Jul 04, 2011 - 10:26 pm
Our son (age 34, dx w/ inoperable GBM on 4/18/11) completed his five weeks of radiation/Temadar regimen one week ago. During radiation, he was put on pretty high dose of Decadron (24 mg)for gait, vision, and speech problems that got way worse with the radiation. The docs couldn't say if this decline was caused by the radiation or tumor progression. We have to wait for about three weeks to let the brain cool down from the radiation before they know. Docs are now trying to taper him off the Dex (he's down to 12 mg) but his balance is still way off. We have to hold on to him when he walks in the apartment and if anything more required, he uses a chair. At first, before radiation, he complained that the double vision was intermittent, but now it is pretty much constant. This sounds bad, but I don't want to let the doc know yet about double vision (he's scheduled for his first post-radiation MRI in two weeks) because I know that they'll say bump up the Dex. It's awful being on the high dose: blood sugars wacky (he's diabetic) plus restless and paranoid/anxious and all puffy faced. I'd like to wait a little longer to give the effects of the radiation to wear off before we think about ramping up the dex. My question: would an eye patch help the double vision? Also, what has been other peoples experience seeing things "cool down" after radiation...how long did it take?