Jul 20, 2011 - 7:29 pm
We got the results of our son's first post-radiation MRI yesterday (age 34, dx inoperable GBM 4/18/11). Since it's only been three weeks since he finished, we got the expected spiel: "it's a mixed bag. Some areas show shrinkage, but there are other areas showing flares/hot spots. Can't say if they indicate new tumor growth or effects of radiation. It could take another month to really tell." Makes me wonder: so if it's so soon after radiation, why didn't the doc wait another week or two? Of course, we were antsy to see MRI results. But the biggest surprise from yesterday is that his blood counts have suddenly taken a nose dive. His doc doesn't understand why that all during is 28 day Temodar, his counts were fine. Even one week later. Week two he had to have a platelet transfusion, and now, he's critically low in platelets, white cells, and neutrophils. She said this isn't typical. We have another blood draw Friday. So now, he's the Boy in the Bubble. Our son was due to start the 5 day/month Temodar protocol next week, but the doc said she can't put him on it until his counts are better. She said sometimes, it can take weeks or months for blood counts to get back to safe numbers. So, during that time, no treatment. That's scary. Anyone else have this experience?