I Start Radiation Tomorrow (8/1) and Have Questions...

LoveBabyJesus
LoveBabyJesus Member Posts: 1,679 Member
Hello my ladies,

I start radiation tomorrow - excited to use my other weapon. I just wanted to know if you worked during rad. And how long it took for your skin to go wild. Lastly, any suggestions on aloe products for skin care, please? I was told to use it everyday to protect my skin from getting burned.

Thank you!
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Comments

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    I normally don't chime in on a subject I've never had
    any experience with .. However, I just wanted you to know .. that I will keep you close in my heart -- positive vibes, and prayers for you.

    Good luck .. Maybe you can look back a page or two and see Butterflylvr's posting .. entitled .. 'The Radiation Room'.

    Gentle Hugs,

    Vicki Sam
  • MAJW
    MAJW Member Posts: 2,510 Member
    VickiSam said:

    I normally don't chime in on a subject I've never had
    any experience with .. However, I just wanted you to know .. that I will keep you close in my heart -- positive vibes, and prayers for you.

    Good luck .. Maybe you can look back a page or two and see Butterflylvr's posting .. entitled .. 'The Radiation Room'.

    Gentle Hugs,

    Vicki Sam

    Don't use ANYTHING..
    Without your radiologist consent.....and never, ever put anything on the area within 4 hours of treatment! I was given the creams to use ...and use them faithfully...I didn't even turn pink til the end of the third week and had no problems...the last 7 boosters did turn me red...And I did experience fatigue...

    Wishing you the best as you start the last leg of the journey!
    Hugs, Nancy
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    I worked during my first
    I worked during my first rads treatment in 1987. In 2009, another round and I worked around the treatment, scheduling my treatments on my off days.

    I only had a mild sunburn the first time and, the second time, just a little queasiness. Nothing near as bad as chemo for me.
  • mamolady
    mamolady Member Posts: 796 Member
    Radiation Room
    There is a thread called Radiation Room
    Personally I was told to use the following:
    1. Dove sensitive skin soap, only your hand to wash.
    2. Thin layer of Aloe Trader Joe's has a 99.9% aloe.
    3. Then a thin layer of Eucerin or Aveeno Daily moisturizer.
    The moisturizing stuff was suppose to be 3 times a day. Tom's deodorant is the only one they ok'd.

    Once my arm pit area blistered, I was told to use Aquaphor and Neosporin alternating 3-4 times a day just on that area. That was about mid week 4 ish. I had 25 regular days then 5 boosts to the incision. (6 weeks)

    My RO felt that I should use the lightest protection for as long as possible to allow my skin to heal itself. She said in the long run it was better for my skin.

    I had a mastectomy so I was told the skin may burn more. I work my scrub tops because they didn't have any sleeve seams to bother the burn area. I finished on June 29th and my skin is completely healed. It has been 2 weeks since it was even uncomfortable.

    It was really not bad. The techs I had were awesome, the other women we fun to chat with. The time flew by.

    Cindy
  • Tux
    Tux Member Posts: 544
    MAJW said:

    Don't use ANYTHING..
    Without your radiologist consent.....and never, ever put anything on the area within 4 hours of treatment! I was given the creams to use ...and use them faithfully...I didn't even turn pink til the end of the third week and had no problems...the last 7 boosters did turn me red...And I did experience fatigue...

    Wishing you the best as you start the last leg of the journey!
    Hugs, Nancy

    I agree with the above
    I agree with the above poster--do not put anything on unless directed by your rads staff.
    Follow their directions to the letter. I worked the entire time (I was a middle school teacher); missed no days. My school let me leave early in the PM to get to rads each day.
    I bought cotton bras in slightly larger sizes from Just My Size. I had some burning the last week, but I made flannel squares from white flannel from the fabric store and I wore those under my bra. I was also given Domeboro soaks to use near the end also.

    I am rather "generous" in size & I must wear a bra. The rads nurse said that I might have trouble wearing a bra toward the end, but I was OK with the flannel padding.

