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delays in temador
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Aug 09, 2011 - 3:00 am
Well we again are behind in starting the five days temador. A whole month behind, but today is the day. Praying that it will go well this time. This is only the second round of the five day. We dont even know whats going on in her brain. So thankful that there are no deficits, six months in to this nightmare. I read about so many people on here that cant move one side of their body can walk etc. Wondering what this means. We have not had many things go right with this at all. Sepsis, two ports gone bad, having avastin taking away, low platlets,decreased and delayed doses of temador,neutropenic,three hospital stays and lots of tears to name a few things that has gone wrong. |
Joined: May 2010
Hi there, I totally know what your going through. When my daughter was diagnosed with brain cancer in March 2010 we were devestated. She had brain surgery 4 days after, then 4 days later another surgery to remove more tumor. She started on temodar and radiation. Her blood counts were very low on temodar and she would have to stop until the counts went back up. She did 35 readiation treatments and the MRI to follow showed tumor growth. 3rd brain surgery to remove new tumor growth. Brought her for 2nd opinion and moved to that hospital. 4th surgery, to put in her port and to do spinal tap to r/o medulloblastoma.
shortly after that she had an infection in her incision site from reaction from something used in 2nd surgery at old hospital. 5th surgery to remove the stuff that her body was rejecting. It has been a long hard road and just when you think things are going in your favor, something else happens. I cried almost everyday for the first year. I still cry.
It amazes me to see how strong my daughter is and I wonder if I would be that strong. I pray everyday for strength so I can be strong for her but when I am alone, it all comes out. It is hard to be strong all the time
Joined: May 2011