I am 9 months post treatment for anal canal cancer. Can anyone tell me when and if the anal mucous discharge ends? I am sooo tired of having to wear a pad 24/7
i am 25 months post tx. i just had a huge discharge this am . i have one every month or so . it will slow down but not sure when it stops completely . sephie
Thank you so much for the light at the end of the tunnel. At least now I can hope. Other than the discharge I have few problems. I ended up with a fistula that I am having repaired in Sept. I also still have occasional bouts of controllable diarrhea. I guess that is not so bad for a tradeoff of being alive
This is how I refer to my innards sometimes! I, on rare occasions, still have a bit of mucous, even after 3 years. Diarrhea hits me once in a great while, usually after eating too much salad or something my cranky bowels dislike. Hang in there, and like you say, these are things that can be dealt with because we are still alive!
About 9 months post treatment. Huge issue with discharge. Absolutely no explanation to this issue. And all my doc's including GI specialist do not have any suggestions. All are of the same conclusion "quit complaining you are alive". Of course they state that much more diplomatically. I carry spare underware -EVERY WHERE I go. And I suggest we all invest in Hanes, Northern Toilet paper and Baby wipes stock. We should be rich in no time!
But really the discharge makes my bottom quite sore due to all the dampness. I just can not keep that area completey dry. Doc's suggest powder or cornstarch. I keep that area very clean but it is still a problem. It's like a newborn baby's butt (from the radiation burns) so I have also tried a barrier like A&D ointment. For me personally nothing helps. My discharge is constant it seems like. If anyone has a suggestion please help.
But as I will always end my post with .....we are still alive.
And yet my best advise is never trust a Fart! ( Ok that was a bit crude but true)
Funny you should bring this up. I haven't had much mucous at all after treatment. . .until today! What's up with that? :0 It accompanied gas. I didn't eat breakfast, so I couldn't attribute it to that. I did drink 3 beers last night which I never do. Hmmmm.
stated very well. I am post tx 25 months and still have discharge once or twice per month.after a BM or discharge, i always wash the area with baby wash or sometimes just warm water( I lean over under my tub faucet or use squirt bottle) and then use extra soft cloth(shammy cloth like they use to wash fine cars) to pat dry then hair dryer on cool. then I put a little aquaphor to help with soreness. i have just read on here about Balneol. i got some. perhaps that would help you after the discharge. sephie
I know what you meaing about passing gas. Make sure and never do it in public if at all possible because you are never certain that it is just gas.
I used a thin sanitay pad to line the back side of my underwear. This helped. It gave me a little more confidence and was easy to change rather than going through multiple changes of underwear daily.
Yes, I agree with your advise - never trust a fart. I'm 3 months post treatment and have mucous discharge. I just discovered that Cottonelle has individual packets - handy to keep in one's purse. I found Sam's Club brand of baby wipes to be the best and least expensive. My 3 month old great niece and I use the same brand - LOL. When I'm home I run (not literally) in boxer shorts so air can get to the area.
I agree with you never trust a fart lol.i,m 9 months out .I just started getting mucous clear with some blood in it.I have wipes in my purse and pads & butt cream at all times .I need to get me some boxer shorts .What do you buy are they mens?
Yes, I've bought men's boxer shorts. I get the baggy leg kind not the form fitting ones. I also found women's sleepwear shorts that are comfy. Try J.C. Penneys. Just something that is loose. Even though my burns are healed I still wear them around the house. During treatment when the crease of my legs were raw, I didn't want anything touching them and thus the boxer shorts.
I am 3.5 weeks out from treatment. I have not seen any mucous - and I still have to take miralax every day (just one dose though instead of two) so I won't get "stopped up"! Has anyone ever heard of having this problem post radiation/chemo? Or, am I the only one? :(
I think the mucous started around 6 months out with me. For a while (like 3 months) it was really bad - staining undergarments and uncontrollable. I did butt clenching exercises that I think helped resolve things - those and time. Kinda like kleigle exercises but focussed on the back end.
Uncontrollable gas, too, has been an ongoing problem (and with the mucous, it can make for quite a lovely concert!). Conditions are much better now at almost 3 years out. Not completely though - I still get up out of a chair slowly till I know what the situation is. :)
I still have issues with constipation, but not nearly as bad as prior to treatment. I take Colace and that seems to help a lot. I drink more fluids than I used to as well.
it sure makes yoga and Pilates class entertaining! 'Roll like a ball' takes on a whole new meaning!
