Gas up the bus, girls!

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MAJW
MAJW Member Posts: 2,510 Member
in Breast Cancer #1
All aboard! Oh wait, that's what a train guy says.....lol. Anyway....Having a CTscan at 7:00 am tomorrow....this is after my second upped dosage of the clinical trial, oral chemo....which kicked my butt big time! This will show if it's working.....I have to believe it is...both visually and by being able to feel the two places, they appear, to me, to be smaller...no idea of the other nodes that I can't feel....sooooo as long as there is no progression of the disease I will remain on this drug....My oncologist may back the dosage off as the reports he's getting from the trial is this upped dosage is kicking everyone's butt! So we'll see....but it put me down for 10 days as opposed to the first one just making me feel crappy for about 5 days...not really bad at all...will have results on Wed and if it's a go, will take the chemo on Thursday......

Just thinking that since my appointment is soooooo early, I don't want you girls to have to get up that early, so I'll have the hubby take me....lol
I believe Laurissa has an appointment later in the day so we'll just hop the bus for her instead.....plus I have to get up at 5 to start drinking that delicious, white, thick CHALK! Yuk.....

Hugs to all,
Nancy

Comments

  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    #2
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    I get shotgun and I'm
    I get shotgun and I'm bringing my cafe au lait and beignets! I'm all in!!!
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #3
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    I'm an early bird I'll ride
    I'm an early bird I'll ride along.

    Denise
  • chenheart
    chenheart Member Posts: 5,159
    #4
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    We will be making multiple
    We will be making multiple stops, it seems~ busy bus these days! CypressCynthia and I both have apointments tomorrow~I get my first infusion of Zometa and my first Faslodex injection. On Thursday I had HALF A GALLON of swamp-water drained from my lung ( it sure looked like swamp water anyway~ I wish I had thought to check for tadpoles or vegetation as well!) Normal fluid levels are between 2 and 3 TEASPOONS...no wonder I cough so much, huh Kindreds?! The cough has not quite disappeared, but Reggie says it is noticably better~ I guess I was hoping for the proverbial miracle!

    So Kindreds~ those going in for consults, treatment plans, treatment,or "just" for the fun, wine, brownies, jokes and camaraderie of all of us~ I thank you for being such an incredible group ~ no doubt we could do this alone if we had to...but being together just makes the journey so much easier, doesn't it?! I love you, Kindreds!

    Hugs,
    Chen♥
  • natly15
    natly15 Member Posts: 1,941
    #5
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    disneyfan2008 said:

    I'm an early bird I'll ride
    I'm an early bird I'll ride along.

    Denise

    Nan I'm not an early bird,
    Nan I'm not an early bird, but I'll get up at 4 if necessary to cheer you on. Hope your hubby doesn't mind us pinks stealing some of his thunder. I'm bringing fresh brewed maxwell house and my home made Italian biscotti cookies. Hoping CC brings some extra beignets! Sounds like that kick butt chemo is doing the job, I pray it is. Hugs
  • camul
    camul Member Posts: 2,537
    #6
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    The magic bus can make many stops MAJW
    So I will be there, wishing the best for all of you and will bring the Mimosa's. As long as we are all up and on the bus, we might as well celebrate life as we all know it!

    See you in the morning.

    ~Carol
  • debi.18
    debi.18 Member Posts: 850 Member
    #7
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    chenheart said:

    We will be making multiple
    We will be making multiple stops, it seems~ busy bus these days! CypressCynthia and I both have apointments tomorrow~I get my first infusion of Zometa and my first Faslodex injection. On Thursday I had HALF A GALLON of swamp-water drained from my lung ( it sure looked like swamp water anyway~ I wish I had thought to check for tadpoles or vegetation as well!) Normal fluid levels are between 2 and 3 TEASPOONS...no wonder I cough so much, huh Kindreds?! The cough has not quite disappeared, but Reggie says it is noticably better~ I guess I was hoping for the proverbial miracle!

