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Recurrence-any suggestions?

tsaikong
Posts: 4
Joined: Aug 2011

On aug 23rd, My pet/ct revealed positive activity in my right pelvic wall area and mri shows mass on right side of pelvis. I am trying to stay positive, but this is my 4th recurrence. Here's my history:mitomycin and 5FU and external radiation in 2005. I was in remission for 2yrs. Colostomy in 2007 at Cleveland Clinic, and I was in remission for another 2.5yrs. Cisplatin and tsxotere and radical resection of tumor/IORT in my right pelvis at Sloan-Keterring on Aug 25,1010;but I was in remission for 1yr. The good news, it has not metastasized or involved my lymph nodes. I feel great,and no pain.I am working and exercising ; but now this , I am in disbelief!!!!! I will be speaking w/my onc soon, but any suggestons would be greatly appreciated.

sephie's picture
sephie
Posts: 514
Joined: Apr 2009

i am so sorry for this. you have been thru it!!! But as you say, no pain. you are still functioning so wait to get the suggestion from docs. Pray Pray Pray. hugs sephie

tsaikong
Posts: 4
Joined: Aug 2011

Thank you, I always thank him for everyday.

mp327's picture
mp327
Posts: 2819
Joined: Jan 2010

You certainly have been through a lot already. While I can't give you any suggestions, I would like you to know that I will keep you in my thoughts and prayers and I wish you all the best. You are working with good news here in that there is no spread, so try to remain positive.

tsaikong
Posts: 4
Joined: Aug 2011

Thank you , it's greatly appreciated.

z's picture
z
Posts: 1250
Joined: May 2009

I'm so sorry for all the recurrances you have had. I can only suggest you go to the rare cancer alliance web site and become a member. There are stage 4 survivors there and 2 that are in a clincal trial. You could put your questions out there and hopefully they will have ideas for you. go to rca I think it takes about 24 hours to be accepted. In the meantime I'm glad your not in pain. Is it at all possible that due to all the surgerys and treatments you have had that this is scar tissue? I hope your oncologist has some answers for you. Lori

tsaikong
Posts: 4
Joined: Aug 2011

Thanks for the suggestion, I began to look at it yesterday. You are right, there's lots of info . I'll see how this can help ne, thank you.

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