Aug 04, 2011 - 6:30 am
I found out yesterday that I have a GIST (gastro intestinal stromal tumor) attached to my stomach and a neuroendocrine carcinoid on my duodenum, Both are very rare types of cancer and my doctor said it is “very unique” to have both of them. It took awhile to get the final diagnosis (my doctors got a second opinion from the Mayo Clinic).
I have to have another scan in Nuclear Medicine--I can’t remember the name of it. And I have to see a surgeon who specializes in cancer surgery. I will be making the appointments today.
The one on my duodenum is infamous for metastasizing to other parts of the body and this scan will show whether or not it has spread. Two lymph nodes close to my aorta are slightly enlarged.
Anyone else here dealing with either of these cancers?