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Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I met with the thoracic surgeon yesterday and I finally have a schedule...Pulmonary Function test tomorrow, pre-op testing on Friday. Wednesday the 6th they will be doing a bronchoscopy for the lymph nodes that show activity and he will also be doing a VATS wedge resection of the large tumor in my right lung. Nothing for the left lung at this time as they are most concerned with the right lung.

I saw the CT and PET scan results, it's amazing to see what the doctors are seeing and scary at the same time. I like the doctor who is performing the surgery, he is the same one who did this procedure on my brother several years ago. He did say that he doubted he would be able to get the entire tumor but he couldn't be positive until he was doing the procedure. The only thing I didn't like was when he started talking about the special staples and glue they would be using to seal the lung. I should only be in the hospital overnight while the lung drains and they watch for any air leaks. He said he might get the results the same day, if not then within 2 days. I'm sure I will be seeing my oncologist shortly after the results are in to discuss chemo.

I'm feeling a little better now that I finally have a schedule and we are moving forward. It's the sitting around doing nothing that scares me, and many of you also I'm sure. I want to get started ASAP so we can get rid of this again.

I hope everyone is feeling well and having a great day.
Glenna

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

Glenna, any time they are doing surgery, strangely enough, I am a happy camper. I suppose it is because it means they are taking out the nasty stuff or, in your case, perhaps, taking out as much as they can, almost always a good thing, I would think.

So the news sounds good to me, my friend. Once again, with cancer it is strange what we wish for :).

Take care,

Joe

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Strangely enough I feel the same way as you, operate!! He sounded rather doubtful that he would be able to get it all but I'll be happy to have as much removed as possible. Less cancer for the chemo to have to get rid of.

Thank you Joe, you have been a good friend since the first time I posted 2 years ago. You always know what to say to relieve my fears.

Stay well,
Glenna

lekkerone
Posts: 199
Joined: Jan 2011

I agree with Joe. I think surgery is a good thing. I think it means they are hopeful they can get it that way. All the best to you with the tests. I know you will come through with flying colors.

AlanRinHBG
Posts: 120
Joined: May 2011

In my case surgery became impossible. I wish it could have been totally removed and outa here. Fortunately there are more options and I'll have to settle for remission. I'll accept that and move on. I sure hope they get it all and you can move on too.

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I've been in remission for almost 2 years from the first battle with lung and laryngeal cancer and my only hope now is for remission again since I have it in both lungs and the lymph nodes in the center of my lungs. If you look at my CT or PET scans it looks like a game of connect the dots - lol.

I'm sorry that yours is inoperable also but remission may buy us both enough time that they will come up with new drugs or treatments so we can both beat this.

My best to you,
Glenna

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Yes, I'm actually looking forward to surgery, not the surgery itself but the fact that they will be removing some of the tumor. I'm more nervous about the PFT, not sure how well I will do with that, between having emphysema and tumors in both lungs I know it won't be as good as I'd like it to be.

I hope you are doing well,
Glenna

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

Keeping my toes and fingers crossed for you Glenna. Let's hope once he gets in there he can really do some damage to that nasty tumor! You are always in my thoughts and prayers.
Anita

z's picture
z
Posts: 1258
Joined: May 2009

Surgery sounds good to me also, and the fact that he can get to it is great via the vats. Do you do any kind of breathing exercises? I know that before my surgery I had to have the PFT and did breathing exercises before hand to make sure I could pass for surgery. I hope your PFT comes out good. I also know that the breathing can be improved with the breathing exercises. I know when I started my breathing was shallow and now its good. I wish you well. Lori

catcon49's picture
catcon49
Posts: 388
Joined: Aug 2008

I am also in favor of plans and surgery. Best of luck

lekkerone
Posts: 199
Joined: Jan 2011

Glenna I had two of these. My advice is to use your spirometer or do other breathing exercises before the test. That way your deep breathing will come more easily. I mean JUST before the test. I also have emphysema but managed okay.

Dan620
Posts: 213
Joined: Dec 2009

Glenna, Just want you to know will be praying they get all of this tumor out and you have a quick recovery and a long remission....... The best to you ... Dan

luz del lago's picture
luz del lago
Posts: 452
Joined: Jul 2010

Glenna,

My thoughts, heart and prayers are with you. You are a valiant warrior, and I am also glad to know that there is a plan!

I pray that your medical team will be guided by God's love and power. That they are able to get as much as humanly possible, and that you heal quickly and with the least amount of pain or discomfort.

Blessings upon you,

Lucy

karenbeth's picture
karenbeth
Posts: 194
Joined: Sep 2010

I was so sorry to read that the cancer has returned. I'm glad you have a good plan and I wish all the best for you--I will be sending healing thoughts your way.

