 and had the surgury, with no chemo or radiation offered. 16-18 months later it came back and he had chemo but unfortunately passed away Feb of this year. So he was here 2 years after diagnosis. I am so sorry for both of you . This is a tough tough tough disease and seems to care not ablout age , previous health, or anything else. I wish you a much better outcome in your journey. My heart is with you.

Barbara

Joel C's picture
Joel C
Posts: 173
Joined: Mar 2011

Hi Lynn,
It sounds like your Paul and I are on a very similar path. I was diagnosed with stage 2b in 7/2010. I had pre-op chemo and radiation followed by the MIE in 11/2010. My first follow up CT scan at five months out (4/11) was clean my second follow up CT scan (8/2011) showed a swollen node in my neck on the windpipe (paratracheal lymph node). The CT was followed by a PET that showed up-take in the suspicious node and then confirmed with a biopsy. We’re also at the same point as you in regard to weighing our options and then we’ll make the decision on how to move forward. I believe there would be value in you and I comparing what options we a presented with over the next few weeks. Please send me a PM if you are interested.

Best regards,
Joel

Lynn_Paul
Posts: 22
Joined: Sep 2011

I'll keep you posted.

Lynn

Quinny
Posts: 2
Joined: Sep 2011

I was diagnosed with stage 3 OC in July 2010 at the age of 41. I received chemotherapy and radiotherapy before undergoing an oesophagectomy on 29th December 2010. My recovery from surgery went relatively well although I did have three stretches done as the joint between the new stomach joint and remainder of my oesophagus shrank making swallowing difficult. This was resolved in May 2011 and things went well for me....for a couple of months. I returned to work in April 2011 and managed a couple of vacations to Greece with my family and started playing soccer again. I felt well and was putting weight on steadily and life seemed a whole lot better. I then had a scan in September 2011 to check to see if a dark area seen during a baseline scan in March had changed. The scan showed that the area remained stable but there were at least half a dozen small tumours in the fatty tissue below my ribs on the left hand side of my body.

I was told on 13th September that my prognosis was terminal. I have now seen the oncologist who has said that my only options now are palliative chemotherapy or nothing! He has said that he believes that I have between 6 and 9 months left if I don't receive chemotherapy but may have a couple more weeks if I do.

I have a wife and a 6 year old son and am devastated that I won't be around for them in the near future. Clearly, I want to be around them for as long as possible and will try out the chemotherapy in the hope that it buys me more time. I need to balance that out against quality of life and will have to review this decision after a couple of cycles. I didn't cope with the pre-op chemo and radiotherapy and am worried that I will suffer again.

I am worried, scared, angry and very jealous of those people who seem to live normal lives but I have to cope with this. There is no way out and I can't just ignore it. I am well at the moment and hope that this continues during the treatment as I have up to 8 cycles planned. I hope that those who undergo treatment in the near future have a better outcome than me. In the meantime, I would be happy to communicate with anyone who wants to.

David

fredswilma's picture
fredswilma
Posts: 196
Joined: Mar 2011

Hi David
I am so sorry that you have found yourself having to face this again, this disease truly is the most awful beast that does not discriminate and unfortunately is very aggressive. I get your anger, I understand your worries like so many more will on this site.
My husband was diagnosed Aug 2010 with stage ivb at the aged of 44, we have 3 young boys, 14, 13 and 10, he is going with more Chemo in the hope that he will have more time with us, like yourself he is trying to balance quality of life with quantity and we review this on a regular basis. At the moment he is well and enjoying life though as you will find his normal now is not what his normal used to be.
I just wanted to say hi, and welcome you to our online family, if you have any questions or you just want a bit of a rant with people who do get it this is the site for you, I say family because we really do care and support each other we get excited when surgeries go well and those people can get on with their lives, we cry when it all goes horribly wrong and we love funny stories that make us laugh, laughter truly is the best medicine, we exchange information regarding what has worked and what hasn't there are some on here that are truly just about experts and I know they will be on to say hi and pass on gems of information that will help you on your journey.
Once again I am so sorry that your cancer has returned and I hope that you stay well through your next treatments.
Ann

mruble's picture
mruble
Posts: 179
Joined: Jun 2011

David -

I'm so sorry that you are dealing with a recurrence. It's something none of us want to deal with but so many are forced to do so anyway. My husband was diagnosed in October 2009 at stage IVa and went through the same process as you. It was 10 months after surgery before he had a recurrence and has now been back in chemo for nine months. We, too, have children (15 and 12) and I know he worries about leaving all of us behind. All the talk on the board lately about stopping chemo has really caused me to think about about whether he continues treatment because he wants to or because he feels like he has to for us. We've had a good talk about it and he's choosing to continue with his current protocol. It's certainly something that we'll continue to evaluate. At this point I think he's just intent on proving that he's going to live for more than a year from the time of his recurrence!

