Jul 02, 2011 - 10:00 pm
My 12 years old niece was just diagnosed with anaplastic astrocytoma 2 days ago. Her parents were told she has 50% chance of surviving chemo and radiation....
Let me tell you her back story. Her name is Sydney, she has been a very active and healthy little girl. Saturday while playing with her friends, she phoned her mom to tell her she didn't feel good. In mid conversation Sydney collapsed. She was taken to a larger hospital via ambulance 2hrs away. After a CT scan Sydney's parents were told that she needed to be life flighted to a hospital in Denver. Moments later they were told it was too late and there was nothing that could be done to save Sydney. God had a better plan. Two local surgeons, decided to do the surgery in which they had NEVER preformed with the direction of another surgeon via satellite. The family was then told not to expect Sydney to survive to surgery. A tumor was found at the base of her skull, wrapping around her spinal cord. Sydney was on life support and the doctors again told her parents that she may never wake up. 2 days after surgery Sydney was off her vent and responsive. In just one week, she has sat in a chair, can talk, know what month it is, remember the day she collapsed and most of all she knows her family and friends. The news of this tumor has been very difficult for her family to hear. They are waiting for Syd to get stable enough to transfer to Denver and begin treatment. It's unclear what that will consist of. I've just began to research this, it scares me to read some of the "stats". However I know the lord is with Syd and her family. The doctors gave her a 0% chance just one week ago, and now look at her. Please pray for her and anyone with any advise or information you could share with me about AA 111 in young children would be very helpful. I'm going to do this for her parents as they are just so focused on Syd right now. May you all find comfort in the hands of our Lord.