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Not so good news

fauxma's picture
fauxma
Posts: 3530
Joined: Dec 2008

I haven't been on as much lately. Last night I posted some and then I wrote a new post about what has been happening and my internet connection went out and I lost it all.
So here goes again. I thought things were getting crappy when I found out that my cystoscope in February was a new small cancer recurrence of my bladder cancer. Then I did my next cysto in June and there was another one. So in October when I go again if there is another I will have to consider BCG or BGC, can't remember which. I was fine with this just bummed that after 9 years NED I just thought I was in the clear.
All of that pales in comparison to what happened at 1:50 am Thursday. My darling Den had a stroke and is in the hosptial. I was watching TV and he had gone to bed and he came out and when he tried to talk it was garble and the moment I looked at his face I knew. I had him smile and when the left side didn't work I immediately called 911. They were here literally in minutes because we are around the corner from the station. Even though we got him to emergency they couldn't given him this medicine that breaks up clots because it should be done in a 4 hour window or it can do more harm than good. Because the last time we knew he was okay was 10 pm when he went to bed and it was now just past 2 am they felt it shouldn't be given. They did a CT Scan of his brain and other tests and no clots or brain bleeds were seen so that was good. He was there until 5 am and then transported by ambulance up the street to our care provider. He has had so many tests with no specific cause. So there is nothing to "fix" but they are adding new meds and hopefully he will be home Monday. He will be followed by home health and doing speech and physical therapy. It has affected his left side but mostly speech, swallowing and facial. he can walk but is weak on that side but thank goodness not paralysed.
All in all I am grateful it was not worse and we will get through it. His is alrady making amazing progress and his speech is much better.
Please dear friends, say a little prayer for him. He is the most important thing in my life and I hate, just hate seeing him go through this.
Stef

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

I'm sending big prayers, not little ones.

Hugs,

Linda

New Flower
Posts: 3914
Joined: Aug 2009

I am really sorry, sending positive thoughts and prayers.
Hugs

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Praying for your husband and you.

Hugs, Kylez

Marcia527's picture
Marcia527
Posts: 2731
Joined: Jul 2006

Try not to stress over this. Some things are just out of our control. Thinking of you and hoping things get better for you and Den.

Hugs,
marcia

Lynn Smith
Posts: 1265
Joined: Mar 2011

Prayers for your husband that he gets better soon and hopefully back to himself again. Like someone said Take care of yourself also.

My husband is pushing 70.I don't know if you saw anything with your husband before this happened but things have been going on with my husband.He forgot where he lived.Then he drives and always either almost goes off the road(then said he was looking at a barn). I look at barns for a split second but never venture to the field etc.When I look at him it is as if he is in a daze.The strangest expression on his face.At times we get in a argument.He makes excuses.Just like last night.A car was coming very very fast.I said Don't go.He had stopped just a bit then proceeded.I could have been killed.Probably him hurt seriously.I told him no more driving.It happens alot.He is in a hurry but the last few months it is different.

He told me if I drive he wont go.Well so be it. We just wont do things together.We always do but time to quit with his problem.He never says I almost got hit etc when he came home from work but when the both of us are together it happens more times than it should.I have been so lucky.I'm not saying I can make mistakes but so far don't.I saw that car right at me last night.I am still in shock I am here.

Did you see any signs?? I asked my husband to go to the doctor but he won't.If he was to get alzhemiers or have a stroke my life will be hard.He will not be easy to handle. We've talked about how we would take care of one another but he is very difficult when he has his mind let alone if he becomes dependent.They can be bitter.

Wishing good news for your husband come Monday.Hope there was no damage but if so hope it is minor.

Lynn Smith

fauxma's picture
fauxma
Posts: 3530
Joined: Dec 2008

I want to thank all of you for the kind words and prayers. Den continues to make progress and we are hoping he will be able to come home tomorrow. Although I hate that this happened we know it could have been so much worse.

To Lynn,
We didn't see any signs that said he might have a stroke other than some general risk factors he had. I'm not a doctor of course but it sounds like your husband should go and be seen. Some of what you said almost sounds like early alzheimers. It is better to be safe and have him get a thorough check up.

Again, thank you one and all. Having you hear to vent/rant/complain/share the load means more than you could know.
Stef

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Sending prayers!

lynn1950's picture
lynn1950
Posts: 2566
Joined: Jun 2008

Dear Stef, I am sending prayers for you and for Den. xoxoxo Lynn

MAJW
Posts: 2515
Joined: May 2009

And best wishes for a speedy recovery....

Hugs, Nancy

missrenee's picture
missrenee
Posts: 2137
Joined: Apr 2010

On top of your bladder difficulties, now your sweet man and you have to go through this. I am sending my prayers out along with a ton of positive energy for both of you. Come here and talk to us often. I truly understand how devastating this is for you. Hang in there and take good care.

Hugs, Renee

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Stef, sending prayers for your Den and for you. I am so very sorry that this happened to you both.

