Sep 07, 2011 - 8:45 pm
Fast forward seven years. She was running and felt pain in her chest. She thought heart attack, there were some kind of tumors in her lungs. Her surgeon who took out the abdomenal tumor sent her to a thoracic surgeon. He removed and biopsied two of the tumors, again, they were unable to tell her what they were specifically. Just some vague type of sarcoma. He couldn't understand it, she had a 35 mm tumor in her lung, plus about 8 others, and was able to run, and was in great shape. A friend of her's and I convinced my SIL to go to Sloan, so she sent her paperwork, and they made her an appt with a sarcoma doctor.
The news was better than we expected at Sloan. The doctor told her that her type of sarcome, HPC, is very slow growing, and that he was just going to watch it for now. He wanted another CAT scan for baseline - when it came back, it showed tumor growth in at least two of the tumors in the two months since the last CAT, so he put her on Sutent.
Questions: can Sutent cure, or is it a way to buy time and hope for better meds? Can you shrink the tumors and then remove them? Is this chronic, can she live with this a long time??? Should she be looking at the Germany surgeon? She lives far from me, and I don't have the most recent info, as I wasn't at her appt with her, and I don't want to keep badgering her, but I am very, very concerned. Thanks for any help and knowledge you may have,