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A little question about where your NHL was found, what part of your body?

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

My first diagnosis was found in the groin area, I found the lump myself. On the one and only recurrance I found a small lump under my left breast and it turned out to be the recurrance. Just wondered where others tended to spring up for the diagnosis with any of you? I mentioned in another post that 24 years later they have found a lymph node in my other breast that looks perfectly fine but I want a needle biopsy anyways just to be sure and they think that with my history it's a good idea. It's tomorrow. Just wondering if there is some pattern to sites where NHL is commonly found. I do know the groin is one area but that's all I know.

Thanks for reading my post.

Blessings,

Bluerose

vinny59's picture
vinny59
Posts: 1030
Joined: Nov 2006

First good luck with the biopsy, with my lymphoma, it was dumb luck that they found it, had a routine PET scan because of my first head and neck cancer.

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Ya that's how alot of cancers are found, while docs are looking for something else. Actually I had a specialist who went in to get a stuck kidney stone in my bladder. When I woke up he said the kidney stone was gone, he couldn't find it, hmmmm?, but they did find a nodule on top of one of my ovaries and that has led to 2 years of follow up, the nodule disappeared a few months ago on it's own but now I am having other gyne issues. Sheeesh.

So I guess you mean that they found it in your neck area?

Thanks for taking the time to respond to my question Vinny. Take care.

Bluerose

onlytoday's picture
onlytoday
Posts: 586
Joined: Jun 2010

Mine was found in a groin lymph node. Stage iv(it's in my bone marrow too) Since then I have swollen nodes in my groin, neck and under my arm but we are doing watchful waiting over the summer anyway...

Hope your biopsy is fine!!

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Ya that is the first place mine showed up to, the groin area and it was like poof there it was, size of an egg, just appeared. They called it 'blowup lymphoma' in that all of a sudden it just appeared. Lots of warning - NOT.

I hope the waiting isn't worrying you too much, sometimes it's the best thing you can do, I have heard that from so many others.

Thanks for the response. Take care.

Blessings,

Bluerose

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Mine was found on a routine ct scan ordered by my urologist. It was mostly in my abdominal area. They saw a very small one in the shoulder and groin area. BMB showed a small bit in the bone which put me at a stage 4. That was in April 2010. I went into remission Oct.15th 2010. John

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

First time was in the groin, then moved to hip, then to armpit, lung, close to spine, then armpit and neck (clavical)

Just had an autologous stem cell transplant.

Good luck with the biopsy!

Beth

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

You sure have had your plate full haven't you Beth? Hugs. Thanks for the info, just wondering if there is some pattern to NHL and how it shows up, seems like the groin area is a hotbed for it by the responses thus far. I had an autologus stem cell transplant too but that was 24 years ago when they were just starting to be done for lymphoma patients, previously they had only done the transplants for leukemia patients. Also stem cells were really new and today I really feel that is what has given me such longevity with no recurrance. Well I had one recurrance a year and a half after initial diagnosis but that was it.

Thanks for your reply Beth and all the best.

Blessings,

Bluerose

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Have you been in remission ever since John? Wonderful if you have been and let's pray that continues.

Thanks for the input, I appreciate it.

Blessings,

Bluerose

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Bluerose,
Yes,I had 6 rounds of R-CVP and was in remission in October 2010. Went back for pet scan in April and still no activity. I go back again in Sept. 2011 for another pet. I am on the rituxan maintenance now. I hope it stays away. It would be great. John(FNHL-1-4A-5/10)

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Glad you are in remission. YAY. Personally I have never liked the word remission because, for me, it says 'but it will be back' and I personally just didn't like the sound of that so I never used it. I preferred to say 'it's gone' which isn't a lie, it is gone for that time, so why not continue that and think 'it's gone PERIOD'? I don't know, some say it's just semantics or leads to maybe false hope, but I think it's more powerful a thought than that. I believe in the power of prayer and positive thought and that you can make things happen in your body sometimes if conditions are right. Just my little way of looking at things.

Take care and let's hope that it's all behind you.

