Sundanceh! Craig!
Miss you Mate!
Comments
-
Pepe
Just thought I'd slip out the back door and nobody would notice too much:)
I've been back working full time again about 6-weeks now. Still real tired every day when I get in. I have not posted too much but have checked a couple of times. Saw some things on the board that I did not care for and it was a big turn-off.
On the way into work this morning, I began developing another topic of discussion that I might post about one of these days - I find it very relevant, especially to me at this time of my life. We'll see.
Yes, concentrating on the book. It takes a lot out of me, but is coming along good. I'm already in the middle of chapter 6 of 16....making great progress.
I'm doing as good as I can, given everything. Thanks for asking.
No worries, mate - I read your post about the side effects you were feeling doing your chemo - I had many of those as well. Even though treatments have currently stopped for me and people, including here, think all is ok and it's over with, there is a lot of "after treatment" issues to deal with on all levels.
It seems that along the way of fighting cancer, I've forgotten "how to live." Outside of the book, my other big quest is to find out how to do this once more.
The longer I go at this, I find that I dislike cancer more for the mental anguishes it puts us through instead of the physical, although they are both tough. But mental is where we really live - we live inside our thoughts. When that world is unbalanced, it's sometimes hard to find that rhythm again.
More than you originally bargained for when you opened this post, right Pepe?
Take care, mate
-Craig0 -
Hi Craig,Sundanceh said:Pepe
Just thought I'd slip out the back door and nobody would notice too much:)
I've been back working full time again about 6-weeks now. Still real tired every day when I get in. I have not posted too much but have checked a couple of times. Saw some things on the board that I did not care for and it was a big turn-off.
On the way into work this morning, I began developing another topic of discussion that I might post about one of these days - I find it very relevant, especially to me at this time of my life. We'll see.
Yes, concentrating on the book. It takes a lot out of me, but is coming along good. I'm already in the middle of chapter 6 of 16....making great progress.
I'm doing as good as I can, given everything. Thanks for asking.
No worries, mate - I read your post about the side effects you were feeling doing your chemo - I had many of those as well. Even though treatments have currently stopped for me and people, including here, think all is ok and it's over with, there is a lot of "after treatment" issues to deal with on all levels.
It seems that along the way of fighting cancer, I've forgotten "how to live." Outside of the book, my other big quest is to find out how to do this once more.
The longer I go at this, I find that I dislike cancer more for the mental anguishes it puts us through instead of the physical, although they are both tough. But mental is where we really live - we live inside our thoughts. When that world is unbalanced, it's sometimes hard to find that rhythm again.
More than you originally bargained for when you opened this post, right Pepe?
Take care, mate
-Craig
I was glad to read
Hi Craig,
I was glad to read your post as I told you once I look up to you. I also am working on another book, not about cancer, I have been a writer for a long time and wrote for a magazine a few years back.
The mental issues are the hardest ones to deal with because we cannot control our thoughts.
They pop up at the silliest time, like in the middle of the night.......when we are suppose to be sleeping. Cancer is never "over". We have to learn to live with it, for the rest of our days and dreading the tests outcomes every time, because... you never know....
That is the hardest part. Because you look OK and seem to be OK does not mean, we are OK.
I write my fears and triumphs away in a diary, that seems to work for me, that way I do not bother my kids or friends with it. They all think I am so strong, little do they know about my fears. I go on living day by day, but always in the back of my mind is this beast popping up. When will it return and where. He took up living in my head permanently uninvited. If you know a way to get rid of him, please let me know.
Take care, do everyday something fun, treat yourself to something you always wanted.
Hugs,
Marjan
You never walk alone0 -
Hi Craig and Marjan , I totally agree with you ,thingy45 said:Hi Craig,
I was glad to read
Hi Craig,
I was glad to read your post as I told you once I look up to you. I also am working on another book, not about cancer, I have been a writer for a long time and wrote for a magazine a few years back.
The mental issues are the hardest ones to deal with because we cannot control our thoughts.
They pop up at the silliest time, like in the middle of the night.......when we are suppose to be sleeping. Cancer is never "over". We have to learn to live with it, for the rest of our days and dreading the tests outcomes every time, because... you never know....
