Jul 13, 2011 - 11:14 am
I am a newbie, but wish I had found this site when I was first dx. What a group of special people you are. I don't want to post in the wrong place or break any rules so I need your help to guide me. I did a reply on the "what is your dx" site because I saw a post with my same dx (the first lady I have found in the nine months since I was dx); and it showed up in the middle of the discussion. I hope Judy sees it as I would love to communicate with her. I was dx with triple negative matrix producing carcinoma ( a metaplastic tumor) in October, 2010; had bilateral mastectomy with immediate reconstruction in November, 2010 and started chemorx January, 2011. I finiashed up on April 19. My first checkup and labs will be July 28th. I am so happy to find this group and support from those who are going through or have already made it through the same path I am walking. Thank you for being there. Because my tumor is rare with a high recurrance rate, I have this little nagging in my head about how best to deal with this; but recurrance,I realize, is a fear for all of us. Should I ask for scans at followup (my onc does not do them routinely) or just go with the checkups and labs? I appreciate any insights or knowledge you can impart. I value your experience and knowledge. I have rambled on enough. Looking forward to being a part of this group. Thank you.