Blessings,

Bluerose

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Bluerose,
To be honest I never cared for the word remission either. I used to hear people say that long before I got Lymphoma. They would say the word remission and the first thing I would think is,Well that means you are waiting for it to return. I like the word GONE better too. John

miss maggie
Posts: 929
Joined: Mar 2010

Hi to you both,

Sign me on for GONE. For me, GONE Jan 2011.

Love Maggie

miss maggie
Posts: 929
Joined: Mar 2010

Dear Bluerose,

I had no symptoms at all. I was so active the summer of 2009. I was looking
forward to the last day at my beach club, Sunday, Sept 2009.

Saturday evening,2009 I had a horrible pain. No memory of pain. I was rushed to the
ER, had a CT scan. Ct Scan showed my small bowel perforated. I was rushed into surgery,
and had my small bowel resected. The perforation was caused by NHL. I suppose you could
say the NHL was in my small bowel. Bone marrow biopsy negative, colonoscopy june 2010
negative, and pet scan in Dec 2010 negative. Remission Jan 2011. I will have another
colonscopy in Sept 2011 and will also see my oncologist in Sept.

PS: I had 4 weeks of Rituxan, once weekly in Dec 2009.

I take one day at a time. If and when the cancer returns, I will deal with it in a very
postive way. I will enjoy everyday until then.

Good luck with your biopsy, and hope everything turns out negative. Love Maggie

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

I love your attitude, it will take you a long way not only with cancer but in life as well and I am sure it has to date. Way to go.

I hope that everything works out well for you and with that attitude I'm sure it will.

My biopsy was refused because the doc who was going to do it said that there was no way this lymph node was abnormal and you kind of know when a doctor knows what he is talking about and this one did. I am usually leary of docs with all my cancer history but this one definitely knew what he was saying so I was relieved. A bullet dodged for me, what a relief.

Thank you for taking the time to write and share.

All the best.

Bluerose

miss maggie
Posts: 929
Joined: Mar 2010

Dear Bluerose.

Thank you so much for your kind words.

Since I was DX and signed onto this site, I have seen so many of your
posts, and your detailed responses to others in need of information.
You are wonderful, and always take such care and time with each response.
I don't want to make you blush, but my words are true.

I should of included this paragraph first, but I got carried away.
I am over the moon with your wonderful News. May you continue each
day, and every year with a DX of GONE>

All my love to you. Maggie GONE Jan 2011

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

That was kind of you to say but tons of people on here support others as I try to do, something in us after the diagnosis and treatments seem to drive us to give back, have heard that over and over again. And so we should, it's the least we can do to try to help others who are struggling with parts of the cancer journey we have already experienced. A little help and validation from those of us who have been there goes a long way to help others who are facing fear and uncertainty. Information is power.

Back at you Maggie - it's GONE GONE GONE.

Blessings,

Bluerose

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Hi Bluerose,
January 2010 I had just dried off from my shower and while putting lotion on my body I felt a lump on my groin..(left side). I showed it to my husband and then the following week went in to see my PCP. He sent me for an ultra sound which showed the one medium lump we could feel, but also showed a couple of more smaller enlarged nodes in the same area that we couldn't feel. PCP decided to wait and watch until my yearly physical in May. Come May, I went for another ultra sound which showed growth of the one medium size node and now revealed a total of 6 more enlarged nodes. I also had a very small hard node on the left side of my neck show up during the wait and watch time..Jan-May. PCP sent me for a CT scan of pelvic, stomach and neck, which then showed enlarged nodes in all 3 area's. I didn't have a clue about the tumors in my stomach until the CT scan. In June 2010 I had the largest node in the groin surgically removed and biopsied, along with a BMB to complete the staging(no bone involvement).... the rest is history. Diagnosed having Follicular-NHL-grade2-stage3-typeA. Started chemo(CVP-R) Aug 26th 2010 and finished 6 rounds on Dec 14th 2010. Follow up CT scan on Jan 26th 2011 showed slight activity still in the node under my colar bone. Onc said I wasn't in remission, but considered the cancer to be stable. He started me on Rituxan maint Feb 14th, to be given every other month for the next 2 years. My next scan will be in April 2012, unless something new developes. So far so good...I've done 3 rounds of Rituxan so far and no new developements..(knock on wood). Now I just wait and see and hope for the best. Good luck tomorrow with your biopsy..I'll keep you in my prayers and be thinking good positive thoughts! Much Love...Sue (FNHL-2-3A-6/10)

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Sue,
Do you recall the size of the nodes in your stomach? Sometimes they say in their findings and other times they don't. John

cooky38
Posts: 29
Joined: Jun 2011

I had a large one on my groin area and then pretty fast, [it seemed like it or mabey not [i was still working] to 5 more on the other side and then in my chest and abdomen, then when it came back it was in my bone marrow.

