Jun 30, 2011 - 6:25 pm
Sorry I've been away just lately but I am so pleased with the interest this board has had. So I would like to start a new thread where we can tell our stories and that way we can get to know each other.
Right, where to start.............
November 2009 I was struggling to breathe and ended up in hospital hoping for some sort of chest drain and a diagnosis of pnuenomia or something. BUT no, when they drained the fluid they found cancer cells. The doctors were puzzled because they didn't know where the primary cancer was. I had a CT scan and had to wait for about 2 weeks for the results. They eventually diagnosed PPC stage 4. They suspected Ovarian Cancer but my ovaries were healthy. All of my internal organs are healthy. They are unable to offer me surgery as my cancer resembles tiny seeds and are spread out all over the lining of my abdomen. I had a small amount of free fluid (ascites) in my abdomen and this passed over my diaphram and into the pleural cavity. The fluid there is called "plueral effusion" Because the fluid was classed as malignant I was diagnosed at stage 4.
November - December I underwent 3 chest drains just to help me breathe. My CA125 - 1119 and I started on carboplatin/taxol.
January 2010 needed another chest drain. The cancer cells weep fluid and block up the drainage points in the plueral spaces. Eventually the chemo will begins to work and will kill off the cells and unblocks the drainage point but it takes a while so I had to have another drain as I was struggling to breathe.
March 2010 chemo ends and my CA125 is down to 34 just under the normal range. This is great and I settle down and allow my body to repair itself and wait for my hair to grow back.
October 2010 I go for a check up and get results from a recent CT scan and CA125. My CT scan is good and shows stable disease however my numbers have jumped up to 1288. My oncologist responded to this (looking back it was like a knee jerk reaction) by putting me straight onto Doxil.
November 2010 I am admitted into hospital with a fever. They are worried I may have neutropenia. I am isolated andend up being quite ill with an infection of unknown origin. However whilst I am in there they discover I have fluid around my left lung again. So I have the pleasure of yet another chest drain. Because I have this fluid my doctor decides to take me off doxil (as it clearly wasn't working) and I went back on Carbo/taxol.
December 2010 Need to come to terms with losing my hair again. I am actually more upset this time around.
March 2011 After 6 rounds of chemo my CA125 is 95. My CT scan is shows a reduction in a soft tissue mass. All other organs clear including plueral cavity. Doctor is very pleased with results. This is good news for me.
NOW June 2011 Latest CA125 is only 11 points up at 116. Doctor smiles as he gives me my results and doesn't want to see me again until September.
THE PLAN FOR ME