You and your family will be in my prayers as you deal with this terrible beast.

Mary

TerryV's picture
TerryV
Posts: 916
Joined: Jul 2011

I am pained and angry that this disease comes back to haunt people that put so much effort into healing. I feel for you and your family.

My husband is less than 1 week out of hospital for esophagectomy. I understand the hope you had for your future. That's where we are now.

Please know that we are all here, caregivers and those with EC, to support you and your family as much as you need or want. We're finding that we have broad shoulders so lean on us.

Blessings and prayers to you all. I wish you peace and quality time with your family.

Terry
Wife to Nick, age 48
dx T3N2M0 05/19/11
THE 09/08/11

mishti
Posts: 24
Joined: Mar 2011

My eyes are filled with tears as I read this post. I visit this site everyday..in hope that I hear some strong survivor post which gives strength to all of us surviving through this desease. David... I really hope some miracle happens and you are there with your family and with us for years. My dad was diagnosed with Stage 4 Esophagus cancer in Feb. His fears were same as yours. Like you..even I envy people who are leading a normal life. U are in my prayers

Quinny
Posts: 2
Joined: Sep 2011

Many thanks for your kind comments, thoughts and prayers. Throughout this whole process I have kept away from the internet, support groups and networks for fear of misinformation. I simply treated my illness as something that would be sorted out with surgery and after a few months of recovery I would be back to normal albeit eating less but more often. I had hope and focus and almost relished the challenge. I was going to beat cancer. That has clearly changed.

I have now reached the stage where I need help. I now know that I have little or no hope left other than trying to stay alive long enough to be around for my wife and young son for as long as possible. Sure, people are very kind and say that they'll take care of them and make sure that my son doesn't go without but that's my job as his father and I'm not going to be there for him. I'm so sad about this and it hurts me every time I think about it. He now knows that Daddy is sick again and this time will lose his hair. He finds it very funny but isn't aware that I will die as a result of this illness.

Despite my prognosis, I still have a lot of experience on how best to cope with the post-operative phase immediately following discharge from hospital and would be more than happy to share that with anyone who needs it. I found the surgery much easier to cope with than the chemotherapy and would be pleased to pass on my experience to those who need it. There's no need to fear the surgery. It really isn't that bad and mine was the most invasive form to undergo.

I hope that all of those who are experiencing this awful disease, either as a sufferer or a carer get what they want. It's naive of me to hope that all are cured but I really hope that you all get as much quality time as possible.

I will continue to check in as the site really is a friendly place to be and everyone on here has experience of my disease and their information certainly helps me cope.

David

unclaw2002's picture
unclaw2002
Posts: 664
Joined: Jan 2010

Lynn,

When you speak to the doctors ask about having your husband's tumor tested for HER2 receptors. If he is one of the lucky ones then there is a drug proticol that seems to give patients some positive results a drug called Herceptin. I know several folks on the board in the past who were Stage IV patients had good results and acheived some valuable extra time and quality of life. Originally this was a breast cancer treatment and has recently been approved by the FDA for treatment in Esophageal Cancer. You may also want to inquire it they can test the tumor for the KRAS mutation --- which may indicate that some other experimental drugs like Erbitux which interfere with the cell mutation or other drugs that block the growth of blood vessils to strave the tumors )targeted gene therapies). There are many new treatments, some experimental, that have been developed over the last few years. My one hope would be that you make sure you go to a major cancer center --- one desingnated as such by the NIH and one that specializes in Esophageal Cancer. You really want to get the best and consult with the best and there are many great centers throughout the country. EC is a monster and you want to make sure you have the options and the A team available --- or at least have the option even if you decided that quality of life is most important and you just seek pallative care. Good luck.