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Thanks for your reply. How are you now?

Bluerose

allmost60's picture
allmost60
Posts: 3167
Joined: Jul 2010

Hi John,
This is what the findings were on all 4 of my CT scans.

CT Abdomen:
Technique: 16 slice multidetector CT was performed utilizing routine abdomen protocol following the administration of nonionic IV and oral contrast. Reconstructions were also performed and reviewed. (same technique was done with all 4 scans)

1st CT scan done on June 2010:
Findings: Lymph Nodes:
There are enlarged retroperitonial and left upper abdominal mesenteric lymph nodes. A left retroperitonial node measures 1.6 x 1.1 cm and a left upper mesenteric node measures 1.2 x 1.0 cm. Additional enlarged smaller nodes, epigastric hepatic ligaments are noted.

2nd CT scan done in Oct 2010:(after 3 rounds of chemo)
Findings: Lymph Nodes:
The previously observed lymph nodes along the lesser curvature of the stomach in the gastrohepatic ligament have decreased in size, both previously measuring approximately 1.5 cm in their greatest dimension, now measuring 0.6cm in their greatest dimension. Left periaortic lymph node has decreased in size, 1.5 cm to 7 mm.

3rd CT scan done in Jan 2011: (after finishing chemo in Dec)
Findings: Lymph Nodes:
No lymphadenopathy is identified. The previously observed non-pathologically enlarged celiac and paraortic lymph nodes appear unchanged.

4th CT scan done on April 13th 2011 reads:
Findings: Lymph Nodes:
No evident enlarging adenopathy seen in the stomach.

So..thats the skinny on my tummy John. TMI? ha! Anyways.. so far, so good,.. it appears. Hopefully my next scan in 2012 will still show no eveident enlarging.I asked my Onc why he was going to wait so long to do another scan and he said it's because I've had 4 already and thats 2 too many in his opinion to be done in a year. I can only hope he knows whats best as far as how often to do scans. April 2012 seems sooo far away. Oh well. Sue (FNHL-2-3A-6/10)

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Oh I am so sorry that you have had so much going on with your NHL. I was offered the wait and see approach after my first diagnosis but I couldn't do that so had a regular CHOP treatment, they didn't have Rituxan back 25 years that I know of. Anywho had a bone marrow transplant a year and a bit later with the NHL returned. The second biopsy was under my left breast so that's why I was so worried about this thing in my left breast that showed up that I was to have biopsied yesterday.

To my pleasant surprise when the doctor came in to do the biopsy yesterday he took one look at it and said it was nothing and he wouldn't biopsy it as he was sure that there was nothing to worry about and it was just a little lymph node. WHEW. That was a scare I didn't need. Anywho the good news is that it all worked out so I am greatful for that.

Thank you for your good wishes and I pray that you will be NED soon and can put this cancer journey behind you.

Blessings,
Bluerose

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

You are in my prayers as well and let's hope you will blow that thing out of the water and never look back.

When I had my treatments one million years ago, or so it seems, we didn't have Rituxan. Looks like it's a super drug from all I am hearing about it. Do you know that when I was diagnosed and went through my first chemos they didn't have anti nausea drugs either? Yikes, that sucked. When I had the recurrance a year and a half later they had come up with the anti nauseas and yikes what a difference. I am telling you this because it goes to show how from year to year or less there are always new treatments right around the corner to make things a little easier and let's hope that soon there will be new research that will blow this thing away, never to be seen or heard of again for anyone.

