Aug 31, 2011 - 2:53 pm
Hello, this is the first time I'm writing on this site to say my story, my mom's story. I may go all over the place but I need to write and hope someone can let me know I'm not going crazy as I feel I am even though it's my mom suffering. My mom was misdiagnosed approximately 5 years ago as having acid reflux when in fact she had stage IV Thyroid Cancer. Her voice was very hoarse and I had contacted her doctor telling him to put the camera to see what's going on but he assured me that he was the specialist and he is sure it's reflux. I would read on the internet that hoarseness comes from either Thyroid or lung cancer. Anyways, to try to make a long story short, we switched doctors, she had her Thyroid removed, did Iodine Therapy and some radiation and we thought that was the end of that since Thyroid cancer apparently is the 'best and easiest' curable cancer. WRONG... my mom went to Europe and came back not being able to walk. She had a bone scan done and her doctor called me at work to tell me that she has bone cancer (bone metastases) to the hip. He called me as he felt I would handle the news better than my mom/parents. WRONG AGAIN... I almost fainted and I did hyperventilate. My mom and my dad are the world to me. They have sacrificed a lot for me that I can't really explain as it would take days. I have 3 amazing little boys and I've had my share of health problems and they have always been there for me and my family & sister. My mom was put on a chemo pill called Sutent that almost killed her 3 times not kidding. She had brain swelling the last time and she was taken off of Sutent and I changed oncologists as he did not want to listen to me when I told him she is too weak for this dosage. She did radiation but that didn't help. She did a hip replacement in May and since then she is not better. She tries to eat and cannot. She has a cough that never leaves and I know she has a lesion on her lung. She was 150 pounds before all this cancer and now she's frail and 100 pounds. At night when I put my kids to sleep I cry, I try to be strong but I can't stand to see her like this. I love her so very much and as supportive as my husband and friens are they tell me I must accept as it's part of life. Like birth there is death BUT I cannot accept death and I am scared if she goes when she goes, I will never recover. I don't want to make this about me but I wanted to know if anyone out there has the same feelings or am I just selfish. I give my mom her Fragmin injections every morning and it breaks my heart seeing her so skinny and cannot eat because she coughs and chokes. Now I booked an appointment with her oncologist on MOnday to see what he can do. She has bad shoulder pain on her left side and I wonder if the cancer has spread there as well. Thank you for any one that will answer and can relate. Like you all, how I wish I could find a cure to help my mom and everyone with cancer. I hate cancer.