Best,
Cindy

Lynn_Paul
Posts: 22
Joined: Sep 2011

All ~

This site is amazing and filled with such caring people. I have not been on the site for a while as we have been consumed with appointments and decisions. Cyberknife was initially suggested. The doctor agreed to do it although it was very risky because of the location of the tumor if no one else had a better option. Our surgeon said he could not operate. The oncologist did not feel chemo was the answer. We met with another surgeon last week (Dr. Luketich, who is often mentioned on this site. He wants to re-do the surgery and remove the tumor at the end of next month. Hopefully Paul will handle the surgery as well the second time as he did the first.

Lynn

Lynn_Paul
Posts: 22
Joined: Sep 2011

All ~

This site is amazing and filled with such caring people. I have not been on the site for a while as we have been consumed with appointments and decisions. Cyberknife was initially suggested. The doctor agreed to do it although it was very risky because of the location of the tumor if no one else had a better option. Our surgeon said he could not operate. The oncologist did not feel chemo was the answer. We met with another surgeon last week (Dr. Luketich, who is often mentioned on this site. He wants to re-do the surgery and remove the tumor at the end of next month. Hopefully Paul will handle the surgery as well the second time as he did the first.

Lynn

TerryV's picture
TerryV
Posts: 916
Joined: Jul 2011

With Dr. Luketich (who is praised to high heavens here) behind the scalpel, I'm sure your Paul will handle the surgery very well.

Our prayers go with you!

Terry
Wife to Nick, age 48
dx T3N2M0 05/19/11
THE 09/08/11

Lynn_Paul
Posts: 22
Joined: Sep 2011

All ~

This site is amazing and filled with such caring people. I have not been on the site for a while as we have been consumed with appointments and decisions. Cyberknife was initially suggested. The doctor agreed to do it although it was very risky because of the location of the tumor if no one else had a better option. Our surgeon said he could not operate. The oncologist did not feel chemo was the answer. We met with another surgeon last week (Dr. Luketich, who is often mentioned on this site. He wants to re-do the surgery and remove the tumor at the end of next month. Hopefully Paul will handle the surgery as well the second time as he did the first.

Lynn

BMGky
Posts: 666
Joined: May 2010

Will have you all in our prayers. As I understand, Dr. Luketich is the authority on this type of surgery. I think it is exciting he is going to operate. All the best luck. And, when time, keep us informed. Mary

mrsbotch
Posts: 377
Joined: Oct 2010

I am thrilled that Dr. Luketich will redoe your husband's surgury. He is quite the man from what I understand. Your hubby will have the best care possible. Take care and know we are all pulling for your guys.

Barbara

Lynn_Paul
Posts: 22
Joined: Sep 2011

We feel so lucky Dr. Luketich will operate. I read all about him and all of your comments seem to confirm he is the best possible surgeon for this ugly cancer.

Prior to meeting with Dr. Luketich, we were told cyberknife was the only possible way to remove the cancer. We made an appointment with a radio surgeon. I had a bad feeling the entire week leading up to the appointment that Paul would not be a candidate. It sounded too easy and too good to be true that 3 sessions could get rid of the tumor. When the Dr. reviewed the pet scan and came in to the office I knew it wasn't the answer. He said he would do the procedure if no one else could do anything but that it was extremely risky. Instead of the panic I expected to feel, I felt a strange sense of calm. My thoughts were, "Ok ~ now they will operate and get it out of there". Our surgeon said it was not an option. I wish he would have said it was not an option for him. Imagine if we had listened. Luckily our oncologist helped to arrange an appointment with Dr. Luketich. He will operate in late October. In the mean time we are planning a short 30th anniversary get-away. We started dating when we were teenagers. We have 3 children (23, 20, 15).

Terry ~ Thank you for the kind words. I hope Nick is recovering well from the surgery.

David ~ You and your family (as well as all on the site) are in my prayers. We have been amazed reading the posts on this site how many young healthy people get this cancer. We were told last year at diagnosis that they are not making a lot of progress in new treatments because it is extremely rare to have an EC patient that is otherwise healthy. I think they should visit this site and do more research. We were also told this strikes older people. Paul is 54 and there are so many of you in your 30s and 40s. It's heartbreaking.

Cindy ~ I have my notes to ask the dr. about HER2 and KRAS mutation at our next appt. Thanks for the information.

Barbara ~ Sherry , your support means a lot.