Blessings,

Bluerose

homegirl
Posts: 15
Joined: Jun 2011

Bluerose, I found mine in my right armpit. Raised my arm to shave one evening in the shower when I noticed large lump. My pits have never been very hairy so do not know when I shaved last, but when I had my ultrasound 2 weeks later one was measured at 5.4 cm, and there were couple more smaller ones. Even today I have to raise my arm and put my hand behind my head and push out the pit to really feel it because it is so deep. I probably have a little extra fat tissue there as I am not a thin person. Also have enlarged nodes in other pit, but cant feel, nor any of my others through out my body.
Martha

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Martha,
Where else in your body do you have enlarged nodes? Don't know if you had a scan or not,but that will tell where they all are. John

KC13167's picture
KC13167
Posts: 215
Joined: Jun 2010

BlueRose,

This is interesting! I had an MRI due to some lower back pain and numbness and a mass was found growing in, around and out of my lower spine. I was hospitalized a few hours after this finding when further testing revealed some retroperitoneal node involvement and then positive bone marrow.
DLBCNHL stage IV B, June 2010, R-CHOP for 6 rounds and remission Oct. 2010.

Kellie

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Your cat looks just like my cat Angel. lol. Yours looks like it has a lighter smudgey nose area, mine is a chocolatey brown there, but basically the same look - Himmy right? Aren't they great? Love mine to pieces. So smart.

Anywho, thanks for the input. I was just wondering about sites as I had a lymph node show up recently in my breast but it has proven to be fine. Just wondered where the key sites are for others.

You know I have had a 'something' show up at the base of my spine for a long time and I am on morphine daily because of the pain but they feel it's just more arthritis. I have never bought that story. However I have a pacemaker from chemo damage and so I can't have an MRI. I have had a ton of treatments and late effects from it all 25 years ago and so my testing is limited now due to procedures I have had to have. Oh well.

Hope you are feeling alright and that it's all gone and you can get on with your life.

Blessings,

Bluerose

KC13167's picture
KC13167
Posts: 215
Joined: Jun 2010

Bluerose,

Yes, he's a himmy and I love him. This is then only cat that I've gotten from a breeder, the others have been rescues. If I ever get another cat, it will be a rag doll. I was devastated when I was first diagnosed. My Onco said that I couldn't keep my bird, due to the fact that they can harbor opportunistic diseases. I was in such a state that I thought that I also heard her say that I had to rehome my cats as well. I was very depressed for many days. I wasn't even able to say that I needed to rehome my cats out loud for fear of falling apart. When I finally could verbalize it, I spoke with my fiancé, who was with me in the hospital, the day the Onco listed my restrictions. Come to find out.......I must have been overwhelmed with information. My Onco never said that I had to rehome the cats, she said that I couldn't touch the cat litter and would have to love them less, if my counts dropped. Always have another set of ears with you, lesson learned!

I am also on morphine for pain, both long and short acting.

Kellie

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

We sound alot alike.

I just came back from my one month checkin with my GP and we talked about the cats and she said they are more important to me than many people might think. We were talking about the Vet wanting to put one of mine down as she has had a stroke and maybe even a brain tumour and I have been nursing her. NO way is she going to be put down, she is fine except for the wobble in her walk now.

Pets are such therapy for so many people and a part of the family for sure. Mine are worth a fortune to me.

Take good care.

Bluerose

JoanieP's picture
JoanieP
Posts: 573
Joined: Mar 2010

Hi
I always enjoy reading your posts. I have four cats, one being a himmy. Sidney Frizpatrick is his name and I got him from Pet Finder when he was 9 months. He absolutely loves speghetti. He paws my husband's shoulder when we eat at the coffee table til he feeds him. He's a light grey with darker ears. Not sure what they call him. Take care Bluerose. You are always an inspiration to me:) So glad you had good results!!! Joanie

homegirl
Posts: 15
Joined: Jun 2011

John, specifically my pet scan concludes "extensive involved lymph nodes, most intensive right axilla,spleen generously sized and fairly intense." CT scan showed extensive lymphadenopthy in right neck, axillae, right lateral thoracic lymph node chain, the mediastinum, retrocrural, mesenteric and retroperitorneal region, also extensive bilateral inguinal lymphadenopthy." I think that means about everywhere! Largest size was 5.4 x 3.4, others of note are 3.0+ Bone marrow was clear. Martha

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Sounds like you might have first had 'blowup lymphoma' as my oncologist called my NHL when I first found the lump. Mine first appeared in the left groin area but sort of at the top of that area so I could see it. I was watching tv in the dark and my pj long tshirt had come up a bit as I lay in bed and I had an itch. When I put my hand on the leg to scratch it YIKES I felt this large lump. I had an immediate jolt of electricity go through me that was really strange. It wasn't like pain from touching the lump just kind of an emotional jolt. I had no idea what that meant. I wasn't scared or anything, just thought 'what the heck is this?' I swear it wasn't there the day before. Just blew up.