    So Kindreds~ those going in for consults, treatment plans, treatment,or "just" for the fun, wine, brownies, jokes and camaraderie of all of us~ I thank you for being such an incredible group ~ no doubt we could do this alone if we had to...but being together just makes the journey so much easier, doesn't it?! I love you, Kindreds!

    Hugs,
    Chen♥

    I'll be there
    I'll be there with a cooler filled with Birthday Cake Ice Cream. Since it's so hot and we have several stops, thought ice cream sounded good - plus, I am now addicted to it, not sure I could go all day without it.

    Well said Chen!! This awesome group of wonderful supportive friends here make it so much easier.

    Hugs,
    Debi~
  • laurissa
    laurissa Member Posts: 773
    #8
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    Nancy
    I hope and pray for a great ct scan. So many tests and waiting.
  • grams2jc
    grams2jc Member Posts: 756
    #9
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    I will be ready
    I get up at 4:15 to head to work so this will be no problem, I have the silly string ready!

    Jennifer
  • lynn1950
    lynn1950 Member Posts: 2,570
    #10
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    I'm comin'! Any special
    I'm comin'! Any special music I can bring? xoxoxoxo Lynn
  • gami43
    gami43 Member Posts: 281
    #11
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    lynn1950 said:

    I'm comin'! Any special
    I'm comin'! Any special music I can bring? xoxoxoxo Lynn

    I'll be hopping on, I don't
    I'll be hopping on, I don't care how early it is! So Nancy, Chen,
    Laurissa and CypressCynthia get on that bus and let us surround
    you with good vibes, hugs and love. Nancy I guess we better let
    your husband on too; wouldn't want him to feel left out.

    Teresa
  • fauxma
    fauxma Member Posts: 3,577 Member
    #12
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    gami43 said:

    I'll be hopping on, I don't
    I'll be hopping on, I don't care how early it is! So Nancy, Chen,
    Laurissa and CypressCynthia get on that bus and let us surround
    you with good vibes, hugs and love. Nancy I guess we better let
    your husband on too; wouldn't want him to feel left out.

    Teresa

    Nancy,
    Miss a bus ride and
    Nancy,
    Miss a bus ride and all that racous fun, no way. And early, smearly, I will be there. You know our motto, never rain, nor wind nor sleet nor hail shall stay the courier, Oh wait that's the post office. But you get the idea. We will be there, morning, noon, or night and multiple trips or trips that overlap. That's the beauty of our bus.
    Good Thoughts dear to you and all that are having tests, check ups, and whatever else needs our support.
    Stef
  • skipper54
    skipper54 Member Posts: 936 Member
    #13
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    fauxma said:

    Nancy,
    Miss a bus ride and
    Nancy,
    Miss a bus ride and all that racous fun, no way. And early, smearly, I will be there. You know our motto, never rain, nor wind nor sleet nor hail shall stay the courier, Oh wait that's the post office. But you get the idea. We will be there, morning, noon, or night and multiple trips or trips that overlap. That's the beauty of our bus.
    Good Thoughts dear to you and all that are having tests, check ups, and whatever else needs our support.
    Stef

    early bird
    I'm usually up early so I"m even willing to drive. And I'll bring the shrimp dip and crackers for later in the day. We can't miss anyone's trip!
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    #14
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    I'll be up early so I can
    I'll be up early so I can come too. :)
  • mamolady
    mamolady Member Posts: 796 Member
    #15
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    debi.18 said:

    I'll be there
    I'll be there with a cooler filled with Birthday Cake Ice Cream. Since it's so hot and we have several stops, thought ice cream sounded good - plus, I am now addicted to it, not sure I could go all day without it.

    Well said Chen!! This awesome group of wonderful supportive friends here make it so much easier.