Lynn

Ericalynn's picture
Ericalynn
Posts: 207
Joined: Jun 2011

Lynn,
I agree about the gut feeling, when John and I meet with the first surgeon (he does Ivor Lewis) I had a gut feeling that he was not the correct person. With the help of this board and specifically William and Loretta I found the surgeon at Moffitt. He did the MIE surgery does several every week, original surgeon did 3-4 per year. I still do not understand why a surgeon that only does the surgery only a few times per year would even want to do the surgery ( but I guess that is another discussion). I am also amazed that I keep hearing this is not a common cancer. I think it is just not as publicized ( like come other cancers). My husband is 59, which I do not consider old but maybe some do. I am happy that your husband is candidate for the second surgery. Enjoy your anniversary get away, John and I will celebrate our 33rd anniversary October 27th. I am not sure that he will be ready for a get away (7 weeks post-op) but I am hopping that he will be feeling up to a dinner out!
Sending good thoughts your way for a successful surgery and speedy recovery!
Happy Anniversary
Erica

jim2011's picture
jim2011
Posts: 116
Joined: Sep 2011

Its my biggest personal health fear. EC is such an aggressive cancer. I had an all clear on my first post-treatment PET/CT Scans and my 2nd is in mid December. I am cancer free until then at least! None of my 3 grown children drink but all 3 have admitted texting while driving. Something happening to one of them is my biggest fear right now.
Getting scans and blood tests every 3-4 months means that even if something does show up it will be caught early or maybe even just scar tissue...maybe??

omer mukhtar
Posts: 6
Joined: May 2012

I have (good) (if there's somethig good with EC) experience with EC and i think that i have to share it with you. But before that i would like to say that i'm not good english speaker. It's not even my second language so please foregive my mistakes.In 2006 my mother caught EC, squamous cells carcinoma stage 3. I thought that she is going to die soon. That was the frist chock in my life ; i always thought that mothers are immortal. On november 2006 she has a big surgerey without any pre or post treatment. I mean without chemotherapy or radiation till this moment. You will not believe that she is in good condition till this day( 12 may 2012) without any chemo or radio. Last month in my country, after endscopy her doctor said that she has a poorly differentiated squamous cells recurrence. I went here in Jordan in Ebin Elhaythm hospital seeking treatment because i do not trust cancer treatment at my home country. Her new doctor after CT Scan and endoscopy he has just mentioned that she is clear of cancer. My mother is 68 years and has lost 60% of her weight due to the EC and look very very weak to stand cancer treatment. Her surgerey was on 30 november 2006 and as we don't have good cancer treatment in my country we went 3 times here in Jordan that was in 2007, 2010, 2012. and they always say she is clear of cancer.What we did as alternative of chemo and radiotherapy was something you will not agree with because it has not scientific basic. I bought a hebal tretment from Oman and my mother drinks the Moringa leaves juice twice aday ( Moringa is a tree we call it the tree of life). But, i know another thing which helped to prevent the recurrence. I can not mentioned it her for maybe the site policy.I decided to joint this site only after reading all what is written here and see eyes filled of tears.I know that some maybe will not believe that there are some survivors of EC for more than 5 years after surgerey. I have no treatment and i can not help in that Only i wana to share my story with that awful deasise. I'm very happy that i have just joint this site because if i have been here before i have would be disappointed of my mother tretment. I did not think that it's almost untreatable cancer.I HOPE LONG LIFE FOR ALL YOUR PARENTS HUSBANDS AND FOR ALL OF YOU.
Contact my for further questions, information but please use a simple language.
For who ask of adenocarcinoma this kind has only one early symptom esophagual pain after meals which comes from reflux of stomach liquid. Envirommental? I don't think maybe, food. Spice...etc
Thanks