Anywho I went to the doc soon after and the testing started and the rest is history. That was 25 years ago. Had a bone marrow transplant, one recurrance a year and a bit after the first diagnosis and then that was it, they considered it a cure years ago.

Nodes are all over our body, found one in my right breast not long ago in an ultrasound but it proved to be nothing.

Hope you remain NED for the rest of journey.

Blessings,

Bluerose

homegirl
Posts: 15
Joined: Jun 2011

Bluerose, that sounds about the way mine was. The only thing else I remember is laying in bed and thinking my shirt feels tight up under my arm, but never really felt anything. When I first noticed the lump, it really scared me as I thought it was breast cancer, and I had lost my sister to breast cancer 19 years ago, she was only 43 years old at the time, so I immediately had it checked out and was relieved, for a while.
So glad to hear that you have had 25 years, and I wish for you 25+++ MORE. I started R-CHOP on Monday and Tuesday and so far so good. My hope/desire to to give this a good wallop and live to watch my grandsons have grandsons, (well maybe that is a stretch, lol)
Martha

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

You can do it too Martha, you have a great attitude.

All the best of luck with your treatments, kick it's butt and get back to those grandkids with all the energy you had before this nasty visitor came to stay for awhile.

Blessings,

Bluerose

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Are you all through treatments now?

All the best,

Bluerose

She514's picture
She514
Posts: 47
Joined: Mar 2011

Mine was found on the CT scan done when I went into ER for appendicitis. In the Retroperitoneal, further testing shows groin, neck and axillary. Low grade, B cell Non Hodgkins...they are thinking CLL/SLL but I haven't agreed to axillary biopsy to date to determine subcatogory since the current approach will stay the same...Watch and wait. Now that the doctors have pointed out the enlarged nodes can I feel the ones in my neck, groin and axillary. I have no B symptoms.

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

I will pray that your wait and see approach works in your favour and that these things shrink down to nothing.

All the best.

Blessings,

Bluerose

cooky38
Posts: 29
Joined: Jun 2011

Hi bluerose i don't feel the same since my last chemo,i'm always tired now all of the time; infections hang on for a long time; i am still fighting oral thrush since april. see the doctor in the morning. You give me hope blessings denise

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Glad I give you hope, that's what this board should be all about, sharing information to help others.

I had all my treatments 25 years ago and I still have side effects of treatment but remember that was a long time ago and from what I read the treatments are much better now. One day at a time is the way to go as far as I am concerned.

Take care Cooky.

Bluerose

moftexas
Posts: 13
Joined: Feb 2010

Mine was found on a routine annual physical by my doctor in February of 2009. My spleen was enlarged. I had no symptoms and had never felt more fit than I did then. On the scans it was pretty much everywhere and I had absolutely no idea I was sick. It's crazy. In remission (and yes I hate that word too) since July of 2009. Remission is a crummy word because it suggests a return of cancer, but really, I hate for people to assume I'm cured, cause that isn't the reality of it all.

MofTexas

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

It was the doctors who used the word 'cured' with me and that got me thinking about the remission word. It puts the mind in a more positive frame too to consider it cured. Yup there is a chance it can come back in many situations but it's kind of a glass half empty or filled kind of thing I guess.

There are certain realities that have to be dealt with but I like to try to take the positive road if I can.

Thanks for your input.

