I was diagnosed in Sept 2010 with Grade2 uterine cancer. After total hysterectomy it was found to be fully contained in the uterus. I was never given a stage - but told it was so mild I didn't need follow up treatment.
Last month I had bright red spotting (twice) and visted the gynocologist/Oncologist - he thinks it might be a recurrence - or it could be granulation - but he sees "brilliant blood in the vaginal vault". I go back next week for results of a swab/sample. He had trouble reaching it and couldn't do a biopsy.
I asked him about a CA125 test and he said "that isn't even for this cancer - that would be of no use" and yet everyone here in the UTERINE CANCER forum is spieling off CA125 numbers. Has anyone had this issue before with their DR?
I am in Canada and things are surely different - while I might not have to worry about the cost of any of these treatments - I have no control over who I see or where I go. I am supposedly going to one of the best in Toronto - but I can't help but wonder if there is more that we could be doing. I haven't had any kind of a scan or x-ray other than a chest x-ray the week before my surgery.
When I saw him in December he told me there was a 2% chance of recurrence -- and yet here I am facing that c word again. Freaking out but more importantly feeling out of control.
Any words of wisdom would be most appreciated.