Jul 17, 2011 - 9:41 am
It's been a while since I've posted. I've been so busy providing full care for my precious hubby. Quick recap for his brain tumor history - 1986/mixed germ cell tumor on the hypothalamus (inoperable, given chemo and whole brain radiation (WBR) in 1987); tumor free and clean MRIs until 2009. Diagnosed 8/09 with Anaplastic Astrocytomas (three, inoperable - largest on cerebellum), more chemo (Temodar) and focused radiation at Duke; treatment was successful and ended 10/10 - these tumors still remain stable; but 11/10 sudden onset vision loss; two PETs/MRI, oxygen therapy, etc...Craniotomy 2/11 determined GBM (inoperable) on the optic chiasm; now completely blind. Had CCNU March/April, tumors continue to spread.
Hubby has decided to not have any further chemo, and I have to honor his wish, since Duke doctor says it is not a cure but will just prolong life. He wants as best quality of life as possible.
Just last week, he started having lots of painful hiccups. Have heard this can be a symptom, but it's a new one to us. Also, he's begun vomiting, 4x this week. Mostly early in the morning after a deep sleep. I really hate this latest symptom for him, because you expect that with chemo, although he was on Temodar a year and used Zofran and had no nausea and was able to eat anything. We are using Zofran again, but it's not helping.
We do have hospice in place, so we are working to find the right meds to curb the nausea/vomiting. Just wondering if others with GBM have had similar experiences, once off chemo.