Are you still on pain meds or taking calcium? All of the hot flashes I've had since ending treatment has contributed to the constipation challenge for me. I drink TONS of water and green tea and take fish oil daily which has eliminated the constipation issue. Don't worry about the mucous!!!
No, I am not on pain meds. I do take a calcium (600 mg only) once a day. I guess I could stop that. I will be more diligent with the fish oil too. As far as hot flashes, I was put on low dose hormone replacement for hot flashes prior to diagnosis. My GI doc 9who found my tumor) said my constipation was because I have a "very redundant colon" - so he wasn't surprised that just one dose of miralax was not enough. I just thought that I might even out and be more normal than constipated because of treatment. But, hey, with the miralax I at least get to go everyday now - which is a huge improvement!! :) Thanks for the sugesstions, Angela.
You're only a few weeks out of treatment right? You may still even out after some time goes by. Things take quite a while to take effect. Your body's still going through adjustments and probably will be for several months. I had chronic constipation prior to treatment and it took, oh, I think about a year before things settled down. Now the constipation only comes when I eat things I know I shouldn't (like doughnuts - which I ate yesterday, doh!).
My mom has a redundant colon - first time I had ever heard the term. I'll have to tell her your description about the sausage tubing - she'll love it, haha!
have alot of mucous discharge, at least 3 to 5 times a day and gas like there is no tomorrow. I almost have the times down that it happens so luckily at home or in my office with nobody around. Never before did I have any of this prior to treatment. Onocologist has no idea why it is still like it is so just dealing with it until he figures it out or it goes away.
Mine started a few weeks after treatment stopped. I did some research it is mucositis and is caused by radiation and chemo induced inflammation of the digestive tract. mine is currently leaking from my bum and a fistula in the peritoneal area. I am having surgery on the 2 of Sept. to repair the fistula. As far as farts go there is no such thing as a safe one LOL. I found that wearing a thin sanitary pad usually does the trick, but since I leak goo 24/7 I must always have a pad on it sucks.
I want to wish you the very best with your surgery on September 2nd. I hope all goes well and that you'll let us know how you're doing.
Thanks for the fart advise! :) I will be on the lookout for the mucous. I hope all goes well with your surgery on the 2nd.
Thank you for making me laugh. But how true it is. I carry a bag with extra underwear, pants, wipes, squirt bottle and my own toilet paper. I was at a convention at the beginning of treatment and out of 42 stalls- I go in to the one without toilet paper.
I have an extra change of clothes in my locker at work in case of what I refer to as a blow out. If it's really bad I leave work and go home to shower off and change. I have had to do so 3 times since Feb. I am so fortunate to have a great place of employment. They have been wonderful from the get go. It seems to be getting better as time passes but I am still afraid to go too far from home. If the surgery repair goes well I will have only the back side to deal with, I guess that would be a 50% drop in incidences. LOL. Thank you to everyone for the well wishes. I am so glad to have people to talk to that know how it is.
Hello...I'm a year post treatment - hit that milestone three days ago...and yes, every now and then I have this issue. I remember a few months post treatment when someone else mentioned they had this and another member called it 'whale snot' -- well, I experienced that a few months later and my comment then was "holy cow...it DOES look like whale snot!" -- happens to me now and then - not sure why,doesn't correlate to anything I've eaten or had to drink. Take care. marilyne
Yes my discharge did not start until I began to heal. Perhaps 4-6 months after radiation. I can't really remember exactly but I know it was not immediate. I also had constipation issues after radiation stopped and still do off and on. Again I use OTC laxitives and watch my diet very closely. The only bad thing about the laxitives is for me personally it starts a cycle of imodium then laxatives and on and on. Whale snot....ewwww. But funny. Not sure what seems to cause that either. Geee does the fun ever stop. Not complaining though I am thankful to be alive and healthy again.
Wow, that's awesome! I didn't realize your anniversary was coming up. I hope you are doing well and I wish you many, many more anniversaries!
You guys are too funny! I will have to be on the lookout for "whale snot" in a few months. I'll be sure to pack extra undies. My husband just asked me if I was crying (again) as I covered my mouth, but I was just trying to not bust out laughing about the "whale snot"!! I really appreciate the humor! :)
I can't remember when the mucous discharge started for me but I am 26 months post treatment and still have times when I have it. Not a lot but it happens and my colo rectal doctor told me over and over again that it is radiation damage. He said that it should go away at some point but doesn't know when.
I just wanted to send you congrats on your 1 year out......That is wonderful! I wish you many, many years of NED!
