Aug 24, 2011 - 10:00 pm
I am posting this in this section because my husband suffers from Liver Cancer and I know that there are plenty of caregivers who read this particular section because they too have a loved one who suffers from this disease!
I have participated and read this page since my husband was diagnosed in 2009. Most of the time it has been helpful to get other opinions, learn more about certain procedures first hand. I hope my posts have been helpful to other people too.
A Caregiver's life is a lonely place. No one really knows except for other caregivers. I am so very frustrated right now that I had to share my feelings with someone.
I am sick of people asking how my husband is, or how are you holding up, or hang in there, or Love and Prayers, and offering "if there's anything I can do just let me know"... I am tired of having to monitor the health care proviers because they don't really care about my husband the way I do.
Everytime I have tried to reach out to someone just to talk they are always too busy... I am tired of hearing how everyone is going on vacation or living their lives while ours has been in Limbo for almost two years. We can't plan anything because we never know if he will feel up to it or if we'll be back in the ER!!
This, by far, has been the hardest thing I have ever done in my life. To watch the man that I have loved and shared my life with since I was 17 years old is so very hard. I am so afraid he will not get to transplant and I will have to watch him deteriorate even more.
Anyone else feel like me?