Jul 06, 2011 - 2:27 pm
Well my hubby is going for his six week follow up today with the rad doctor. When he went for the 4 week check up he had Thrush so he told him to come back in 2 weeks. So, here we are, I am wondering if my husband will remeber to discuss with the doc about fatigue, nasuea (he got sick this morning) and the bump on the side of his tongue. He has also lost 6 pounds. Down to 141 last night. He has been so fatigued lately that he sleeps all day and does not eat. He waits for me to get home from work to say how much did you get in your tube today. Then I get the "oh yeah, I need to eat". I wish I could stay home every day and nurse him back to health, but bills need to get paid and I carry the insurance for the family. I think he is trying to not eat that much, because we went from a 2 income family to one and money is TIGHT. i told him dont worry about the money, we will not go without. I have a grant pending with this angel program and they are putting our request out to all the board members, so far everyone that has responded has voted in our favor. I will know more later this afternoon, once all members have voted. If we do get approved they will give us a grant for $300 a month for his feeding supplies. Just need a little break, we will not get SSI disability until October. Kinda shocked that they keep your first 5 months.