Sue : (

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Stef, I am so sad to read this about Den and you. You have always been the sweetest sister I have ever known on here. Please accept my prayers and well wishes. And, do keep us updated.

Hugs, Lex

natly15's picture
natly15
Posts: 1930
Joined: Sep 2009

Oh Stef so sorry to hear all of this. My prayers and love are with you. :(

carkris's picture
carkris
Posts: 4505
Joined: Aug 2009

Oh my I am so sorry. we are here to support you. Hoping he recovers quickly.

Jean 0609's picture
Jean 0609
Posts: 2305
Joined: Jun 2010

I am so sorry. Sending positive thoughts and prayers to you and Den.

xoxo,
Jean

Marsha Mulvey
Posts: 597
Joined: May 2010

Very sorry to read of Den's stroke, but happy to see he is progressing quickly! Also hoping your next scan comes out better. Thoughts and prayers for both of you.
Marsha

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Oh Stef, I am so sorry. I will be praying for the two of you!

linpsu's picture
linpsu
Posts: 725
Joined: Mar 2010

I am so sorry to hear this sad news about your husband. I'm sending prayers your way for a speedy recovery from this - it sounds like he is progressing already, which is good news. Hugs, Linda

ladyg's picture
ladyg
Posts: 1577
Joined: Apr 2010

I am sorry to hear about your husband. I will keep him in my thoughts and send him positive energy to help with a speedy recovery.

Hugs,
Georgia

jo jo's picture
jo jo
Posts: 1175
Joined: Jun 2010

Giving you a great big ciber hug....i will be prayin for you and your hubby!

Ticky
Posts: 117
Joined: Mar 2011

I am sorry to hear that your husband has to go through this. I will pray and have positive thoughts for the most important person in your life.

Prayers and Hugs,

Ticky

camul's picture
camul
Posts: 2003
Joined: Dec 2010

I am sending prayers that this will all turn out ok in time.

Hugs and prayers.

~Carol

Double Whammy's picture
Double Whammy
Posts: 2259
Joined: Jun 2010

Stef- so sorry to hear your news. Hope both the bladder thing and you husband do well. Sending prayers.

Suzanne

Aortus's picture
Aortus
Posts: 967
Joined: Jan 2009

You're both going to be fine, OR ELSE. But I'll keep praying anyway!

Love,
Joe

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Praying for Den and you too Stef!

Hugs, Megan

DebbyM's picture
DebbyM
Posts: 3295
Joined: Oct 2009

I'm so very sorry Stef. Sending prayers and cyber hugs!

chenheart's picture
chenheart
Posts: 5182
Joined: Apr 2003

STEF!!!!! Oh sweet sister! I am in utter shock and disbelief reading you post! On the one hand I have an inkling of how it feels to think we just can't have to battle the beast again after such a long time ( I as you know, was rediagnosed after 8 years of Dancing With NED)...but OMG sweet Stef~ your Den!!!! I am so glad that progress has already been made ~ may he continue to improve and get ever stronger. You are in the thoughts, prayers and enveloped by the courage and strength that all of the Kindred Spirits have to offer.

Thanks for letting us know...((((((((hugs))))))

Chen♥

Mitzi333's picture
Mitzi333
Posts: 511
Joined: Feb 2011

So sorry to hear your news.

You're in my prayers.

Hugs~
Mitzi ;0)

Mitzi333's picture
Mitzi333
Posts: 511
Joined: Feb 2011

So sorry to hear your news.

You're in my prayers.

Hugs~
Mitzi ;0)

Mitzi333's picture
Mitzi333
Posts: 511
Joined: Feb 2011

So sorry to hear your news.

You're in my prayers.

Hugs~
Mitzi ;0)

Mitzi333's picture
Mitzi333
Posts: 511
Joined: Feb 2011

So sorry to hear your news.

You're in my prayers.

Hugs~
Mitzi ;0)

DebbyM's picture
DebbyM
Posts: 3295
Joined: Oct 2009

I am so very sorry. Sending lots of prayers for Den and for you!

Mitzi333's picture
Mitzi333
Posts: 511
Joined: Feb 2011

So sorry to hear your news.

You're in my prayers.

Hugs~
Mitzi ;0)

dyaneb123's picture
dyaneb123
Posts: 951
Joined: May 2009

I hope things go well for both of you.
Dee

VickiSam's picture
VickiSam
Posts: 8219
Joined: Aug 2009

The recurrence, now Den your sweetheart! You have your hands full with health issues --- I just wish they would all go away -- and stay away.

Does your insurance provide occupational therapy to help with Den's speech? Who's going to tend and take of you, dear one?

Prayers and positive thoughts coming your way, Stef.

Strength, Courage and Hope.