    Hugs,
    Debi~

    Captain America Icecream Cake
    Debi, can you pick up the Captain America Cake at Baskin Robbins? That or the Oreo Cookie cake.
    I can bring the chocolate chip cookies. It is not to hot to bake here......
    Cindy
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    #16
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    LoveBabyJesus said:

    I'll be up early so I can
    I'll be up early so I can come too. :)

    I'll be up early too so we
    I'll be up early too so we can make the necessary stops. It'll be a road trip this time!
    Best of luck to all of you for great results.
    Hugs,
    Wanda
  • Alexis F
    Alexis F Member Posts: 3,598
    #17
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    disneyfan2008 said:

    I'm an early bird I'll ride
    I'm an early bird I'll ride along.

    Denise

    Good luck tomorrow Nancy! I
    Good luck tomorrow Nancy! I am in!


    Lex
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #18
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    Lighthouse_7 said:

    I'll be up early too so we
    I'll be up early too so we can make the necessary stops. It'll be a road trip this time!
    Best of luck to all of you for great results.
    Hugs,
    Wanda

    Chen, C.C., Nancy and Laurissa .. Our Pink bus
    is gassed up .. Coffee Barista set up in the back, and a portable poker table secure for any Sister in PINK -- interested in a game or two of craps, or twenty-one. I have set up 2 tables for those Sisters interested in a deep tissue massage .. Gwendolyn and Greta can be picked up in a blink of an eye. Rosie and Ellie are ready for those WARRIORS wanting a mani -pedi ..

    Wishing upon a star - that each and every one of you Kindred Spirits - be provided with good news -- that you so deserved! May a miracle be granted to each of you.

    Hugs, Love, Hope, Strength and Courage - my dear Sisters.

    Vicki Sam
  • GreeneyedGirl
    GreeneyedGirl Member Posts: 1,077
    #19
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    VickiSam said:

    Chen, C.C., Nancy and Laurissa .. Our Pink bus
    is gassed up .. Coffee Barista set up in the back, and a portable poker table secure for any Sister in PINK -- interested in a game or two of craps, or twenty-one. I have set up 2 tables for those Sisters interested in a deep tissue massage .. Gwendolyn and Greta can be picked up in a blink of an eye. Rosie and Ellie are ready for those WARRIORS wanting a mani -pedi ..

    Wishing upon a star - that each and every one of you Kindred Spirits - be provided with good news -- that you so deserved! May a miracle be granted to each of you.

    Hugs, Love, Hope, Strength and Courage - my dear Sisters.

    Vicki Sam

    Seattles Best? or Starbucks?
    I am happy to bring the coffee~~
    Nancy I hope your appt goes smoothly, hoping for excellent results!
    Melanie
  • butterflylvr
    butterflylvr Member Posts: 944
    #20
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    GreeneyedGirl said:

    Seattles Best? or Starbucks?
    I am happy to bring the coffee~~
    Nancy I hope your appt goes smoothly, hoping for excellent results!
    Melanie

    Hey.. wait for me. I know..
    Hey.. wait for me. I know.. I know... late again. Yawn... I think I'm awake now though. Can I ask a special favor to swing over to my RO about 11:45. He wants to check to see how I'm healing up from radiation. I promise not to keep you girls long. Good luck to all my pink sisters getting tests and scans today. Boy this bus is crowded... LOVE IT !!!

    Hugs,
    Lorrie
  • Sunrae
    Sunrae Member Posts: 808
    #21
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    butterflylvr said:

    Hey.. wait for me. I know..
    Hey.. wait for me. I know.. I know... late again. Yawn... I think I'm awake now though. Can I ask a special favor to swing over to my RO about 11:45. He wants to check to see how I'm healing up from radiation. I promise not to keep you girls long. Good luck to all my pink sisters getting tests and scans today. Boy this bus is crowded... LOVE IT !!!

    Hugs,
    Lorrie

    All I want to know is when
    All I want to know is when the pink bus unloads everyone is happy and well and there have been a busload of miracles. I missed the bus, just got out of the hospital myself again, had a heart problem show up. Hope we don't have to keep getting on the pink bus too much and can just keep using the pink dumpster getting rid of all our problems.

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