omer mukhtar
Posts: 6
Joined: May 2012

I have (good) (if there's somethig good with EC) experience with EC and i think that i have to share it with you. But before that i would like to say that i'm not good english speaker. It's not even my second language so please foregive my mistakes.In 2006 my mother caught EC, squamous cells carcinoma stage 3. I thought that she is going to die soon. That was the frist chock in my life ; i always thought that mothers are immortal. On november 2006 she has a big surgerey without any pre or post treatment. I mean without chemotherapy or radiation till this moment. You will not believe that she is in good condition till this day( 12 may 2012) without any chemo or radio. Last month in my country, after endscopy her doctor said that she has a poorly differentiated squamous cells recurrence. I went here in Jordan in Ebin Elhaythm hospital seeking treatment because i do not trust cancer treatment at my home country. Her new doctor after CT Scan and endoscopy he has just mentioned that she is clear of cancer. My mother is 68 years and has lost 60% of her weight due to the EC and look very very weak to stand cancer treatment. Her surgerey was on 30 november 2006 and as we don't have good cancer treatment in my country we went 3 times here in Jordan that was in 2007, 2010, 2012. and they always say she is clear of cancer.What we did as alternative of chemo and radiotherapy was something you will not agree with because it has not scientific basic. I bought a hebal tretment from Oman and my mother drinks the Moringa leaves juice twice aday ( Moringa is a tree we call it the tree of life). But, i know another thing which helped to prevent the recurrence. I can not mentioned it her for maybe the site policy.I decided to joint this site only after reading all what is written here and see eyes filled of tears.I know that some maybe will not believe that there are some survivors of EC for more than 5 years after surgerey. I have no treatment and i can not help in that Only i wana to share my story with that awful deasise. I'm very happy that i have just joint this site because if i have been here before i have would be disappointed of my mother tretment. I did not think that it's almost untreatable cancer.I HOPE LONG LIFE FOR ALL YOUR PARENTS HUSBANDS AND FOR ALL OF YOU.
Contact my for further questions, information but please use a simple language.
For who ask of adenocarcinoma this kind has only one early symptom esophagual pain after meals which comes from reflux of stomach liquid. Envirommental? I don't think maybe, food. Spice...etc
Thanks
Omer Mukhtar

omer mukhtar
Posts: 6
Joined: May 2012

Thanks for your long comment sir but i did not say that morgina treated my mother. I said that what one of thing we did instead of chemo and radiation and i said also we did something i will not mentioned maybe because of site's policy. We had access to the treatment you speak about and your country is not so far i was there last may. The surgerey of my mother was in the low part of her esophagus and they poll her stomach up. We tested the tumer after surgerey and it was squamous cells. You may miss understand me now in this moment i'm in Jordan because they said to me your mother has poorly differentiated squamous cells in the esophagus so i went here seeking same drugs you mentioned but the hospital confirmed that she is free of cancer. I repeat again, i said you will not trust what i'm saying because it has no scientific basic. And i repeat again, we only used herpals from 2006 till know. You focused on Moringa and mentioned lots of what i do not khiw before. And remember sir that my mother is very very weak because we discovered the cancer too late and after she lost her weight. The last test dated 08/05/2012 and not 2011 5 or 4 days ago. I believe that scientifically there is no alternative for ( chemotherapy and radiation). We have it and we don't have any scientific evidence for it. I don't know how comes that we don't have any tretment (chemo or radiation) and my mother still alive. That why i wrote ( cancer recurrence) and l fond this site.I would like to be your friend too i'm glad you are survivor for 9 years that gives me lots of hope and fear in the same time because you had chemo or radition and my mother has never tryed it.I believe that i will learn lot here, you know since 2006 i have read more than 14 pages per day about cancer on the net. I read about it in frensh english and my tonglanguage Arabic. I translated from traditional chinese to one of this language. I know lot but as i said maybe the language is my barrier. I could not explain my experience as good as you sir.If you have an access to arabic or frensh translation i will send you all by e.mail and i'm sure it will be new for you because it's not just repeated knowldege from the net.Thanks and sorry for mistakes or missculture.

omer mukhtar
Posts: 6
Joined: May 2012

When i mentioned adenocarcinoma i started from where the asker stoped he/she mentioned that his/her father was not involved in many of EC reason but she/ he did not mentioned the reflux of stomach liquid ,i'm happy you have never had. Sir please don't be very proud of doctors in your country we have some who are graduated from the biggest us university. And usually thirdworld country deals with cancer same way you deal with. I mean they buy very expensive machines and treatments because it's the cancer and they know that the only way to avoid it, is to die.The logic you follow and questions to explain your opinion on nerbs can be rejected. Moringa could not be fond over all Africa or anywhere. It always here in my country and i had no idea of it's benefits. USAID does not cover all the 3 world countries to justify why people die oversea and they die also in your country. Westren treatment can not be applyed to treat any cancer case because each case is unique. I'm asking instead of giving just opinion, research center can gives a real answer by searching before people sell it and put it in bags. We use it from the tree and it treat some diseases. I'm not trying to say that Moringa can treat 300 diseases or cancer. My mother has just used it 2 months ago and 5 days ago doctors mentioned it free of cancer while in my country they declared squamous recurrence . i'm trying to make it reasonable just like you when you speak about westren treatment you can give evdiences. Please when you speak about hebs or any other treatment make is also scientific and not logical or accept it as a miracle. Sorry to turn away, i don't say only moringa treted my mother and like you i don't trust it.I'm here because of cancer Sir i swear. Again, i would like to tell you my mother's story even i'm sure that is going to be difficult for 3 reasons (believe, culture, language).
Sir i don't share you same culture so foregive me if you feel that there is something impolite.
Thanks
Omer