    I did not have too much trouble with fatigue, but I did have nausea (perhaps caused by fatigue). Good luck with this treatment--it will be over before you know it!
  • cctiz
    cctiz Member Posts: 47
    aloe vera
    If you have a whole food store near by or any natural store that sells the aloe vera juice pure or raw is highly recomended, if there is burning apply compresses, massage and leave it there, once again, everybody is different, i had side effects right off the bat, burning and an exhausting weird sensation, lack of energy, i kept working every day - but it's doable, aloe vera in the most natural form HELPS! and you are not gonna see any red or dark marks at the end of the treatments
    Good luck!!!
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    Wow ... this was fast!
    As always, THANK YOU for such quick responses. I will do as you all suggest. Need to get to a store tomorrow to get ready. I will consult Dr. before doing anything.

    Thank you.
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    VickiSam said:

    I normally don't chime in on a subject I've never had
    any experience with .. However, I just wanted you to know .. that I will keep you close in my heart -- positive vibes, and prayers for you.

    Good luck .. Maybe you can look back a page or two and see Butterflylvr's posting .. entitled .. 'The Radiation Room'.

    Gentle Hugs,

    Vicki Sam

    :) Thank you Vicki.

    :) Thank you Vicki.
  • skipper54
    skipper54 Member Posts: 936 Member

    Wow ... this was fast!
    As always, THANK YOU for such quick responses. I will do as you all suggest. Need to get to a store tomorrow to get ready. I will consult Dr. before doing anything.

    Thank you.

    Always ask first
    before using anything they don't give you. I did well until week 5 when I started to burn and peel. Even after you're done it may get worse for a while but it's all manageable. It was suggested (and I did it) that you get some men's white cotton t-shirts and wear them inside out. It protects your clothes from the staining of the creams and inside out means no seams to rub the burns. Air is also good so if you can go topless at home do so. I'll pray that all goes well for you - please keep us posted, and fight like a girl!
  • lynn1950
    lynn1950 Member Posts: 2,570
    Hi - Check with your
    Hi - Check with your radiation oncologist before you use anything on your skin. The cancer center I went to gave me Aquaphor lotion and I had little problem with burning. Towards the end I used a lotion with lidocaine as my skin began to itch. You don't want the lotion on your skin during the actual radiation, but you can slather it on afterward.

    I worked through both chemo and rads. By the end of rads, I was pretty tired. You'll be surprised at how quick the daily treatment is!

    xoxoxox Lynn
  • renee616
    renee616 Member Posts: 181
    Hi!
    I have 2 days of

    Hi!
    I have 2 days of radiation left. I wouldnt advise using any lotion untill your Dr or tech says too. my breast got a little red, but my collarbone/neck blistered in the 5th week. Only then Did they tell me to use aquaphor. Its really all about the Dr. I do not work, but see no reason why I wouldnt be able too. I had breast reduction surgery last week on Thursday then went right back for radiation the very next morning. Radiation made me want to take a nap exsp. in the first few days, but now I just try to get a cat nap & a good nights sleep. My burn is itchy and alittle uncomfortable, I'm just looking forward to being done & letting everything heal finally! Good luck!
    Renee
  • renee616
    renee616 Member Posts: 181
    renee616 said:

    Hi!
    I have 2 days of

    Hi!
    I have 2 days of radiation left. I wouldnt advise using any lotion untill your Dr or tech says too. my breast got a little red, but my collarbone/neck blistered in the 5th week. Only then Did they tell me to use aquaphor. Its really all about the Dr. I do not work, but see no reason why I wouldnt be able too. I had breast reduction surgery last week on Thursday then went right back for radiation the very next morning. Radiation made me want to take a nap exsp. in the first few days, but now I just try to get a cat nap & a good nights sleep. My burn is itchy and alittle uncomfortable, I'm just looking forward to being done & letting everything heal finally! Good luck!
    Renee

    forgot to say that friday
    forgot to say that friday they told me to use triple antibiotic cream, it really helped alot over the weekend.
  • renee616
    renee616 Member Posts: 181
    renee616 said:

    forgot to say that friday
    forgot to say that friday they told me to use triple antibiotic cream, it really helped alot over the weekend.

    ps....I dont have to get
    ps....I dont have to get boosts. just 30 reg treatments. i wonder why some do and some dont?
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    MAJW said:

    Don't use ANYTHING..
    Without your radiologist consent.....and never, ever put anything on the area within 4 hours of treatment! I was given the creams to use ...and use them faithfully...I didn't even turn pink til the end of the third week and had no problems...the last 7 boosters did turn me red...And I did experience fatigue...

    Wishing you the best as you start the last leg of the journey!
    Hugs, Nancy

    Like everyone said, only use
    Like everyone said, only use what your rads oncologist says to use. However, you can always ask him about some cream that a pink sister on here wrote about and see what he says.

