Some bad news

sausageroll
sausageroll Member Posts: 415
Well, not bad...just "iffy" and if anyone has time, I would like a little info please.

Over the last few months I have had bone pain that became more and more unbearable. Doctors did not really seem to pay much attention until a chiropractor demanded that I have some tests done. The first MRI of the spine showed that my marrow was looking strange and the bones appeared brittle. That was 3 weeks ago. I then had Pet scan and cat scan done last Friday of July 4 th weekend.. After first MRI the doctor informed us in a very off hand manner what my situation was.
They hoped to find tumours in the Pet scan that they could biopsy...rather than the bone marrow...to decide what to do to try and slow this down.

I meet with team tomorrow..do any of you have programs that work to help keep the pain at a reasonable level?

What chemo, hormone ,radiation are you on?

I know I owe people email replies...but this happened so suddenly ans tookme by surprise.

I'll talk more later....thanks all for being there. Pat
«13

Comments

  • pratt
    pratt Member Posts: 16
    Pat-I don't know but wanted
    Pat-I don't know but wanted you to know that I am praying for you-Hugs-Donna
  • mamolady
    mamolady Member Posts: 796 Member
    Pat, I don't have any real
    Pat, I don't have any real information, I just wanted to say you have a great Chiropractor to be so proactive.
    With bone, they have some good chemo choices and depending on involvement and location, radiation may be an option.
    I am sure the other women here will have some real help for you as far as drugs and treatment protocols.

    All the best,
    Cindy
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    mamolady said:

    Pat, I don't have any real
    Pat, I don't have any real information, I just wanted to say you have a great Chiropractor to be so proactive.
    With bone, they have some good chemo choices and depending on involvement and location, radiation may be an option.
    I am sure the other women here will have some real help for you as far as drugs and treatment protocols.

    All the best,
    Cindy

    Pat, I am sorry, but, I
    Pat, I am sorry, but, I don't know either. I had some pain in my back, so, I had a bone scan, and, it turned out ok..no cancer. There are some pink sisters on here with bone cancer. I hope they see your post and reply.

    Hugs,

    Sue :)
  • sea60
    sea60 Member Posts: 2,613
    Sending you my prayers Pat
    and hoping it's not anything malignant.

    Hugs,

    Sylvia
  • New Flower
    New Flower Member Posts: 4,294
    Ritzy said:

    Pat, I am sorry, but, I
    Pat, I am sorry, but, I don't know either. I had some pain in my back, so, I had a bone scan, and, it turned out ok..no cancer. There are some pink sisters on here with bone cancer. I hope they see your post and reply.

    Hugs,

    Sue :)

    Pat sorry
    Pat,
    I am sorry and still hope it is not cancer that has been causing pain in your back.
    I did have back pain which turned out to be osteoporosis. I know how to treat pain from osteoporosis and I feel much better now. I have had 10 visits with Physical Therapist and continue with exercises at home. If you are interested please PM me. I also know that acupuncture could be successfully used in pain management
    Sending positive thoughts
    Hugs
    New Flower
  • fauxma
    fauxma Member Posts: 3,577 Member
    sea60 said:

    Sending you my prayers Pat
    and hoping it's not anything malignant.

    Hugs,

    Sylvia

    Pat,
    I can't provide any

    Pat,
    I can't provide any information but I will definitely keep you in my prayers.
  • MAJW
    MAJW Member Posts: 2,510 Member
    fauxma said:

    Pat,
    I can't provide any

    Pat,
    I can't provide any information but I will definitely keep you in my prayers.

    Just...
    So you know I'm praying and hoping for a good outcome...please keep us posted when you feel up to it....
    We care...
    Hugs and prayers..
    Nancy
  • Alexis F
    Alexis F Member Posts: 3,598
    sea60 said:

    Sending you my prayers Pat
    and hoping it's not anything malignant.

    Hugs,

    Sylvia

    Praying for you Pat!Hugs,
    Praying for you Pat!