omer mukhtar
Posts: 6
Joined: May 2012

Thanks Sir for this information.When my mother first diagnosed with cancer we had: ULTRASOUND CT SCAN PET SCAN E DSCOPY TISSUE TEST and pictures i think to locate the tumor. Doctors fond that squamous in lower esophagus was unusual so they gave her a questionaire i think they took it as rare case. They decided after the surgery to avoid chemo and radiation because she was very weak and the tumor test after the surgery showed that there was no malagnancy in the safe earia around the tumor. As i said we went here in Jordan 3 time where they made Pet scan ( with special drink with colours) CT scan with endoscopy and tissue test: 2 times they said there is not cancer and i repeated the tissue test twice they confirmed that she was free.This time we came here 10 ago they made Ct scan, endoscopy with tissue test twice in the first one the lab said this:( mild reflux esophagitis, no dysplasia, no malignancy)i sent same slites to another lab and they said:(Mild chronic esophabitis. Modrate chronic active onflamation of gastric metaplastic tissue)I came here because in my country doctors said that she has to take chemo and the tissue test was ( poorly differentiated squamous cells recurrence) this why i went here with her. Yes sir, because all documents of my mother's tests were in english i studyed 6 months at the British Consel only to know what doctors were saying.I have just met her doctor and discussed with him all what you advised me and he recommanded to restart same tests after 6 months.I said to him she has never had chemo or radiation he answered she did not need that treatment.Please Sir i sent you a friend requist accept it or contact me i have a secret for you. Sorry for mistakes.Happy mother day to allThanksOmer

omer mukhtar
Posts: 6
Joined: May 2012

Thanks Sir for this information.When my mother first diagnosed with cancer we had: ULTRASOUND CT SCAN PET SCAN E DSCOPY TISSUE TEST and pictures i think to locate the tumor. Doctors fond that squamous in lower esophagus was unusual so they gave her a questionaire i think they took it as rare case. They decided after the surgery to avoid chemo and radiation because she was very weak and the tumor test after the surgery showed that there was no malagnancy in the safe earia around the tumor. As i said we went here in Jordan 3 time where they made Pet scan ( with special drink with colours) CT scan with endoscopy and tissue test: 2 times they said there is not cancer and i repeated the tissue test twice they confirmed that she was free.This time we came here 10 ago they made Ct scan, endoscopy with tissue test twice in the first one the lab said this:( mild reflux esophagitis, no dysplasia, no malignancy)i sent same slites to another lab and they said:(Mild chronic esophabitis. Modrate chronic active onflamation of gastric metaplastic tissue)I came here because in my country doctors said that she has to take chemo and the tissue test was ( poorly differentiated squamous cells recurrence) this why i went here with her. Yes sir, because all documents of my mother's tests were in english i studyed 6 months at the British Consel only to know what doctors were saying.I have just met her doctor and discussed with him all what you advised me and he recommanded to restart same tests after 6 months.I said to him she has never had chemo or radiation he answered she did not need that treatment.Please Sir i sent you a friend requist accept it or contact me i have a secret for you. Sorry for mistakes.
Happy mother day to all
Thanks
Omer

suziebondy2
Posts: 1
Joined: Oct 2012

My cousin has just been told her cancer is back and I went online to see what I could find to help her and saw your post.Please can you tell me more about your mothers treatments in jordon

rmitchell
Posts: 95
Joined: Dec 2010

My husband had the radiation and chemo and then surgery. They told him he was Cancer free and then it came back in his bones. He died 3 months after it came back. He did not want any more treatments . He was ready to meet the Lord. It has been a difficult 5 months for me but I know how much he suffered and I would not want that for him again. I pray that you will not have the same outcome. God bless you

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network