Karen

sleepless in jersey
Posts: 185
Joined: Feb 2011

The waiting is awful, so happy things are moving for you now. You beat the beast before so now you know what you have to do to beat it again.
Your cheerleaders are here routing for you. Continue to stay postive! Remember that little engine that couldnt, well Glenna, I know thats you the fighter!!
Lots of prayers your way....

bfp9548
Posts: 28
Joined: Apr 2010

I'm glad there is a plan. As your said, the waiting is very hard. When you have things to do, your mind is occupied. That has always been best for me. Keeping you in my thoughts.

Kim

AlanRinHBG
Posts: 120
Joined: May 2011

Hi glenna, connect the dots? Did you ever investigate Proton Therapy? It's a highly touted form of highly accurate radiation. There are only 9 sites in the U.S. that have it.So you are right about new treatments coming along to help us. It seems to evolve quickly. I hope you do great, I know you will. Alan

grannylove
Posts: 183
Joined: Apr 2011

I am so glad they are moving quickly! I hope everything went well on your PFT and they can continue with the plan. You are in my thoughts and I pray daily for you to keep strong. You are an inspiration! God bless
Cheryl

grannylove
Posts: 183
Joined: Apr 2011

I am so glad they are moving quickly! I hope everything went well on your PFT and they can continue with the plan. You are in my thoughts and I pray daily for you to keep strong. You are an inspiration! God bless
Cheryl

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Unfortunately everything has changed since I posted this. Surgery was cancelled because my lung function was poor. The surgeon is scheduling an appointment for me to see a Pulmonologist before he will proceed. Wished they'd hurry up with my appointments because I hate sitting around doing nothing while these tumors could be growing.

Trying to stay positive and have patience :)

Glenna

z's picture
z
Posts: 1258
Joined: May 2009

Hello Glenna, I am so sorry for the delay. The pulmologist should be able to help get your breathing better. I know that there is lung rehab and hopfully that will help get your lung function up. Lori

grannylove
Posts: 183
Joined: Apr 2011

Sorry to hear that Glenna! I know it probably took the wind out of your sails but just keep that positive attitude that you have. I hope that they get you into the pulmonologist quickly and get your breathing stronger. Meanwhile, keep doing your lung exercises at home a few times aday. I did the ones that were posted on youtube and found them to be easily adapted to whatever comfortable level I was able to do. Did they tell you how far off your levels were to be acceptable? I have confidence that you will exceed your lung function needed for sugery, with your strength and determination. One day at a time.....goal=surgery. I am sending positive thoughts and lifting you up in prayer. Be well my friend. Cheryl

grannylove
Posts: 183
Joined: Apr 2011

Sorry to hear that Glenna! I know it probably took the wind out of your sails but just keep that positive attitude that you have. I hope that they get you into the pulmonologist quickly and get your breathing stronger. Meanwhile, keep doing your lung exercises at home a few times aday. I did the ones that were posted on youtube and found them to be easily adapted to whatever comfortable level I was able to do. Did they tell you how far off your levels were to be acceptable? I have confidence that you will exceed your lung function needed for sugery, with your strength and determination. One day at a time.....goal=surgery. I am sending positive thoughts and lifting you up in prayer. Be well my friend. Cheryl

grannylove
Posts: 183
Joined: Apr 2011

Thinking of you and sending good vibes your way. I am hoping that things are progressing in a positive manner for you. The waiting is the hardest. Prayers to you. Cheryl

JUDYV5's picture
JUDYV5
Posts: 392
Joined: Jun 2010

Always thinking of you. Sorry that you have to fight this again - Judy

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I want to thank you all for your kind words and inspiration. My surgery was cancelled because of the poor lung function test. Surgeon wanted me to see a pulmonologist before he would operate. Saw the pulmonologist last Wednesday and he said my lungs were only operating at 25% because of the emphysema, scar tissue and tumors. He went over all the scans with me and explained a lot of things to me which made me feel much better. I am supposed to call him back today to see if the surgery is rescheduled.

Hoping to get answers soon and I will keep you all updated.

Thank you all again and I hope you are all doing great!!!

Glenna

sleepless in jersey
Posts: 185
Joined: Feb 2011

Was thinking about you last night and was wondering why we havn't heard from you in awhile.
Im happy that the Doc. explained and made things more clear.
Were here for you with lots of Internet Hugs your way :)

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

I am praying that surgery will be possible for you soon Glenna. Keep us posted dear one.

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

That the surgeons get things on track and moving for you! :)

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