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Totally confused

tonis
Posts: 2
Joined: Sep 2011
Sep 04, 2011 - 10:03 pm

I had surgery to have my thyroid removed in Feb of this year. They also did a partial dissection of the lymph nodes on the left side of my neck. I just went last week to get an ultrasound done and the right side noe has 2 lymph nodes that one has grown and one has shrunk. I am on Synthroid medication and the doses have been changede 4 times. My levels are very high. I am told it should be .1 and my doctor said mine are 44 (I am not sure if that is 44 or .44) I am asking when I go Tuesday to find out if they want to do a biopsy or surgery again on this other lymph node. I have been keeping a headache, heart racing,and I just dont know what to do.Endo is not making me feel very good whenI ask a question and she tells me she's not sure.. ask your ENT doc.. anyone's feed back would be greatly appreciated.
nasher
Posts: 507
 Joined: Apr 2010
Sep 05, 2011 - 1:43 am
more info would help

yes it takes a while to get your synthroid level sorted out...

yours is probably 44 and yes they want your TSH suppressed or 0.1 probably

Another recommendation is ask them to check what your T3 level is like

Synthroid is T4 (amount of Iodine atoms is the #) and your body converts it to T3 (the active form of thyroid hormone)

what questions have you asked your ENDO and ENT... it sounds to me your endo might be fairly new.

if you ask the questions here maybe you can get better wording or maybe an answer or even give someone else some questions to ask there doctors.

ask for a copy of your lab work so maybe we can help you figure it out.

do you know what type of thyroid cancer you had (there are multiple types) and what is there plan...

Please ask questions so we can help answer them
sunnyaz
Posts: 582
 Joined: Oct 2010
Sep 05, 2011 - 12:13 pm
Confused

Maybe you need an Oncologist at this point. My Endo referred me to an Oncologist after my second surgery because ENT's are not very familiar with how cancer grows and metastasizes. The ENT botched my second surgery so my regular Endo thought it was time for me to change. This is only a suggestion. My Onco specializes in Endocrine cancer and is also my surgeon.

As for the head ache, a lot of us have these after our TT's. Heart racing could be due to your dose of Synthroid. If you are .44 that means you are hype