Hey Y'all, I haven't been on in a while, but I do have questions. I've had the discharge for over a year now, the gas, the bouts of pooping all over myself. Now I've got the bloating. Have had it since May of this year when they tried an experimental chemo on me called Atgam. It is painful. I can't eat or drink anything. I look, and feel like I'm 9 months pregnant. I had my stomach drained 2 wks ago and they took out 2 liters if fluid. I went back to my onc and she set up an appt for me with a gastrowhatever doc, but that's 6 wks away. I'm gonna call her tomorrow and see about setting an appt for more drainage in the am. Has anyone else experienced this? Thanks, Melodie
Thank you for warning me about the mucous discharge. It happened first time this am. So glad I was aware. Thanks ~Carol
Sorry about that nasty little issue you are experiencing, dubbed "whale snot" per this web site. But of what I can tell this seems to be a healing process. Perhaps it's a good thing.
I have been so excited for the last 3 days or so ---- the snot has finally slowed down. Whahoo....should I go buy some new underware? Don't know if that is a factor of my diet, or what I should contribute the change to. But It is a welcome change!!!!!!!!
And as always, I will end my post...just happy I am alive and healthy.
By the way who ever dubbed this issue "whale snot" I am just curious do whales really have snot? tee hee.
We have Winnie to thank for coming up with the term "whale snot."
Yesterday at work, wearing my new Antonio Melani pant suit for the first time, I 'whale snotted' (notice I used it as a verb) in my pants. Thankfully, it wasn't much and it's clear and doesn't smell like poop . . . perhaps whale snot's only redeeming qualities.
Very funny! Winnie would like to know that her word has been used as a verb. lol
Not sure if I should be happy or sad for you. As I said I beleive this is a healing response. So if that is the case, congrats girl. Now you know my advise about never trust a fart...don't trust whale snot either. Unfortunately I wear scrubs to work (very thin and unforgiving) and I agree for the most part the "snot is clear and un-frageranced" however every once in a while, it will leak thru your clothes. I don't want to be negative but if this side effect has started with you, wear some protection. I sure would like to know what this side effect is all about and how long it will last. Or even how I can controll it. Whatever...preperation seems to be key here.
mine does have a smell, unfortunately but we all have to deal with ugly issues. sephie
I've been whale snotting infrequently since treatment ended in Jan. It's not a concern for me. If it's the worst thing that happens to me this week, this month or this year . . .I'm aaaaaaalllllll good! :) After winning a battle with anal cancer, a little discharge isn't going to get me down!
anal mucus discharge started for me around the 5th month time frame after treatment ended. do you ever see specks of blood in the mucus? I have mucus generally an hour or so after my 1st BM of the day ... sometimes I see old blood and specks of red blood ... small amounts...mostly it is a clear/brown color like stool about a tablespoon or so however have never actually measured it!!! yuk :). curious about your experience. sorry about the details however no one understands these things like we do! It is sometimes comforting that what I experience is in some way similar to others on this site.
I have mucous occasionally, but have never noticed specks of blood in it. However, I do notice that sometimes it has a pinkish tinge, indicating to me that there's probably some blood within it. Most of the time it will just be a brownish color. I'm 3 years out from treatment.
I have't had much mucous .I got done with my treatments in Jan 2011. Shirley
I didn't have much either, maybe I just didn't notice it. I did notice it one time, but if there were other times I just didn't know. I guess it goes to show we all heal differently.
I wish you well, and I think I your on rca, whereas, my user id there is vv5dvo, Lori
Yes i,m on rca i,ll write that down .I like this one better because i get lost on rca. I;m shirlann54 on there too, Shirley
I having mucous discharge now .Now i have been having cramping in bowls after i eat i was in the bathroom most of time. The pain was really bad the Dr called in bella-phenobarn-Geneic for donnatal Its helping some i have been on it 2 days .Has any one had this cramping in you bowls.I'm 9 mo out of treatment.
It's the only way I know, it's time to go. Feels like the "Alien" every time, which is numerous. If I don't throw up or break out in the sweats, it's a good day. My doctor says this is ok for Me as long as there is no blood. Of course after pooping 8-10 times, there is a little blood. I had a colonscopy 3 months ago and everything checked out. I will be a year out on dec 8th. I am glad u checked with your doctor.
I had some bad cramping here and there and real bad cramping with chemo.This started sat .I had a glass of milk sometimes milk will make me cramp for one day .So i was worred this makes 5 days i,m better today they i was .You know you think of everthing that could be wrong.Thank you.shirley