Jul 23, 2011 - 6:46 am
I had 2/3 of my stomach removed as a weight loss measure (sleeve gastrectomy) in August 2010. I had incredible pain in the tummy and went to the ER thinking something was wrong with my tummy on May 27, 2011. My vitals dropped very low and they put me in for the CT urgently as they believed I was bleeding internally. Anyway, all was clear with the tummy, I just got dehydrated.
But the doctor said my kidney was not clear. WTF?
I had a 5cm tumour found incidentally on my right kidney during the CT scan on 27 May 2011. By the 29th of May, the urologist and radiologists had said 80% the tumour was a cancer, so the kidney was to be removed. Very shocked and scared considering the original reason I needed a CT scan was not related too the kidney at all. Within 2 weeks, I was in for my radical nephrectomy. Talk about fast moving.
Anyway, pathology came back that the cancer was a renal cell (clear) carcinoma, grade 2. The tumor was larger than first thought but was contained within the kidney which was good news.
The sad news is, they have said that VHL syndrome (von hippel something) needs to be connsidered as I am 32 and have no other problems, signs or symptoms as to why this cancer formed. So we now need to work with a geneticist to see if I have VHL which is a genetic disorder that produces tumours kind of everywheere. The scary part is I have a 7 year old daughter so I want to know if I am VHL positive as she will need to be tested and monitored also. Does anyone know much or have VHL?
Well, recovery is SLOW. I am very sore, and soooooo tired. Considering I cant eat alot of food either due to the sleeve, I kind of wear out of energy very quickly.
I havent gone back to work as yet as I am no where near ready for it.
I wanted to know, does anyone else have incredible back pain since the nephrectomy? I have the most horrible ache in my back, up where my ribs are, on the right side. Is this just muscle? I dont want to live with back pain either!
I just wanted to pop in and say hi, and ask the back pain queestion.
Hope to talk to you all soon.