Vicki Sam

fauxma's picture
fauxma
Posts: 3530
Joined: Dec 2008

Thank you all for the support. Yes, he will have therapists coming to the house, physical, speech and occupational and a home health nurse to check on his leg wound that we were going to wound care before all this began. We had hoped he would come home today but his heartrate is elevated and when he was doing his therapy (walking and balancing) it would go up more. So he didn't do the stairs that he did yesterday. They have restarted his beta blocker and blood pressure meds today (had him off them to let his blood pressure increase and help the sleeping cells) and when I left just a bit ago the heart rate was much improved. The doctor felt he should remain one more day and if the meds were doing the job then come home. So the plan is for him to be home tomorrow. Denise and Kyle are both helping us so much. I can home and she had cleaned our little living room, bathroom and bedroom top to bottom. Even changed the cat's water and food and litter and dusted and vacuumed and well, everything. The kids helped her. I was so touched and so happy because my mind has been going so fast with needing to get foods that Den will like pureed, getting the Thick it stuff, just getting all the supplies that we want to have on hand. And I was planning to do all this cleaning tonight. Den was very tired this afternoon so we both decided that I should come home at 5 and he would try to sleep. Neither of us has had much. He can't wait to get his, as he says, his own chair and bed and just be here. I am just so happy that he is making good progress. I am sure he will continue to do so. Even with this stroke he still worries very much about me. And I worry about him. But we will get through this because we draw strength from each other and from Denise and Kyle. And, as Den says, who can ever feel down with the grandbabies around.
Your thoughts and prayers really help to lighten this load. As far as my bladder recurrence, they seem to be very tiny and we have a plan should there be another recurrence. Bladder cancer has a tendency to do this. And yes, Chen, it sucks to reach that point you think it safe to go back in woods and one of those darn bears jumps out at you. But all we can do is face it head on, do what we must and hope for the best. I still refuse to let worrying about tomorrow, rob me of today. And I still have my glass. Those that have known me for a while know that some people look at the glass as half full, some as half empty but me, I'm just glad I have a glass.
Love to all of you,
Stef
And Joe you really touched my heart. Moopy and you would have been the first to console me and to tell me it would be aright. I am so blessed to have your kind thoughts and prayers.
This is truly the most amazing group of people that I have the previlege to know.
Good wishes for everyone's health and happiness.

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Thank you for the update. You and your husband are in my prayers!

survivorbc09
Posts: 4378
Joined: Jun 2009

I am praying for you and your husband. I pray that your husband will recover fully! And, keep us posted as to what goes on with your health Stef.

Jan

taleena's picture
taleena
Posts: 1612
Joined: May 2009

Oh Stef... I am so sorry to hear about Den... I am thinking of you and saying prayers for a speedy recovery... I will keep you both in those prayers for a while..

Thinking of you

~T

Heatherbelle's picture
Heatherbelle
Posts: 1218
Joined: Jun 2010

Oh Stef,
Sending lots of love & prayers & *hugs*
-heather

butterflylvr's picture
butterflylvr
Posts: 943
Joined: Apr 2011

Stef I'm adding my love and prayers to enormous chain you already have going. Keep us posted on Den's recovery, I am sure with time he will be back to his sassy self. But you must take care of yourself in this process too.

Loving prayers to you both,
Lorrie

aysemari's picture
aysemari
Posts: 1586
Joined: Dec 2009

Stef,

what a week... it's been raining cats and dogs for you sweet sister, hasn't it?
One thing after another and hardly any time to process it. I am so sorry that
you are having such a rough time. 9 years is enough to make anyone think we
are in the clear... but instead it's time to gear up again. And a you know we are
here for you every step of the way. I hope Den will have a speedy recovery and
be back in your corner in no time. Please keep us posted on yours and Den's
progress.

Lotsa love!
Ayse

tgf's picture
tgf
Posts: 955
Joined: Mar 2009

I haven't checked the board in a few days and was concerned when I read your post about Den's stroke. You're both in my thoughts and prayers ... and I wish him a speedy recovery.

hugs.
teena

P.S. You take care of yourself too!

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Super terrific news that Den is home now! Praying for the both of you always!

Sue :)

padee6339's picture
padee6339
Posts: 765
Joined: Jun 2009

You and Den are in my prayers. Lets hope he gets stronger each day and comes home today!
Hugs - Pat

debi.18's picture
debi.18
Posts: 847
Joined: Jun 2011

Lots of big hugs and prayers for both of you!

jennytwist
Posts: 711
Joined: Sep 2009

prayers and holding you close!
much love,
Jenny

fauxma's picture
fauxma
Posts: 3530
Joined: Dec 2008

On a happy note. Den is home and doing pretty good. I posted to Traci post about seeds of joy. It is so nice to hear him gently snoring in the next room. Music to my years.
Stef

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Den is home! I am so happy for both of you! And, he will get better and stronger with each day! I just know it! And, you will be dancing with NED again! So, keep your shoes polished and ready to go.

Many prayers for both of you!

smalldoggroomer's picture
smalldoggroomer
Posts: 1181
Joined: May 2010

You got it Stef, Prayers and thoughts going up for you and your Den, Everything will be fine you'll see. Take care and if you need us or want us we are always here just holler OK.
Take care Darlin Kay

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