Sep 04, 2011 - 9:31 pm
7 days ago(Aug 28) I brought my husband to the ER. I noticed his hands shaking on August 12 and he said he was nauseated every AM, but then ate a great supper. August 15, he had me tell
CT scan showed multiple central brain tumors and we left to go to nearby large hospital the afternoon of Aug 28. MRI on Mon Aug 29 showed lots of tumors most consistant with Primary CNS lymphoma. He underwent stereotactic brain biopsy Aug 31 and the sample had to be sent on to Mayo. We still do not know if the sample actually got the tumor or if he will need an open brain biopsy. The Labor Day weekend is delaying the workup. They let me take him home on Friday Sept 2 with an oncology appointment on the 6th which is the earliest the pathology report will be back.
His pain and vomiting began the 28th, the very night he was admitted. The headaches and vomiting were relentless, but after the biopsy those symptoms are better on Decadron. However, he is eating poorly, losing weight, and he has no short term memory. He is rapidly changing to someone who is depressed and demented. I cannot leave him alone. Today he could not open a jello container or figure out how to turn on his grill. I am losing him fast. 7 days ago he was still my husband. I am so very afraid he will die before they even decide what is wrong. No treatment but decadron until diagnosis is firm.