Blessings, Bluerose

JacquieK's picture
JacquieK
Posts: 10
Joined: Jul 2011

Hi BlueRose,

I found my lymphoma because there was a lump in my neck under my collar bone. It was wrapping around everything in my neck and decided to choke me. The main tumor however, was on my heart. It had punctured my pericardium and decided to aggressively take out my heart. I was very blessed to have caught it and had an excellent surgeon at Loyola who was able to remove as much of the tumor as possible and then of course chemo and rad. Today is the one year anniversary of my tumor being removed from my heart and the beginning of my 10 month battle against this monster.

Good luck to you!

Jacquie

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

Thanks for your response and congratulations on your one year anniversary surviving the monster and I know you will stand strong for the next 10 months in your battle with it all. With the help of friends and family and this site you will get through it.

I am a 25 year survivor of NHL, considered cured after one recurrance 23 years ago so I do know a little something about survivorship and the strength it takes to get through. You sound like a strong survivor. Keep us posted. It won't be easy but you can do it.

Blessings,

Bluerose

Gishy
Posts: 1
Joined: Jul 2010

Mine was extra nodal in Stomach/Bone Marrow, 8 cycles of R-CVP and Radiation x 30. 6 year Survivor.

Wish you all successful treatment and for the Survivors to be in NED forever!

JacquieK's picture
JacquieK
Posts: 10
Joined: Jul 2011

Hi BlueRose,

I am so glad to hear you have survived so long! My biggest fear is that I will not be here for my boys! Tomorrow I am in remission 2 months. It has gone by fast, but it also means that I have to go back in August for my first (3 month) check to be sure everything is still good.

I also wish that my hair would grow back!!!! I finished chemo almost 8 months ago and radiation 4 months ago. While I am grateful to have hair again, it would be great if it grew just a little faster :0)

Thanks for your support!

Jacquie

bluerose's picture
bluerose
Posts: 1089
Joined: Jul 2009

It's good to share our experiences to help to support and validate others on this site so no need for thanks. My pleasure.

My hair grew back pretty slowly too but eventually there it was so give it time. Your whole body has a lot to recover from with all the harsh treatments.

I had two small chidren when I was diagnosed and went through treatment so I understand your worry about your children but know that today cancer treatments are fantastic and even when I was diagnosed so long ago those treatments obviously did the trick cause here I still am - a little damaged from treatments but still here and I have seen my kids grow up.

Intead of worrying about being there for your kids use that dedication as a Mother to survive. That's what I did. I don't know if you are spiritual or not but I prayed to be able to survive for my children harder than I ever prayed for anything else in my life. I personally think a Mother's prayers for her children are some of the strongest prayers around and I do believe it's why I survived, my prayers were heard and answered. I also believe strongly in the immense power of group prayer so if you know any churches call them and ask their prayer chains to put you on the prayer list and they will pray for you - the more prayer for you the better. It worked for me in spades.

All the best, keep truckin, and hold those kids up as your goal - you WILL BE THERE to see them walk down the aisles with their spouses to be and you WILL BE THERE to hold your first grandkids. Remain positive and fight for it. You can do it.

Hugs,

Bluerose

Go_go_Gi_gi
Posts: 84
Joined: Aug 2011

Hi everyone--today is my first day posting---just diagnosed. Found incidentally when cat scan done to r/o diverticulitis---bulky, enlarged lymph nodes in abdome--Had Pet Scan 2 days later; w/ hot spots Left scapula, breast bone, near aorta, on on colon, lower part--
Colonoscopy: no disease inside, though a stricture due to pressure from ? (probably nodes) outside---Needle biopsy of lymph node showed NHL, follicular, grade 1, I think stage 3--a question to verify with my doc tomorrow--

I'm on the east coast--Monday--NHL; Tuesday-earthquake; Sat-Sunday-Hurricane Irene-- definitely memorable--- I posted a new thread a short time ago--I supposed to start chemo Wed. this week. Teaching tomorrow---(Bendamustine/Rituxan) Thanks Susan-2

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Susan,
You forgot to add in the HEAT we've had all summer. I am in NC. John

Go_go_Gi_gi
Posts: 84
Joined: Aug 2011

So right about the heat---and a/c now off due to Irene passing through! Those, the little things in life! Susan

DadysGirl
Posts: 318
Joined: Aug 2011

Hi Bluerose, where was yours found? Was it large diffuse b cell lymphoma non hodgkins?

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