That is the hardest part. Because you look OK and seem to be OK does not mean, we are OK.
I write my fears and triumphs away in a diary, that seems to work for me, that way I do not bother my kids or friends with it. They all think I am so strong, little do they know about my fears. I go on living day by day, but always in the back of my mind is this beast popping up. When will it return and where. He took up living in my head permanently uninvited. If you know a way to get rid of him, please let me know.
Take care, do everyday something fun, treat yourself to something you always wanted.
Hugs,
Marjan
You never walk alone
I hate more the mental effects than any side effect from treatment, well hope it's a question of time!. Craig don't think you are in the back door and nobody notice , you are one of the " must" of this forum!.As you probably realized there are lot of people missing late
y or just lurking lately, hope you are not one of this and continue posting your interesting and helpful post in this forum, I m really looking foreword to se your new thread ! I'm sure it's going to be one of your master pieces !.
Well... just tell you that I really miss you my friend! .
Hugs and go ahead Craig!,.0 -
dear marjan, live your passionthingy45 said:Hi Craig,
I was glad to read
Hi Craig,
I was glad to read your post as I told you once I look up to you. I also am working on another book, not about cancer, I have been a writer for a long time and wrote for a magazine a few years back.
The mental issues are the hardest ones to deal with because we cannot control our thoughts.
They pop up at the silliest time, like in the middle of the night.......when we are suppose to be sleeping. Cancer is never "over". We have to learn to live with it, for the rest of our days and dreading the tests outcomes every time, because... you never know....
That is the hardest part. Because you look OK and seem to be OK does not mean, we are OK.
I write my fears and triumphs away in a diary, that seems to work for me, that way I do not bother my kids or friends with it. They all think I am so strong, little do they know about my fears. I go on living day by day, but always in the back of my mind is this beast popping up. When will it return and where. He took up living in my head permanently uninvited. If you know a way to get rid of him, please let me know.
Take care, do everyday something fun, treat yourself to something you always wanted.
Hugs,
Marjan
You never walk alone
Or as said before find the zest, not easy but in fiji I have forgotten crc
Hugs,
Pete0 -
G'day CraigSundanceh said:Pepe
Just thought I'd slip out the back door and nobody would notice too much:)
I've been back working full time again about 6-weeks now. Still real tired every day when I get in. I have not posted too much but have checked a couple of times. Saw some things on the board that I did not care for and it was a big turn-off.
On the way into work this morning, I began developing another topic of discussion that I might post about one of these days - I find it very relevant, especially to me at this time of my life. We'll see.
Yes, concentrating on the book. It takes a lot out of me, but is coming along good. I'm already in the middle of chapter 6 of 16....making great progress.
I'm doing as good as I can, given everything. Thanks for asking.
No worries, mate - I read your post about the side effects you were feeling doing your chemo - I had many of those as well. Even though treatments have currently stopped for me and people, including here, think all is ok and it's over with, there is a lot of "after treatment" issues to deal with on all levels.
It seems that along the way of fighting cancer, I've forgotten "how to live." Outside of the book, my other big quest is to find out how to do this once more.
The longer I go at this, I find that I dislike cancer more for the mental anguishes it puts us through instead of the physical, although they are both tough. But mental is where we really live - we live inside our thoughts. When that world is unbalanced, it's sometimes hard to find that rhythm again.
More than you originally bargained for when you opened this post, right Pepe?
Take care, mate
-Craig
"I am doing as good as I can,given everything". You don't have to be a great writer To simply state life after ca for a lot of survivors. For those of us like yourself,Louis swift and myself the legacy is obvious and not pretty. For others who so far are doing just fine ,the potential that fills our waking thoughts,screws with our ability to truly enjoy the lull.
I find that I now give ecouragement rather than congratulations to survivors passing milestones. Although I have survived quite a while I feel it is bringing me closer to the end rather than further away from ca.
I am doing it a little tough at the moment. Immuno-suppressants are nasty drugs. I had a ca removed from my cheek last week. It was supposed to be a simple basal cell carcinoma. It was a bcc but micronodular meaning it was as aggressive as bcc's get.