    Hugs, Lex
  • Megan M
    Megan M Member Posts: 3,000
    sea60 said:

    Sending you my prayers Pat
    and hoping it's not anything malignant.

    Hugs,

    Sylvia

    Positive thoughts and
    Positive thoughts and prayers for you Pat!


    Hugs,

    Megan
  • mwallace1325
    mwallace1325 Member Posts: 806
    Megan M said:

    Positive thoughts and
    Positive thoughts and prayers for you Pat!


    Hugs,

    Megan

    Prayers
    Prayers and angels for you and your medical team.

    marge
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member

    Prayers
    Prayers and angels for you and your medical team.

    marge

    Sending positive thoughts
    Sending positive thoughts Pat. Sorry I have no answers for you.
    HUGS,
    WANDA
  • missrenee
    missrenee Member Posts: 2,136 Member

    Sending positive thoughts
    Sending positive thoughts Pat. Sorry I have no answers for you.
    HUGS,
    WANDA

    More prayers and positive energy
    being sent to you, Pat. I'm sure some of the girls who know about this will chime in with some wonderful information. Hang in there and please keep us posted.

    Hugs, Renee
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    missrenee said:

    More prayers and positive energy
    being sent to you, Pat. I'm sure some of the girls who know about this will chime in with some wonderful information. Hang in there and please keep us posted.

    Hugs, Renee

    Pat ... I am thinking about you, and praying for you ...
    I wish I could provide you with research or informational support .. but, sadly I can not.

    Let us know ... if there is anything we can do for you.


    Strength, Courage and Hope.

    Vicki Sam
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    missrenee said:

    More prayers and positive energy
    being sent to you, Pat. I'm sure some of the girls who know about this will chime in with some wonderful information. Hang in there and please keep us posted.

    Hugs, Renee

    Pat, I will be praying for
    Pat, I will be praying for you! Keep us updated!


    Hugs,

    Diane
  • Kylez
    Kylez Member Posts: 3,761 Member

    Pat sorry
    Pat,
    I am sorry and still hope it is not cancer that has been causing pain in your back.
    I did have back pain which turned out to be osteoporosis. I know how to treat pain from osteoporosis and I feel much better now. I have had 10 visits with Physical Therapist and continue with exercises at home. If you are interested please PM me. I also know that acupuncture could be successfully used in pain management
    Sending positive thoughts
    Hugs
    New Flower

    Praying Pat that you will
    Praying Pat that you will get some good news!


    Hugs, Kylez
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    DianeBC said:

    Pat, I will be praying for
    Pat, I will be praying for you! Keep us updated!


    Hugs,

    Diane

    How did today go?
    Dear Pat-
    I'm sorry I can't comment on pain management, but I can send prayers and positive thoughts for a treatment plan that works!
    Suzanne
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    fauxma said:

    Pat,
    I can't provide any

    Pat,
    I can't provide any information but I will definitely keep you in my prayers.

    Praying Pat that it is not
    Praying Pat that it is not cancer! Please keep us posted.


    Hugs,

    Debby
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member

    How did today go?
    Dear Pat-
    I'm sorry I can't comment on pain management, but I can send prayers and positive thoughts for a treatment plan that works!
    Suzanne

    I'm sending positive
    I'm sending positive thoughts, prayers and lots of hugs!


    Jan
  • Noel
    Noel Member Posts: 3,095 Member
    missrenee said:

    More prayers and positive energy
    being sent to you, Pat. I'm sure some of the girls who know about this will chime in with some wonderful information. Hang in there and please keep us posted.

    Hugs, Renee

    We are all here for you Pat.
    We are all here for you Pat. Praying that it isn't cancer. Please post to update us.
  • Noel
    Noel Member Posts: 3,095 Member
    missrenee said:

    More prayers and positive energy
    being sent to you, Pat. I'm sure some of the girls who know about this will chime in with some wonderful information. Hang in there and please keep us posted.

    Hugs, Renee

    Sorry
    double post