Aug 16, 2011 - 9:08 am
Our son (age 34, AA3/GBM, dx 4-18-11, surgery removed just enough for biopsy) is about to start his first 5/28 day Temodar treatment. This is after a five-week break from his first 28 day/radiation treatments. During his first time on the Temodar, he tolerated it well, as in no nausea. It was the radiation that hit him really hard. It wasn't until he was off the Temodar for three weeks that his blood counts plummeted, requiring a transfusion. Today he starts the first of his 5-day Temodar treatment.
I've been reading a lot on this list about how many of you had severe nausea with Temodar. Was this with the first 28-day, or on the 5/28? I'm hoping that he will tolerate this second round better, because it is only for five days. However, since the five-day regimen is a stronger dose, I'm concerned that it may be harder this time.
Can anyone tell me if there was much difference in the tolerance level between the 28-day and the 5-day? And how long those side effects lasted once the five-day treatment was over?