    Get lots of rest as rads will exhaust you.

    No creams on your skin at least 4 hours prior to treatment.

    I used Aquaphor to keep my skin moist and a prescription of Biafine for the dark pinkness I got. ( almost burnt, but, not quite )

    When you get boosters, the rest of your skin will start to heal.

    I didn't wear a bra, and, definitely no under wire bra if you wear one. I either went braless or wore a camisole.

    I wore long pants and socks as the rad room was freezing. Ask for a blanket too if you need one.

    I used Dove white soap on my skin and be very gentle. Do not rub it.

    I started getting pink about the end of the 3rd or start of the 4th. I also had boosters at the end right at the tumor site.

    I know I am forgetting something. Just ask anything..we will get you thru it!

    Good luck,

    Sue :)
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    renee616 said:

    ps....I dont have to get
    ps....I dont have to get boosts. just 30 reg treatments. i wonder why some do and some dont?

    I wonder too! I am also
    I wonder too! I am also getting 21 instead of 25 or more. I will ask.

    Today they did some xrays to compare to the simulation. I officially start tomorrow morning.

    Good luck to you. You are almost done!!!!
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member

    I wonder too! I am also
    I wonder too! I am also getting 21 instead of 25 or more. I will ask.

    Today they did some xrays to compare to the simulation. I officially start tomorrow morning.

    Good luck to you. You are almost done!!!!

    You've already gotten great
    You've already gotten great advice! Wishing you good luck tomorrow!


    Jan
  • gagee
    gagee Member Posts: 332
    Just be sure to ask onc
    Just be sure to ask onc before you try anything. Some say to do one thing and another will say something else. Be sure to let them know if you are having or feeling anything that they can help you with. I don't want to worry you but I am one of the ones that had a terrible time with (33) rads. It took me 9 months to recover. That is very unusual so don't worry ( I didn't tell you this to worry you) as we are all different and I guess I am very different. :):) I finally can say I feel so much better but still get so tired. Just happy to have heard the words they got it all. My thoughts and prayers are with you. Once rads are over you will probably say "that wasn't so bad".
  • jnl
    jnl Member Posts: 3,869 Member
    gagee said:

    Just be sure to ask onc
    Just be sure to ask onc before you try anything. Some say to do one thing and another will say something else. Be sure to let them know if you are having or feeling anything that they can help you with. I don't want to worry you but I am one of the ones that had a terrible time with (33) rads. It took me 9 months to recover. That is very unusual so don't worry ( I didn't tell you this to worry you) as we are all different and I guess I am very different. :):) I finally can say I feel so much better but still get so tired. Just happy to have heard the words they got it all. My thoughts and prayers are with you. Once rads are over you will probably say "that wasn't so bad".

    Good luck!
    Good luck with your rads appointment!



    Hugs, Leeza
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    jnl said:

    Good luck!
    Good luck with your rads appointment!



    Hugs, Leeza

    Thank you!
    I had my first

    Thank you!

    I had my first treatment today. :) It felt emotional.
  • SC girl
    SC girl Member Posts: 1
    Ritzy said:

    Like everyone said, only use
    Like everyone said, only use what your rads oncologist says to use. However, you can always ask him about some cream that a pink sister on here wrote about and see what he says.

    Get lots of rest as rads will exhaust you.

    No creams on your skin at least 4 hours prior to treatment.

    I used Aquaphor to keep my skin moist and a prescription of Biafine for the dark pinkness I got. ( almost burnt, but, not quite )

    When you get boosters, the rest of your skin will start to heal.

    I didn't wear a bra, and, definitely no under wire bra if you wear one. I either went braless or wore a camisole.

    I wore long pants and socks as the rad room was freezing. Ask for a blanket too if you need one.

    I used Dove white soap on my skin and be very gentle. Do not rub it.

    I started getting pink about the end of the 3rd or start of the 4th. I also had boosters at the end right at the tumor site.

    I know I am forgetting something. Just ask anything..we will get you thru it!

    Good luck,

    Sue :)

    Explanation of terms

    I am just about to start radiation.  What are "boosters" that I see referenced?  Also, my RO suggested 99% aloe.  Does anyone recommend any specific brands or products, or just any pure aloe?

    Thanks, having sisters out there really helps make the process easier!