My last drug ,arava,compromised my liver so I have have been off medication for six months.Arava stays in your system for two years. After six months without im/supp I am in trouble. My joint pain and neuropathy has gone wild, my protein loss thru urine has jumped from 300 mg a day to 1500 mg and I am having serious breathing difficulties. My neprologist is concerned. He no longer thinks that my problems are as per the original diagnoses and is fairly sure I have some sort of vasculitis. I hope not as it is a dreadful disease not just because it can kill you but it further erodes quality of life.
I think I am destined for another kidney biopsy. If it can be dx'd any other way I will be begging him to do so because i don't think I can face another biopsy,they are dreadful. Whatever happens It looks like I will be on methotrexate and imuran for the rest of my life. I guess that sadly that is the only thing I can control any more.
Good luck with the book tho that is a minor cocern compared with getting your life back in balance. May the force be with you,Ron.0 -
Hello Craig!Sundanceh said:Pepe
Just thought I'd slip out the back door and nobody would notice too much:)
I've been back working full time again about 6-weeks now. Still real tired every day when I get in. I have not posted too much but have checked a couple of times. Saw some things on the board that I did not care for and it was a big turn-off.
On the way into work this morning, I began developing another topic of discussion that I might post about one of these days - I find it very relevant, especially to me at this time of my life. We'll see.
Yes, concentrating on the book. It takes a lot out of me, but is coming along good. I'm already in the middle of chapter 6 of 16....making great progress.
I'm doing as good as I can, given everything. Thanks for asking.
No worries, mate - I read your post about the side effects you were feeling doing your chemo - I had many of those as well. Even though treatments have currently stopped for me and people, including here, think all is ok and it's over with, there is a lot of "after treatment" issues to deal with on all levels.
It seems that along the way of fighting cancer, I've forgotten "how to live." Outside of the book, my other big quest is to find out how to do this once more.
The longer I go at this, I find that I dislike cancer more for the mental anguishes it puts us through instead of the physical, although they are both tough. But mental is where we really live - we live inside our thoughts. When that world is unbalanced, it's sometimes hard to find that rhythm again.
More than you originally bargained for when you opened this post, right Pepe?
Take care, mate
-Craig
Hi Craig,
Good to hear from you! (Thank you, Pepe, for writing the post)
I think of you often and pray you're handling working again alright. I'm so glad to hear the book you're writing is going well!
Don't have much else to say, but to say hang in there & pray about "learning to live life" again! I know what you mean for sure when EVERYTHING you want to do or go attend is affected and makes us think of our cancer, issues we may have in public, what's going to pop up on the next scan, etc. BUT, we ARE here and we ARE living life, right?!
You're working again and you're writing a book! That's so exciting!!
I, for one, will be waiting anxiously to read it when you're through.
Hugs to you,
Lisa0 -
Can't wait for the book!Sundanceh said:Pepe
Just thought I'd slip out the back door and nobody would notice too much:)
I've been back working full time again about 6-weeks now. Still real tired every day when I get in. I have not posted too much but have checked a couple of times. Saw some things on the board that I did not care for and it was a big turn-off.
On the way into work this morning, I began developing another topic of discussion that I might post about one of these days - I find it very relevant, especially to me at this time of my life. We'll see.
Yes, concentrating on the book. It takes a lot out of me, but is coming along good. I'm already in the middle of chapter 6 of 16....making great progress.
I'm doing as good as I can, given everything. Thanks for asking.
No worries, mate - I read your post about the side effects you were feeling doing your chemo - I had many of those as well. Even though treatments have currently stopped for me and people, including here, think all is ok and it's over with, there is a lot of "after treatment" issues to deal with on all levels.
It seems that along the way of fighting cancer, I've forgotten "how to live." Outside of the book, my other big quest is to find out how to do this once more.
The longer I go at this, I find that I dislike cancer more for the mental anguishes it puts us through instead of the physical, although they are both tough. But mental is where we really live - we live inside our thoughts. When that world is unbalanced, it's sometimes hard to find that rhythm again.
More than you originally bargained for when you opened this post, right Pepe?
Take care, mate
-Craig
Hey, Craig!
Glad to hear from you. Can't wait for the book to come out! You're a wonderful, thoughtful man, and I know you'll find your rhythm again.
*Hugs*
Gail0
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